Soolantra User Reviews

soolantra-tube

Even though Soolantra has only just been approved as a treatment for rosacea, and won’t be available for a couple of months, can we get any idea of how well it might work ?

Thankfully the answer is yes. With credit to those who have been part of the extensive trials for Galderma’s code-named CD5024 we can have an early glimpse into how well Soolantra can treat the papules and pustules of rosacea.

Soolantra has been in trials as early as 2006, so there are plenty of rosacea sufferers who have been able to try what we now know as Soolantra.

Once Soolantra becomes more widely available and the early users of the official prescription venture online, a better picture of the utility of Soolantra will emerge.

For now, whet your appetite from the reviews of these early users of Soolantra, read on for more.

User Reviews

rachzon, Brisbane in 2008 says:

I have been on an Ivermectin trial for just over a week now with quite positive results. I have moderate Rosacea with frequent papules and pustules. My most recent flare up started in July and had continues until this week when I started the topical Ivermectin.

My skin had improved a little after I started applying Megan Gales Invisable Zinc about a month ago but the change in the last week has been quite dramatic.

My skin is still far from perfect but as the trial goes for about a year I hope it continues to improve. Initially I was getting about 20 papules on EACH cheek, forehead and even on my neck, so it was pretty ugly, the inflammation was not pleasant either.

I have the occassional papule left, the worst place is still on my neck but the texture of my skin is soft, no burning or itching and life is a hell of a lot more pleasant. My 3 year old son hasn’t been patting my cheek and asking me if it still hurts this week either.

Looks like those beastly mites have a lot to answer for in my case.

and then

It is a 30 gram tube with what I presume is 1% Ivermectin

and

I asked about other peoples experiences, they have about 10 on the trial at the Coast and all but one have had results similar to mine. The Derm mentioned that up to this point it has been very hard to treat Papular Pustule Rosacea so is very pleased with these results.

and

10 weeks I have been on the trial now and my face continues to be fantastic. I get the very occasional bump but it is gone within a few days.

RosaceaHater says:

The flare got so bad I considered withdrawing from the study. However, my study doc counted a huge change in the papules vs. pustules count that they tally on each visit and he also said it is common to see a change in the type of lesion before there is any improvement. So I kept with it and now the bumps are clearing up almost as abruptly as they arrived. I am fairly certain I got CD5024 and not the placebo. I will find out for sure in six weeks! If there are any questions thus far I would be happy to answer them.

and

Today I had my 4 week checkup with my study doc. My papule/pustule count went from 41 my baseline visit to 29 today. The nurses commented my skin looks better. And yes, CD 5024% is ivermectin! I will have my next checkup in four weeks. At that time I will provide another P/P count and I will know if I got CD 5024 or the placebo.

KP Says:

I am in the CD5024 study and they do draw blood at every monthly visit. I began the study in June 2012 and saw results quickly. I rarely break out and the cream has made my skin very smooth. My skin has never looked better. When the product finally comes on the market I fear I won’t be able to afford it as most new drugs are not covered by my insurance.

GW says:

I’m currently involved in a study of CD5024, and barring any side effects, it’s fantastic! I’ve been using it for 12 weeks, and my Rosacea was pretty much gone by the 3rd week. Now I have no visible Rosacea. What am I going to do when I run out?!

As for the white blood count, my doc knew before I did that I was sick. They called because the count was low, and that weekend I came down with a terrible cold. Thankfully, after I recovered the white count was normal.

Please Add Your Reviews

If you get to try Soolantra please do let us know below in the comments how you like it or not.

Were you on the trial, how did it go for you?

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About the Author: David Pascoe started the Rosacea Support Group in October 1998. .

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  1. CD says:

    I started 8 days ago. It got worse initially. The first week was really bad with bumps all over my face, particularly around my nose, cheeks, and forehead. Now things seem to be improving. I’m cautiously optimistic. It was helpful for me to read the advice of others to stick with it. I’ll keep it up and report back.

    • Ayesha says:

      Hey, I have been prescribed soolantra for papillae rosacea. I have been using the cream once a day for only 5 days. My face is bad. It has bought out red spots all over my face and nose. Before they were just bumps in the skin now they are showing on the outside. Not sure if it is meant to get worse before it gets better. I am getting married in 7 months and do not want to look like this.

      • stuart says:

        In 7 months time your skin will be better than its ever been believe me. 5 days is nothing. You will have weeks worse than others as the mite kill off happens until the mites are gone.but you will be happy. About 12 weeks plus you should be clear but in the weeks leading up to that your skin will continually improve dramaticly.

        • Ayesha says:

          Thank you for your advice Stuart. I have an appointment with the dermatologist tomorrow so will show him my face and see what he says.
          I was hoping someone would say it gets worse before it gets better. Today the redness is not to bad and the bumps are not as bad as yesterday. Not sure if that is because I have been in bed all day due to a sickness bug and not had the opportunity to go out and about. Hope soolantra works for me. I honestly do not know how I have developed papular rosacea. I have Asian skin, I am pretty fair in colour may be that’s why. Thank you for your support. Your words give me hope.

          • stuart says:

            Its fine. I had anti biotics to combat the mite die off for the 1st few weeks. Its 3 weeks, 6 weeks , 9 weeks that u will most probs have further mite die off. But you have to stick with it. Tgats the number 1 rule.

          • Carrie says:

            Your face will get soooooo bad before it gets better. Once it gets better though, it will be better than it’s ever been. I look totally different than I did 18 months ago. V Beam Laser helps a lot too. Don’t give up. The only reason I got past day 3 was because I saw a man on here begging people to just keep going. You will feel like a monster for several days, but don’t stop! All the bumps are the mites dying and you have to kill them all before you clear up.

            Good luck !

        • MT says:

          I suggest to keep more moderate words than “better than it’s ever been” mate. Soolantra is quite good, but not magic, and not for everyone. Worse before it gets better overall, we all know that now. But after about 2 years of Soolantra medicine, I can say it’s not always for the best in a pink glasses tinted world. Soolantra isn’t THE miracle product for all rosacea pathologies.
          Regards.

          • stuart says:

            I,l use watever words i like mate. And if its mite related rosacea then her skin will be better than its ever been .

          • MT says:

            Can’t tolerate any critisism, really ? So really, you’re dermatologist now ? Because you’re in this treatment 8 months ago ? I started it way earlier than you, and that doesn’t allow me to make such a statement.

