You are not alone – brave #RosaceaNoFilter sufferers post selfies online

Written by on April 23, 2019 in in the news, research, Rosacea Symptoms with 11 Comments

RosaceaNoFilter

The annual rosacea awareness month is underway. Most of what happens during the month is barely worth highlighting, but this is different. Rosacea sufferers have been encouraged to post a makeup free, instagram filter free picture of their symptoms. The photos have been posted under the hashtag #RosaceaNoFilter.

Here are some pictures of fellow rosacea sufferers. You are not alone. I hope you find a fellow kindred sufferer here that you can identify with. Double thumbs up for those brave enough to post a picture.

You will need to visit the web page at rosacea-support.org to see the instagram images load. Visit You are not alone – brave #RosaceaNoFilter sufferers post selfies online.

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Thank you to our #RosaceaNoFilter ambassador @halliebing for sharing your #RosaceaNoFilter experience. Be #ProudToShare! #RosaceaAwarenessMonth #beyondthevisible #VisitYourDerm #rosacea . Read Hallie’s story below 👎🏻 . (🔁 @halliebing) Happy Monday, and happy #rosaceaawarenessmonth! 🗓I’m so excited to announce that I’m partnering with Galderma and @rosacea_beyondthevisiblefor their #RosaceaNoFilter campaign this month to bring more awareness to the fact that #rosacea affects the afflicted far beyond what you see on our faces, and I’m #proudtoshare a completely bare-faced, unedited photo (taken a couple weeks ago😂) to kick things off. As many of you have seen/heard/read from my accounts over this past year, I’ve had numerous ups and downs physically and emotionally as I’ve dealt with some pretty severe rosacea flare-ups🥵. Trying to figure out what my triggers might be, dealing with the shockingly intense pain, and coping with the massive hit on my self-esteem has been a growing process in every way. I’m grateful I’ve found ways to LOVE myself and my skin in every stage, and I’m grateful that the @rosacea_beyondthevisible campaign exists to shed more light on the ways this disease truly IS #beyondthevisible- it affects us beyond just some red skin! 👏🏻 Watch for more posts on my feed and in my stories this week to see how you can get involved! #sponsored #visityourderm #dermatology #skin #skindisease #skincondition #skinproblem #skinjourney #skinpositivity #skinpositive #mentalwellbeing #mentalhealth #rosaceaawareness #rosaceaproblems #rosaceasupport #rosaceajourney #rosaceaflare #selflove #beauty #skincare #rosazea #rosacee

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Joining the brave people in the #rosaceanofilter for rosacea awareness month ! I’ve been diagnosed with a subtype 2 about 6 years ago. At first it was just a constant blushing but then the papules and pustules showed up (glamorous, I know). This condition is not curable and is chronic, and it’s not just about blushing. Your face gets itchy, it will burn for no reason and you will feel super duper hot all of a sudden. 🥵 The biggest part of controlling it is to know your triggers, but some are easier (food and drinks to avoid🌶🍻) than others (stress management😬). You can read more about it with @rosacea_beyondthevisible that are making a really amazing job at raising awareness ! So many people don’t even know they have rosacea. Go #visityourderm to get it under control and make sure it doesn’t get worse ! I’ll be back with drawings very soon – still settling in my new home in California ! Love you all ❤️💖❤️💖 #beyondthevisible #rosaceaawarenessmonth #proudtoshare #rosacea @ladyrosacea #ladyrosacea PS: don’t forget your sunscreen ! ☀️

A post shared by ˗ˏˋJuliaˊˎ˗ (@jvnesvnshine) on

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Did you know that April is rosacea awareness month? You’ve probably seen me talk about how rosacea has affected me, but I’ll share a bit more. I’ve only recently become comfortable posting pictures of my face with no foundation. 🙈 99% of the time, I don’t leave my house without it. Not because I’m embarrassed, but because I get tired of answering questions or explaining that – yes I am wearing sunscreen and no it’s not a sun burn or acne 😂😊 Right now, this is “under control” – it’s not inflamed or sore. This is a good skin day. Can you believe that? The bad days are awful – bright red cheeks and nose, little sore bumps everywhere that drain fluid. It’s miserable and painful. I always had decent skin growing up, but around the age of 30, I started to notice a red flush to my cheeks and small bumps. It slowly progressed each year – it has now spread to my forehead. There’s no “cure” but there are certain things to avoid (sun, alcohol, spicy foods, stress) as well as laser treatment and a few products that help my inflammation. I can’t even begin to explain how difficult it is to share about skincare and have skin that literally has a mind of its own and looks neglected. I spend so much time taking care of myself but my skin makes me look like I’m lying. I had to overcome that and embrace it. This is me 😊 When things don’t affect us, it’s easy to continue on uneducated. I’m guilty of that. I would challenge you to take a minute and do a little research. Maybe you’ve even been suffering with it and didn’t know what it was. . . . . #rosaceaawarenessmonth #rosacea #rosaceanofilter #beyondthevisible #picoftheday #photooftheday #womanempreneur #femalepreneur #lifestyleblogger #mombosslife #perfectlyposh

