Rosacea Phenotype Report Card – track with your doctor

 

pexels-photo-935869

So you have heard something about the new phenotype approach to treating roscea. Doctors are hoping that this new approach will lead to better treatment outcomes for all rosacea sufferers.

Find out what here you need to know about rosacea phenotypes, and also how you can use a simple report card to work together with your doctor to beat rosacea.

Rosacea phenotypes are happening now

The way we have been talking about rosacea and treating the symptoms is going through an official transformation. The transformation is official because it is being driven by the doctors who treat rosacea, and are updating the accepted rosacea describing methodology that was introduced in 2002.

Using this new approach when describing rosacea is said to lead to improved care for rosacea patients. What is this new approach and how can you benefit from using it?

What is a rosacea phenotype?

This transformation is all about emphasising referring to the `phenotypes’ of rosacea, no longer refering to rosacea subtypes. So rosacea subtypes are dead, long live rosacea phenotypes.

This paper is suggesting the improvements in treating rosacea will result from this new way of describing the condition we know as rosacea. Accurately documenting the type and severity of your rosacea symptoms is what the phenotype approach is all about.

Your Doctor is your friend

By way of supporting this suggestion the authors have offered a checklist that you can use with your doctor to describe and track the severity of your rosacea symptoms. The checklist describes the rosacea phenotypes under the following categories;

Diagnostic Features

  • Persistent centrofacial erythema
  • Phyma – inflammatory
  • Phyma – non-inflammatory

Major Features

  • Transient centrofacial erythema
  • Inflammatory papules/pustules
  • Telangiectasia
  • Ocular manifestations

Minor Features

  • Burning/stinging sensation
  • Oedema
  • Dry sensation/appearance
  • Other

Severity Scale

Each of the symptoms are graded on a range of 0-4:

  • 0. Clear/none
  • 1. Almost clear/minimal
  • 2. Mild
  • 3. Moderate
  • 4. Severe

As you visit your doctor you can document the progress of your symptoms over time using a shared understanding of how to describe rosacea.

Download your Rosacea Report Card

Thanks to the authors of this paper you can download a copy of the report card here – Rosacea-Phenotypes-Checklist [PDF] print it out and keep it with you in the coming months and years.

Article Abstract

Applying the phenotype approach for rosacea to practice and research

Br J Dermatol. 2018 May 25., J. Tan, M. Berg, R.L. Gallo, J.Q. Del Rosso

Background: Rosacea diagnosis and classification have evolved since the 2002 National Rosacea Society (NRS) expert panel subtype approach. Several working groups are now aligned to a more patient‐centric phenotype approach, based on an individual’s presenting signs and symptoms.

However, subtyping is still commonplace across the field and an integrated approach is required to ensure widespread progression to the phenotype approach.

Objectives: To provide practical recommendations that facilitate adoption of a phenotype approach across the rosacea field.

Results: Through a review of the literature and consolidation of rosacea expert experience, we identify challenges to implementing a phenotype approach in rosacea and offer practical recommendations to overcome them across clinical practice, interventional research, epidemiological research and basic science.

Conclusions: These practical recommendations are intended to indicate the next steps in the progression from subtyping to a phenotyping approach in rosacea, with the goals of improving our understanding of the disease, facilitating treatment developments, and ultimately improving care for patients with rosacea.

Related Articles

About the Author

About the Author: David Pascoe started the Rosacea Support Group in October 1998. .

Follow Rosacea Support

Subscribe via RSS Feed Connect on Pinterest Connect on Google Plus

Leave your comment here

Top

Subscribe to Rosacea News

Enter your email address to receive the latest news about rosacea in your inbox.