          • stuart says:

            I can tolerate critisism fine but like i said il use watever wrds i like. Im no dermotologist either are u?? Many dermatologists think or thought the mite theory was nonsense aswell. And ive had rosacea since i was 20 im now 40. 8 months of using soolantra yes but years of nothing else working. Like i said if its mites then her skin will be better than its ever been. Fact.

      • JIMR says:

        I used oral Ivermectin and my face blew up! That is because all the mites are dying off and that is what causes the pustules and papillae Rosacea, the waste (poop) that is in them is released all at once since the mites don’t have a rectum so the waste is stored up until they die. So your face getting worse is really a good sign that the Soolantra is working. The Soolantra does not kill the eggs that were already laid so you have to keep using it to kill them once they hatch. My outbreak only lasted for a few weeks then it got better each day until it was finally completely clear. My skin now feels so weird it is smooth and soft. I had forgot what it was like before I got Rosacea about 9 years ago. I still get a few small pustules now as the mites are a thing that will never really go away completely, since they are everywhere, but at least there is a way to keep them controlled.
        Here is a link ta a JAMA article using Ivermectin oral treatment on a 12 year old girl, My face was about half as bad as hers after I took Ivermectin. https://jamanetwork.com/journals/jamadermatology/fullarticle/1784334

    • claude caron says:

      hi I hope you enjoyed the magnificent results that I did. I had terrible papules diffuse over my forehead chin and cheeks after 4 weeks of soolantra I found an improvement of 70%. 3-4 weeks beyond this my condition cleared, amazing!!

  2. Chris says:

    @Ayesha Doxycycline is a life saver. I got big red bumps after a few weeks on ivermectin cream. Doxycycline made them disappear within a week. It means I need to stay on an antibiotic for a while, but I don’t notice any side effects from it during the 6 months. Now that my skin is much improved from the combination of ivermectin and doxy – much less flushing, burning, inflammation and swelling – I decided I’m ready for IPL. So far I’ve had one light treatment with small but noticeable improvement. I’m going back next week for the next one, which will be stronger. I figure once my skin improves enough, I’ll be able to go off the doxy (does anyone have experience with this?).

    • MT says:

      Same here. About Doxy, I’m used to go on and off alternatively : can’t stay under it all the time, so go off asap but come back to it regularly because of the ivermectin “bad times”.

    • Ayesha says:

      Thanks for your feedback Chris. I am going to mention this to the dermatologist tomorrow. They are that bad that even when I wear make up, the make up absorbs in to them and brings each one of them out on show. I am happy to hear you have some relief from your symptoms. It gives us faith. Keep posting and updating us.

    • Carrie says:

      Chris- is there a reason you are getting IPL vs the V Beam? My doctors always said V Beam was better for rosacea. It might be fore painful, but it is better for redness and killing the blood vessels. Whereas, the IPL is more for sun damage, wrinkles, fine lines etc and will require more treatments than the V Beam.

  3. Chris says:

    Ayesha, good luck! Keep us updated

    Carrie, I was considering V-Beam, based on your posts and seeing that doctors recommend it over IPL, but I decided to start with IPL, for a couple of reasons.

    1. Downtime
    After IPL, I can look pretty normal the next day (with powder). With V-Beam, it sounds like my face would be a mess for a few days. I don’t want this to impinge on my (or my partner’s) social life too much if I can help it. Since the downtime is brief, it doesn’t bother me as much that I may need more treatments.

    2. Safety
    Of course I went online and read all the horror stories, and I saw more for V-Beam than IPL. (I guess it’s similar for laser eye surgery – it worked for me and and most people, but most of what you see online is horror stories). I believe it’s easier to get a safe IPL treatment from a less experienced doctor than it is for V-Beam, since it does less damage. I live in Shanghai, where rosacea is very rare, so I don’t count on my doctor being very experienced with my condition. I’ve only had one light treatment so far, but the redness afterward wasn’t that bad. If I’d put on powder (doctor told me not to that day), I probably could have gone out a few hours afterward.

    3. Skin texture as well as color
    V-Beam is precise, using single wavelengths of light to target certain shades, whereas IPL uses all wavelengths within a range. Right now, I’d like to see what this more general approach can do, since I also hope to improve the dried-orange-peel texture of my skin as well as reduce the redness. There’s evidence that IPL improves skin texture and can slow or even reverse some aging. Experts looking at before/after pictures of people who’d been getting IPL for nearly a decade judged the “after” picture as being the younger face. A scientific study found that IPL resets half of the skin genes associated with aging to their original, youthful state.
    https://www.drbaileyskincare.com/info/blog/broadband-light-the-cosmetic-procedure-to-slow-aging-skin

    I also found this blog to be encouraging: http://botherthisrosacea.blogspot.com
    This woman posted some photos of her progress, starting with anti-mite creams (Ivermectin, Permethrin, Lindane – I think they all have the same effect) and then finally eliminating her rosacea with IPL.

    I think that starting with anti-mite medication (with doxy if necessary) and finishing with IPL/V-Beam is the way to get rid of rosacea. I plan to get 3 more IPL treatments, for a total of 4, each about a month apart. If there’s still redness left that the IPL can’t seem to get, then I’ll go for V-Beam. I’ll update here on my progress.

    • stuart says:

      Is i.p.l permanent or do you have to go back every so ofter? Also whats everyones thoughts on general maintainence on mites. Do you apply ivermectin where there is no visible signs of rosacea on face? I.e.. head ?

    • Carrie says:

      Interesting. You are correct about the down time. I usually get the treatment on Thursday or Friday and go back to work on Monday or Tuesday. You get very red and swollen. I actually was swollen for days worse than my doctor had seen before. It requires lots of ice packs and rest. I am usually still a little puffy for several days after that, but everyone at work is aware and don’t seem to mind.

      What is the cost for an IPL over there? V Beam in the USA, Louisville, Kentucky to be exact, is $350 each time. It takes about 30 mins, maybe an hour in the beginning to do the treatment. What does an IPL feel like?
      V beam is pretty painful. It’s a strong laser so you have to be prepared for the pain if you have your entire face treated like I did. I too have seen horror stories online about people with lots of purple circles all over their face. It should not look like that. You should always go to an actual doctor, not a laser clinic. Those people had the laser settings up too high for that persons skin type. You can’t go cheap when it’s on your face.