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Our amazing #RosaceaNoFilter ambassador @talontedlex has been #ProudToShare her #RosaceaNoFilter story this #RosaceaAwarenessMonth. Follow her lead and share your no filter experience of living with #rosacea! 🤗 #beyondthevisible #VisitYourDerm . Read Lex's story below👇 . . [🔁Reshare @talontedlex] April is #rosaceaawarenessmonth and so @rosacea_beyondthevisible have created an important campaign that I'm taking part in to encourage my fellow 'rosaceans' to live with#RosaceaNoFilter. And that doesn't just mean showing the physical effects of rosacea (as I'm doing in this selfie) but also by talking candidly and sharing our individual stories – with no filter. Raising awareness of this condition is so important to me and I'd LOVE your help spreading the word. Please post your rosacea selfie along with the hashtag#RosaceaNoFilter and help me show the many faces – and stories – of rosacea. I'm going to be posting some of the selfies shared with the hashtag in my Instagram stories so you can find other people to follow and support, so do keep an eye out for that. I've also written a blog post about this campaign with some of my tips for confidence – I'm putting a link to that in my stories as well if you fancy a nosey 👏

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About the Author: David Pascoe started the Rosacea Support Group in October 1998. .

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11 Reader Comments

  1. comment via email.

    “I just wish some of the creams like Finacea and meds like Oracea weren’t so expensive. You finally find something that helps and they are to expensive to get and insurance companies will not cover them for you….that is why you get insurance!”

  2. barbarelli says:

    you are all so amazing to show your photos . thank you i’m not so brave to post mine We are very fortunate here in the UK to have our NHS & can obtain a ‘script for abut £9 per item .but we all pay in to it as soon as we start working . I find the Bioderma range help me to cover it and help with the pain of it . i never even stay at home without wearing my AR BB cream . I wish someone would find a permanent ‘cure’.. .

  3. mj says:

    Brave begets brave. I don’t know how to do selfies or however one says it; but you have made me brave enough to write here. Have had R for many, many years starting with the usual red cheeks that got redder and redder. Stress is my dragon. I do not think I’ll ever tame it, for I’ve tried to no avail. Please know I’m one of you and I certainly am proud of your sincere beauty.

  4. ellen.leeser@gmx.de says:

    Dear all,

    you are all so bold, to show your selfies on this platform.
    I am a german woman, 53 years old and for me it works mineral powder from La Roche Posay to cover my skin.
    First I take Soolantra, and after it the emulsion antirougeur from Avène and finally the powder.
    It’s excellent for me.
    I always had pustles on my head and I use “Teebaumöl-Shampoo from Swiss-o-par.
    So the terrible itch ended fortunately 🙂

    May greetings
    Ellen

  5. ellen.leeser@gmx.de says:

    ….and by the way: This forum is gratefully! My compliments for David and all the other poeple, who post their comments here. Very helpfully. There isn’t such kind of forum in Germany for Rosacea.

    Ellen

  6. Rebeca says:

    I have been using the cleanser for sensitive skin from Derma E twice a day, it has helped a lot with the redness and the bumps

  7. Sandra Hall says:

    I’m in the USA and I urge all of you to watch Dr Dray’s YouTube vlogs on Rosacea. She is a dermatologist in Texas and is an excellent source for information and tips. Since simplifying my skincare routine and…this is vital…healing my depleted moisture barrier, my skin has improved immensely. I’m so pleased that I don’t have to miss going places or avoiding social situations because of my embarrassing and painful skin condition. Not perfect, but almost.

  8. Julie says:

    I’m allergic to fragrance. If you have not had an allergy test to test whether you are allergic to products or other chemicals, you should maybe have your dermatologist test you for theses allergies. I was diagnosed with rosacea, tried all kinds of treatments, doxycycline, different creams, etc. I kept noticing that I would break out with no rhyme or reason. I kept thinking to myself it is like I’m allergic to something. So I went on a mission to try to figure out what was causing my “triggers” of Rosacea. I did food and outside allergy test. I stopped dairy, nuts, etc. Nothing food wise helped. So finally I did the testing for allergic to products. Amazingly found out I was allergic to fragrance. Fragrance is in everything. The first change I made was mascara I was almost out and got a fragrance free mascara. Miracle my eyes were not watery or irritated or inflamed. Changed laundry detergents, all cosmetics, etc that are fragrance free. No symptoms of rosacea. I’m not sure I ever had rosacea but maybe “chemically rosacea”. Maybe this will help someone.

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