      My skin is incredibly soft. No bumps or marks whatsoever now. I totally agree that these type of treatments really clean up the texture. My cheeks feel as soft as a baby. I assume IPL would do the same based on what you said. I have had 4 V beam treatments. I had 3 in 2015, each a month apart about a month after starting on Soolantra. Then 1 in the summer of 2016. I have the next one scheduled this summer. I plan to get 1 treatment a year for the rest of my life. My doctor and what I have read online says that the body tries to regrow the vessels so people with rosacea will always be fighting it.

      Based on where you live and what you said about it being rare, I guess you got lucky that you found at least one doctor willing to try new things and help you. That’s great!

      These really are good times for people with rosacea. I wish people in the past would not have had to suffer so long.

      Good luck!

      • Dee says:

        I’ve just had the v beam x4 – I was so relaxed I fell asleep during most treatments, no down time whatsoever. Just a little pink. I also had dermasweep inbetween. I’m using soolantra too and both my acne and rosacea under good management. No papules and pustules. My skin texture has little change though possibly plumped up a little. I’m now considering Ipl. You do need to be in good hands to get the right advice re the laser for you. Good luck

  4. Chris says:

    Carrie, that sounds rough! I hope I don’t have to go through all that. I guess I’ll see after a few IPL treatments if that’s enough on it’s own, or if I need to add one or two laser treatments as well. The place I go to charges nearly double for laser compared with IPL, so it’s around 400usd for laser and 220usd for IPL. They told me they have some fancy new lasers, so I guess that’s why.

    The IPL stung a bit, like being smacked with elastic bands, but not too bad. But since it was the first time, they had it on the lowest setting, so I guess it will hurt more and more each time.

    Stuart, they recommend that you get 3-5 treatments one month apart the first time, and then 1-2 treatments per year afterward forever. But that doesn’t just keep the rosacea at bay, but it also is supposed to help rejuvenate your skin. I hope it works as advertised!

  5. Same here. About Doxy, I’m used to go on and off alternatively : can’t stay under it all the time, so go off asap but come back to it regularly because of the ivermectin “bad times”.

  6. David Pascoe says:

    comment via email.

    “Dear Mr. Pascoe,

    After more than six years and 15 plus doctors, including dermatologist, RA, infectious disease,GP and a parascintologist And just about any other Dr? you can recommend I have five of them that reviewed all my records and tests and looked me in the eye and said Honestly I may add “I don’t have a clue what is wrong”. The rest, including Mayo all have their own opinions and all of them include sycopathic drugs, also it is all my imagination and I am delusional. I made up my mine to solve the problem and found a woman dermatologistdermotologist that worked with me and my PA.

    I am now finished with the miserable lesions and have the scaring to deal with. ALSO, my dermatologist ordered a Rx. for Soolantra and ordered it to be compounded. Soolantra averages about $350.00 and compounded Soolantra is $35.00 The people suffering with Rosacea and Demodex mites need to know this. I have spent thousands because the doctors choose to believe I was delusional. Thank you for your intrest.

    Sincerely, Susan “

  7. I have just finished my first tube of Soolantra and am delighted with the results. When I used it first I though it didn’t work well but now think I didn’t persevere long enough.

    I now use Soolantra every night and my skin hasn’t looked this good or clear for 15 years. Finally there seems to be a solution.

    I first heard of Soolantra at a Beauty Therapists seminar. A dermatologist gave a great talk on Rosacea and was convinced the demadox mite was to blame for the pustules. Now I agree, having been a sceptic for years.

    Irene

  8. Dorota says:

    Hi
    I have rosacea for about 20 years. But it was never as bad as last two years after I gave birth.It was so bad that I developed blepharitis, I had always very sensitive skin so I couldn’t use any cosmetics as I ended up with very red itchy face. I was waiting with treatment until I stopped breastfeeding and about two months ago I went to GP to ask for treatment. I got Soolantra and Oxytetracycline. I started with soolantra and for about 2 days nothing changed so on third day I started Oxytetracycline as well. And then it began. For a couple of days my skin was getting swollen, red and bumpy and then literally peeled off in chin area. I couldn’t leave the house. I was sure it was antibiotic, After about five days I went back to GP and they told me to stop using cream, that is highly possible that the cream was causing these reaction. I stopped using Soolantra and I’m on antibiotics now. I was prescribed Metrogel last month. Although my face looked a lot better I had to stop using it as I couldn’t get out when sun was out.I was wearing Spf 50+ but my face was burning and I need to be out with my son.My face looks a lot better now, no pimples only redness although it tends to be dry and itchy around chin where was pilling off. I don’t know what to do. Maybe someone can help?

    • Carrie says:

      Your face has to get really really bad on Soolantra before it gets better.

      Most people get very red and bumpy for days. This is the mites dying off.

      I looked like a monster, but you have to let the whole cycle finish or you will never get better.

      Go back to some comments that I and others made on this page from 2015 and 2016. Everyone explains the process they went through.

      • Discouraged says:

        Its not that bad for people that get bad for 1-2 weeks and then clear up.. i’ve been bad for 7 weeks now so i don’t even know if it works for me or not. I had 3-4 really REALLY bad flare ups that looked like a die off, but for god’s sake, why am i not clear yet after 7 weeks?

        Sometimes i will get betted days with no new p&p and old ones flattening, but this never last more than 2-3 days in a row. They always come back!!! Me too i got worse after i had my son. I was actually clear for about 3 months before, by wiping my face with apple cider vinegar. 3 weeks after birth it suddenly stopped working and p&p came back full force! I think mites proliferated while my immune system was down after i gave birth and didnt sleep for a few days.. and they got out of control! If i really DO have then… not sure anymore because the lack of lasting results with soolantra.

  9. Shagalov says:

    Thanks for the post. and thanks for the comments. Helpful.

  10. David Pascoe says:

    Comment via email.

    “Thanks for all the information you have provided over the years. I’m 64 and have had rosacea since I was in my mid 20’s. I have suffered mainly from pustules and postules. I live in South Florida where the climate is not good for rosacea sufferers. Three years ago, though, I went through a blue light treatment and I started using ivermectin cream by Soolantra. This has had a major impact on my rosacea. I would recommend these things for anyone who suffers from the pustules and postules. I’m hoping someday for a total cure from this dreaded disease but I doubt it will happen in my lifetime. Young folks may live to see it though.”

  11. lilahamptonstores says:

    Doxycycline is a life saver. It means I need to stay on an antibiotic for a while, but I don’t notice any side effects from it during the 6 months. I got big red bumps after a few weeks on ivermectin cream. Doxycycline made them disappear within a week. Now that my skin is much improved from the combination of ivermectin and doxy – much less flushing, burning, inflammation and swelling!

  12. claire says:

    I started getting bad skin suddenly at 48 it was on my jaw line at first then all over my face. went to my GP who said it was hormonal and to ride it out REALLY that was his help, it got so bad I was using my teenage son acne cream and bought everything you name it I tried it. Nothing worked I was getting very low as the spots was so angry and makeup just would not hide them at times. Four months went past was put on acne treatment by a different GP that did not work either was at my wits end, so my partner paid for me to go to private skin clinic as I was getting him down going on about it. Well so worth every penny I spent …. this doctor said I had rosache NOT ACNE NOT HORMONAL it was a relief to get answers .. he put me on soolantra which took awhile for chemist to get hold of and WOW what a difference my skin is amazing after only two weeks I could have cried tears of joy this wonder cream is worth its weight in gold its give me my life back and I can smile again.

  13. David Pascoe says:

    Comment from facebook.

    “Soolantra works wonders! After stage 3 with jaw pain and inflammation and deep pustules I’m now completely clear. No makeup needed and skin soft as baby’s bottom. Started mid June and first week it looked horrible but then cleared up and has been clear since!! Best cream available!”

  14. Discouraged says:

    Argh I don’t know what to do… did someone get results after a longer period of time with soolantra? I completed 7 weeks today and STILL get flare ups.. since the beginning i got 3-4 TERRIBLE flare ups (worst of my life, last one 2 weeks ago) and now i may get some “better” days but never more than 2-3 in a row..

    Everytime i think it’s starting to help, papules & pustules come back.. forehead, nose and chin are clear p&p wise, but my cheeks are still a disaster. P&p, background redness left by the huge flares I got on soolantra, and the most stubborn areas have little flakes and weird texture if i look upclose.. so makeup is out of the question.

    I refuse to get out the house because i feel so ugly! Please tell me someone finally had success at 8+ weeks.. i am starting to have dark thoughts. Oh and i cannot take antibiotics right now. Not that if would work anyway.. I tried finacea before but it didn’t work at all. And i eat clean and anti inflammatory foods every day!

    I am pretty sure my problem is demodex, because it started as one small patch on a cheek, then a few weeks later a patch on the other cheek, and the left one has always been worse. It is asymetrical (and now spreading since a few weeks after i had my son in april). Left side is now from temple to jaw.

    I cannot give a normal life to my son by staying confined in the house and depressed. Please tell me there is still a chance that soolantra will finally work 🙁 i really need HOPE as i cry all day and am not able to have quality time with my son and this completely destroys me :'( i cannot take it much longer

    • Mindy Mazer Nedwick says:

      I’m so sorry you are going through this. If it’s Demodex you should continue to treat as for some people it could take more like 12 to 16 weeks. Have u taken a course of ivermectin orally as well? Obviously if you are nursing you can’t do that. Also if you just had a baby some of this could be hormonal as well. Have you seen a dermatologist? Treat the Demodex twice a day morning and night with soolantra. I personally like the cerave gentle moisturizing wash. That’s all I use on my face. Also I use mineral makeup without a lot of oils. Change your pajama top every other day and flip your pillows over every night and switch pillows every two days so put the one you slept on under the new pillow. Keep hair off your face when you sleep. It will get better. I know how depressing it could be but it will get under control. At some point if you feel it isn’t enough you can try the oral ivermectin and also there are lasers that can zap these guys according to my derm. He only suggests that for cases that aren’t as responsive. Sometimes he suggests antibiotics with it as well. Do not give up or get despondent. It will turn around.

      • Discouraged says:

        Thanks for the reply, i was thinking of trying oral ivermectin for horses, but it will have to wait because i am getting surgery in october so i prefer not to ingest medication around that time. At first i thought it was hormones so i started birth control in june but it changed nothing.

        I really need soolantra to work as my maternity leave ends in a few months and i will be left with no income if i don’t go back to work. But i CANNOT work in customer service with the face i have now.. this is ruining my life in the moment that is supposed to be the best of my life! I sure hope it will start to help sometime soon because i’m scared my surgery will make it worse with the general anesthesia and all!

        • Discouraged says:

          I forgot to mention i wash pillows every week in hot water with a bit of bleach, and i wash pillow cases every day. I also sleep on my back and keep my hair out of my face at all times. I also never touch my face, just for washing and applying soolantra.

        • Mindy Mazer Nedwick says:

          I live in the USA and they use ivermectin for people as well as animals. Keep using the soolantra. It will slowly go away. And find a good derm you trust.

          • Discouraged says:

            I’m in Canada and with “free” healthcare there is at least a year(s) long wait to be able to see a derm. I got finacea and soolantra by my GP but he would not prescribe me ivermectin tablet. Maybe i’ll be willing to try antibiotics a few weeks after my surgery but antibiotics give me yeast infections and are not ideal for gut health. I am trying to “repair” my gut right now after years of junk food eating. I dont want to fix a problem by creating other problems 🙁

            I already tried soolantra twice a day but it changed nothing except my face got oily faster with the cream on!

    • Solmyr says:

      Hello,
      Keep fighting ! Soolantra isn’t miraculous for some of us, by far ; some people’s skin can’t handle it the way it’s supposed to. I personally keep using it this way : 1 month full, then only something like twice a week. It provides a bit of results, but if I try to endlessly use it everyday, then it can become a disaster.
      As soon as you can (sun wise speaking) start your oral antibiotics, which work well combined with Soolantra.
      Keep morale, think to your little baby, remember that after a disasterous period of time, then always comes a much better one !
      Regards.

      • Discouraged says:

        Thanks for the support, really appreciated! As for antibiotics, the sun would not be a problem as i rarely go out lol but if my skin gets better i will be able to live a normal life! I might try it in 2 months or so, if i have no results by then (which i hope will not happen)!

        • Solmyr says:

          I don’t know what is the overall meteorology where you live in Canada, but, if it’s not particularly sunny and/or if stay inside, you could start it right now in order to feel better. Looks to be quite appropriate in your actual situation.
          Another thing that I could tell you, after about 20 years of rosacea, is that the less you charge your skin with multiple treatments, various attempts, etc, the better. Try to slowly find where is the good compromise for your skin/situation.

          • Discouraged says:

            I can’t start now because i am getting surgery in less than 3 weeks and am not allowed to take any medication 10 weeks prior. But in several weeks i might consider! I will already have many medication to take after the surgery. Anti inflammatory, hydromorphone, anti nausea and one i forgot

    • Carrie says:

      You mentioned going out in the sun, but DON’T do that if you are using the Soolantra. My derm said that is a VERY bad idea, just like with all acne meds. You can have a bad reaction.

      My face still had several bumps all over, I wasn’t totally clear for at least 2 to 3 months.

      • Discouraged says:

        I stay completely away from the sun! Did you get new p&p until 2-3 months or it was the old ones taking their time to dissapear? Because I still get some new ones daily even after 7 weeks. Sometimes I don’t get new ones but never more than 2-3 days in a row!

      • Coy says:

        Carrie, I just wanted to thank you for taking the time to post about your experience with Soolantra. In 11/16 my derm gave me a small sample of Soolantra to try and never said a word about what might happen, like you and others that have posted my face exploded! In a panic I searched the web frantically and found this support group. For the first few days I kept reading your post over and over to reassure myself to stick with it. Well I’m so glad I did because while not perfect my face is exponentially better than it has been in 20 years! So thanks to you and all that have posted.

        • Carrie says:

          You are welcome. The same thing happened to me. Luckily, I found someone who had posted on here that said…just keep going. I really didn’t want to, I cried, but I did it anyway. Best decision ever.

          Go back a page. I think my first comment on here was April 21st, 2016. You can search my name, I think I am the only one who posts using “Carrie”. I have posted many times on here since then- discussing the journey and how most people still need the V beam laser even with Soolantra. I go into a lot of detail in some of the posts.

          My journey was rough, but once the p and p cleared and then I got the laser, I began to look like a totally new person. My skin is totally clear of bumps and almost all redness, some days I’m so pale I probably need blush. My skin texture is very soft now too. I started Soolantra around June 2015. I don’t use it every day anymore, (just sometimes- because I stopped my birth control pills and that makes your face really oily and putting soolantra on was making that worse), but I still change my pillowcase every other day, same with my pajama top.

          Good luck.

          • Gary Dean says:

            Hi Carrie, what sort of laser treatment did you have please, I have been on Soolantra for about a year and have seen some improvement, mainly in the time to reduce the P & P. But would like to try laser to see if would help. Kind Regards Gary Dean UK

          • Carrie says:

            Hello Gary Dean

            I got the V Beam.

            I have had it 4 or 5 times. The laser is what made the drastic difference. Soolantra just gets rid of the bumps, but you will still have the redness because of the vessels being so close to the surface. The laser kills those vessels, sometimes they grow back in certain people so you may need a treatment once a year or less. It’s around $350 each time here in the US. Totally worth it though.

            Just make sure you go to a licensed Doctor- not a clinic. People can burn really easily if the laser is up too high. That’s why you see people with purple dots all over their faces online. That’s not good.

            It is pretty painful and you will be swollen and red for a few days, but it goes away. When you see the results, you will keep going back even though it’s painful.

            Good luck!

          • Brad says:

            Hi Carrie, I have bad rosacea pp and oily skin, have for years. I’m thinking about Soolantra to try. You mentioned you had oily skin at one stage and didn’t use the cream because of this. Do you recommend using this cream with oily skin?

          • Carrie says:

            Brad

            I have been oily all my life. It went crazy when I stopped my birth control pills at age 34. I got acne and i was oily like a teenager while my body balanced out for about 6 months or so. I stopped using the Soolantra at that time because it was making me extra oily. I had been on it 2 years. At that time I noticed that being off of it I was not getting papules again so I have tapered way back to maybe once a month. I still change my pillow case every other day and pajama top often.

  15. Anniie says:

    I was diagnosed with Rosacea and was prescribed Soolantra about 3 weeks ago and after initial skin reaction (my skin felt dry like sand paper and it burned a bit) my skin started to get better, the papules and pustules were getting smaller and my face was less red until a few days ago when my skin got worse and I started doubt the effectiveness of the cream and in return started thinking of oral antibiotic prescription… Well I’m so glad I didn’t give up on the cream immediately but decided to google and glad I found discussions here about a possible outbreak on week 3. As now it seems that my outbreak I had on the weekend, is calming down and my skin is healing again but as it is a 3 month course I have to be super patient with the process. I’m hoping the major problems will heal now, as they are my main concern. Otherwise I can live with the redness. 🙂

    • Anniie says:

      I’d like to update on my 4th week now and my skin is little bit better but I still get occasionally break outs (think it is because of chocolate) and I get a little dry red spot from dairy or mixed of nuts also. Anyone else experiencing this? Should I start oral antibiotics if my skin does not improve more or should I just be patient?

      • Stuart says:

        Judge it after 12 weeks. You will get breakouts up until then. Better to take anti biotics for 1st 9 weeks to minimize any breakouts caused by die off.

        • Anniie says:

          Thanks very much for the tip! I’m so grateful for this web site as I’m quite alone with this. My doctor only said that I should take the oral antibiotics if no improvement after 4 weeks…

          • Stuart says:

            In my experience you have to push the doctors a bit. Some of them don’t know alot about rosacea and it’s treatments. Only now is it being recognized that mites are involved in some forms. When I got prescribed so plant r a I told my g.p. what I wanted to try and I explained I needed antibiotics to fight the early die off .she was very helpful and Gave me both. The antibiotics was a great help in early stages and it would have been slot worse without them. I continued on them for 1st 9 weeks . I still had breakouts with the die out stages but I just know my skin would have looked slot worse without. I’ve been using soolantra for a year now because I just don’t want to risk it. 1 tube lasts months so my g.p. happy to prescribe . My rosaceas is at least 90. % better. As we know with today’s it never completely goes miraculously but soolantra as been a god send.

          • Annie says:

            My 6th week is going on now. My skin has improved significantly. I know I might experience another break out before 12 weeks is over. Soolantra is definitely a great product. I am happy that my doctor prescribed it as it is fairly new medicine cream over here in Finland. I’m also so grateful for this discussion forum as if it wasn’t for you guys, I would have given up on the cream when my skin got worse during week 3-4.

  16. Jean Wilkins says:

    I am 68 & have had perfect skin my whole life with people commenting on my beautiful complexion. After coming back from 3 weeks walking in the mountains, I went out on a 95 degree day to play tennis from 10-12. When I returned my face was red which has been quite normal for me when I sweat or exercise heavily. However, this time after an hour, my face exploded. What a sight. Docs here don’t work on Fri. pm nor are they on call, & I wasn’t going to urgent care which hasn’t a clue. I went online & read everything I could find for 20 hrs., learning I have rosacea…I bought OTC rosacea cream with no change. I called my dermatologist as soon as they were open & luckily got an appt. Mon. p.m. She confirmed rosacea & started me on an aggressive program. 200 mg. of doxycycline twice a day & Soolantra twice a day. The doxy was to be taken with food, unlike its instructions. After a week, I looked pretty normal. All the papules on my cheeks were gone & just a flushed face. A follow up appointment 6.5 wks later & I was taken off the doxy. & told to restart it if I had a flare. I am now using Soolantra once a day, unless I see something suspicious. I cannot imagine dealing with this before Soolantra was available in the States….Unfortunately, I am on Medicare & the cost of a 30 gm. tube is abt. $730. Outrageous. Apparently it is available to the younger set with insurance at a reasonable cost.
    As soon as I read all the info, like others here, I washed everything on my bed & my pj’s every day for 6 weeks. I am now down to every 3 days. I bought all new cosmetics, although I never used foundations, but I did use a lot of mascara, eyeliner, shadow. ( Consequently the dermodex?) I now use non-oils & mineral powders when I go out & immediately remove every trace as soon as I get home. I found SPFRX ultra clear daily skin hydrator with spf 50 to be very calming even when not going outside; I use Neutrogena Sheer Zinc Face sunscreen when I am in the sun, playing tennis, biking, swimming, etc.; Cerave facial moisturizing lotion; SkinCeuticals physical fusion UV defense which is tinted & dulls the flush; and I wash my face twice a day with Cetaphil foaming face wash. These products have not aggravated my facial skin to date.
    I am still shocked that I never knew I had rosacea until this explosion so late in life & feel really badly for all you young people who are dealing with it long term. I hope this helps someone in some way.

  17. Charles says:

    I’m a 71 year old male who has suffered acne since age 14. Over the past 30 years, it’s been mainly on my face, particularly nose and chin. My dermatologist prescribed Finacia about three years ago. It worked well to heal the p&p but did nothing to prevent reoccurance. He gave me small dosage of tetracycline with the Finacia but it only gave me a stomach ache. On Septeber 28th of this year, he gave me Ivermectin 3mg tablets with instructions to take 6 now and another 6 after one month. He also gave me prescription for Soolantra of which I apply once daily. After about 10 days, I noticed remarkable improvement. After three weeks, a few papules appreared but are now rapidly disappearing. After reading everything I can find about demodex, I think I may finally have a cure. Soolantra is very expensive and my insurance will not cover it. The manufacturer offers discount coupons but told me they are not valid for medicare patients. I’m stuck with the high price, but after all these years, I feel good about my face.

  18. Vladimir says:

    Guys, all who have rosacea! Check Chang Shenp Soap on Amazon.

  19. David Pascoe says:

    Comment via facebook.

    “Cure=Soolantra: Struggled terribly for 4 years. Looked like I had been in a fire during some of my worst outbreaks. Antibiotics didn’t work. Diet helped but not majorly. The prescribed topicals didn’t work. It was terrible. I was prescribed Soolantra and my rosacea was gone, completely gone, within a week. Over one year later it has not returned. I am just a person sharing info. Try it now!”

  20. David Pascoe says:

    Comment via facebook.

    “I’ve been using Soolantra for over a month, and I cannot see any improvement whatsoever. I wish it had worked for me. “

  21. Charles Wagner says:

    I started using Soolantra on September 28, 2017 and as of today, I am 98% clear. During the first 4-6 weeks, there were flare ups, one at the end of week 3 was particularly bad. But now, it’s almost completely gone. The occasional “bump” that I get now is small and inconsequential. I use twice/day. I flip my pillow every day and change the case every third day. After over 30 years of suffering, I am now clear. I have many scars on my nose and chin and may seek some kind of restoration if possible. Stick to the regime. Don’t give up.

  22. Annie says:

    I think I’m on my 11th or 12th week of Soolantra (lost count 🙁 ) and although my skin is better, I still have flare ups last one this weekend and so my rosacea hasn’t really gone away. I still have bumps and redness and my skin goes through good and bad days.

    I have gotten down dairy and and try to be gluten free and that has helped a lot but then other things trigger my flare ups also. I have noticed especially strong alcohol and red wine are especially bad and this is of course annoying as it is the party season now and I cant really avoid this entirely… Also changing of weather conditions chilly, windy, cold weather, makes my skin irritated and I have gotten dry red patches on my skin.

    So I will continue using Soolantra for another week or so and then next I will try the antibiotics; tetracycline. I really had high hopes but well at least my skin has improved and I can always purchase another tube of Soolantra if my skin goes completely crazy.

    • Carrie says:

      Don’t stop Soolantra- your cycles might be longer and it will just take more time to kill the mites. Stick with the program. Change your pillow case and pajama top at least every over day and keep using the cream. It takes months to be a 100% clear.

      You will always have redness unless you get a V Beam laser. Soolantra is only killing the bugs and that only gets rid of the bumps- the pustules and papules. The majority of the redness comes from vessels below. Those can only be “killed” with a laser. The redness you get from alcohol is the blood rushing through those vessels. That’s why they have to minimized. I was the same way. I would have half a glass of wine and you would have thought I had 2 bottles. The cold weather also used to make mine irritated, same with the sun. My derm said it’s a 2 way process and most people don’t know that.

      Stay on it longer than another week.
      If you really and truly have rosacea- you NEED Soolantra to kill the mites.
      You can take antibiotics for the rest of your life and you will never get better. You HAVE to have ivermectin to kill the mites.

      Check with your derm doctor, or go see a new one for a 2nd opinion. Maybe you have some eczema also and that’s causing extra dry patches.

      Keep going- it can take months and months to clear up all the way.

      • Annie says:

        I don’t know what I would do without your support! I hope everyone suffering from rosacea discovers this support group. 🙂

        Thanks so much for the tip. My prescription for Soolantra does includes multiple tubes of Soolantra and I’m actually on my 2nd one. I will continue using it then. I am also planning on going under the laser and it is good to know what laser treatment works.

        As you said I do suffer from atopic skin condition or I guess the English word is eczema. I have always had a sensitive skin and when I was a kid I had dry red patches on my cheeks which suddenly just disappeared when I got older. Then I had great skin for years and especially it got really smooth and clear when I was on birth control pill for almost 10 years but after I stopped taking the pill a few years ago, my skin slowly got worse. I started getting hormonal acne and then my skin got really bad last spring and although rosacea is not exactly something you wish for, it was a relief to find out why my skin was acting crazy. So on top of having eczema and hormonal acne I also have rosacea (I’m 38) and I only now dream of having clear skin one day as taking care of my skin has become more and more important to me now that my 40’s are approaching. I used to go around without makeup and now I’m so embarrassed I always wear make up if I go outside.:(

        By the way, I have now googled Alpha H Rose liquid solution which suppose to maintain youthful look of the skin, suppose to brighten and smooth fine lines and acne scars so I’m wondering would that be ok for my skin? It seem to suit some rosacea sufferers according to some blogs but what is the general opinion?

    • Patrick says:

      Annie. As an original test patient for the Soolantra compound, I have likely been using the drug for longer than anyone else. Over a decade and nothing I have ever used worked as well as this compound. But still it’s not always enough. I supplement flair-ups with both tetracycline and a sulfur based cream. (Prosacea) For me at least, this combination works well to get seasonal flare-ups under control. Good-luck.

  23. Emi says:

    Been on soolantra for 5+ weeks now. Many more p&ps that just seem popping up ever since I started… never really had the impression it was improving. Die-off or just not the cream for me? anyone has experienced worsening for so long before it got better? would appreciate your experience. thanks.

    • Charles says:

      At first, mine started clearing up fine and then about 3 weeks in, it got real bad. But by the fifth week, it started going away very nicely and now I’m over three months in and it’s 98% gone. I have been getting bumps on the back of my next into the lower hairline recently. I flip my pillow every day and change the case every other day.

  24. Charles says:

    I had a bad breakout during my third week, but by the end of the fifth week it started clearing up nicely. I have been using it now for a little over three months and I’m 98% clear. I get a few bumps on the back of my neck and up into the hairline. I flip my pillow every night and change the pillow case every other day. Soolantra definitively gets the credit for my improved face.

    • Annie says:

      I had a few break outs during week 4-5, 6 and 8-9 and it really also depends on my diet and with all the Christmas parties I’ve had break outs from red wine and strong alcohol. To me soolantra has improved my skin but thanks to friendly advises here to stick with Soolantra for longer than 12 weeks I’m on my 2nd tube and still apply it every night. I have noticed that the most break outs (also due to hormonal acne) I get are from chocolate, dairy, a lot of wheat products (I try to stay glutein free or only eat 100 % oat bread), stress, alcohol and rubbing my face on cat fur…Also some makeup foundations cause me irritation although I hadn’t had that before. I’ve tried mineral makeup which is fine but it is also aging a bit especially in the winter time so I’m back at using foundations. Giorgio Armani Luminious Silk so far seems lovely.

      My skin goes through bad days and good days but I’m sticking with the Soolantra and I bet if I could leave chocolate out of my diet completely (this is something I cannot leave without so I try to eat moderately and also eat vegan chocolate), my skin would be much clearer now…:D

      Hang in there, I think it will take a long time but eventually I would say it is worth it. 🙂

    • Annie says:

      Something has happened to my skin now. I was on Soolantra for the 12 weeks or so but then I got an influenza and since my soolantra tube was gone, I stopped using it. My skin was incredible during my influenza, it glowed, had hardly any redness and was it was in such good condition that I was amazed. But as soon as the fever was gone, my skin was getting back into it’s normal stage; redness and some bumps and pimples. However already during my influenza I stopped drinking coffee and I now only drink it on weekends and also have started using the AlphaH Rose liquid gold on every other night and although I still eat chocolate my skin has dramatically improved. I don’t know what it is. Combination of Soolantra, my diet change and healthy lifestyle (no consuming of large amount of alcohol either) but my skin is much calmer, redness is almost gone and although I get pimples and bumps from chocolate, the AlphaH helps to diminish the break outs quickly within a day or two and also improves the texture on my skin. My colleague said that perhaps I have had a sensitive liver and now as the toxins are out, my skin also glows. Whatever it is I’m grateful. 🙂 I am still mostly on dairy free and gluten free diet but since I can’t always avoid them and I occasionally eat milk chocolate, I cannot say it is only because of this although I do notice that when I do eat cheese for instance, I quickly get a red patch on my upper cheek.
      I use Clinique take the day off and mild cleansing soap as well as Clinique 1.0 toner followed by Clinique Super defense night cream as my night routine and Dermalogica Ultra calming mist and Dermalogica Skin smoothing cream mixed with Super sensitive shield as for my day cream. I also use AlphaH Liquid gold Rose on every other night and no night cream. It is freezing cold weather (below zero) over here so usually my skin gets dry but I it is not dry at all now, instead my skin is glowy and moisturised.

      Any comments?

  25. Mindy Mazer Nedwick says:

    That’s amazing. Who makes the rise gold?

  26. Angie Prentice says:

    I have been using Soolantra since January 2018, two weeks after starting, I had a huge flareup, and felt it wasn’t doing much, but decided to keep going, 2 months in and skin is a lot better, I still get the odd pustule/bump. In February I also started using Milk Kefir, and am now making my own, as it can be expensive to buy, as I have read that skin problems start in the gut, but need to drink it for at least three months minimum. I had been clear of Rosacea for at least 10 years, I do not know why it flared up again, stress, eating rubbish, I don’t know, but hate it as it makes me feel ugly, so was prepared to try this new product, I’m glad it has helped.

  27. Stuart says:

    Has anyone ttappered off soolantra? I use it once a week now after using it for 2 years. Been using it once a week for about 7 weeks. Just wondering if anyone else has done this. I won’t stop using it completely but bum still paranoid I’m going to get progressively worse again. I bound to have killed most mites in the period I was using daily but anyone think once a week is sufficient maintainence? I know I can still use daily but my pores are easily blocked .

    • Charles says:

      I have been using Soolantra for five months and am completely satisfied with the results. However, if I become “sloth” and forget even one day, I have breakouts. I cannot imagine going a week without use. I fear I would revert to pre-Soolantra days.

    • Annie says:

      I was using Soolantra for about 5 months and then stopped using it. I’m thinking of going back to it again though as only thing now that calms down the bumps is Alpha H Liquid Gold Rose Facial Toner. But I think I will purchase another tube of Soolantra again and go back to it especially now the spring and summer is coming, my skin can go absolutely mental with all the changes in weather and so on….

    • Carrie says:

      I used it for almost 2 years straight. This last year barely at all. Just a few times. The only reason I cut back was because I stopped my birth control pills which made me really oily then and using the cream made that worse. Then I noticed that while off of it I wasn’t getting the papules so I continued to cut back.

      I am getting a v beam laser today. Haven’t had one since June 30 2016. I’m overdue. My doctor said see how long you can go before being red again and I think this is a few months too long.

  28. karen says:

    Hi. Can anyone tell me the right way to use this cream? Should apply Soolantra ALL over my face, or should I apply this ONLY on the problematic area(where I have bumps)?
    I have been applying this only on the problematic area for 8 weeks now, and I had a very bad breakout from the beginning, cleared up after 4-5 weeks, and I am having a breakout AGAIN!
    I don’t know whether I am using this cream wrong, or several breakout can happen until 12 weeks although I am using this right.

    • Carrie says:

      Your whole face. Keep using it all over. It takes a while to totally go away.

      • karen says:

        Thank you for your answer, Carrie! I wish I knew this before using Soolantra.
        May I ask one more question?
        Before using this for 12 full weeks, after having one breakout and having been cleared up since, can I have more breakouts? It was really frustrating having the breakout Again…(I am on 9 week cycle)

        • Carrie says:

          Idk. I used it for a couple of years every day. I had a major breakout around days 4 to 7 and I looked like a monster. Then it gradually cleared up. I now use it just once a month, but still change my pillow case and pajama top every other day. Other people said they had several breakouts. I used quite a bit of the medicine and used it EVERY day, all over, so I think I killed them off really well in the beginning. But it was a nasty nasty breakout.

    • Chris says:

      Hi Karen, I had the same thing happen to me. The breakouts would come and go every month or two. Eventually I gave up on the anti-mite approach. (I never actually used Soolantra. I was using Lyclear, another anti-mite cream, but it should be similar). It might be worth sticking with the Soolantra for another month or two to see if you get another breakout, but if it comes back, it could mean Soolantra isn’t for you.

      However, there are other things you can try:
      – Doxycycline pills – 200mg/day of these antibiotics to clear up your breakout and then maybe 100/mg day for few months afterward
      – Vbeam or IPL. It’s expensive and it may not fix everything, but it’s almost guaranteed to offer some improvement. And they’re anti-aging treatments as well. Everyone with rosacea could stand to get a few of these. IPL helped my skin somewhat, and I’ll get more again this year. (As Carrie suggests, Vbeam is more effective, but it’s insanely expensive where I live. IPL is more gentle – I go on my lunch break and then go right back to work – with a bit of powder makeup).
      – Elidel – This cream is intended for eczema, but it’s used off-label for rosacea. Rosacea is probably linked with an overactive immune system. It’s paranoid and sees threats that aren’t there, so it overwhelms your skin with cytokines that cause inflammation. Elidel reduces the immune system’s cytokine response, and studies have shown that it can help with rosacea. I’ve just been on it for a few days now, so it’s too early for me to say, but will report back if I see good results. Does anyone else have any experience with this? (There have been reports of people on Elidel getting cancer. Yes, it sounds scary, but before rejecting this option out of hand, it’s worth googling the studies. There were only a few cases out of thousands of people taking it over the course of a decade – no higher than the background rate. And it wasn’t one particular type of cancer. Further research concluded that there was no causal link.)
      – Retin A – While overusing this can cause redness, if you use it lightly – starting out once a week at the weakest concentration (0.025%), and working your way up to twice a week at normal concentration (0.05%) – it can improve your skin’s health and reduce sebum production, without causing redness. Less sebum and blocked pores could be expected to reduce skin mites – rather than eliminating them altogether. Most people with healthy skin have skin mites; they just have a normal amount of them. I believe that the mites are part of one’s skin’s ecosystem. They’re munching oils and dead skin. By wiping them out, you can disrupt your skin’s balance and cause breakouts (I believe my recurring breakouts on anti-mite cream were from disrupted skin balance rather than just mite die-off, which would have stopped eventually). Retin A is not a rosacea treatment; it just improves the health of your skin, which is always good. I find that it has improved my skin texture.
      – Vitamin C serum. I use one called Obagi. The Skinceuticals one is supposed to be equally good (not all vitamin C serums are formulated properly to be absorbed). It helps protect your skin from oxidants that can cause inflammation. If you use Retin A, it’s good to pair it with a vitamin C serum. It’s expensive, but a little goes a long way – I use 1 drop each time, once or twice per day.
      – Washing your skin with micellar water instead of face cleanser, some of the time. Cleansers can strip away your skin’s lipid layer, making your skin more susceptible to irritants in your environment. Dabbing with micellar water on a cotton cleaning pad can clean your skin more gently. Then splash water on your face afterward to rinse. I use micellar water most times for washing, and only use a regular face cleanser a few times a week for a thorough cleansing.
      – Foreo Luna Play Plus – this vibrating cleaning device gently exfoliates and cleans your pores. There’s a few versions – the cheapest one is $50 and it’s just as good. Clarisonic is another option, but I find the Foreo Luna more gentle. I use mine once a week, with a face cleanser (La Roche Posay Effaclar). Most of us need some kind of exfoliation, but over-exfoliating is worse than not exfoliating at all. For me, this provides the right balance.
      – Metronidazole gel or Finacea – I tried both of these at various times. They did nothing for me. Clearly they work for some people.
      —— Just my 92 cents. Thanks for reading! ——

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