How Much Would You Pay to Cure Your Rosacea?

Written by on May 17, 2012 in Mental Health, Rosacea Cure with 13 Comments

Despite the benign title of this paper – Willingness to pay and quality of life with rosacea, there is something interesting going on here. What could be gained by asking rosacea sufferers how much they’d pay for a cure?

Researchers have come up with the idea of quantifying the burden one feels from a disease by asking sufferers how much they would be will to spend to achieve complete clearance of all symptoms. Apparently this sort of quantification measure is a well established method to assess burden.

Rosacea sufferers were found to be willing to pay on average € 2,880 or $USD 3,700 to obtain total relief. The worse that rosacea sufferers deemed their quality of life, they more they would be willing to pay.

Vitiligo sufferers on the other hand were found to be willing to spend even more – € 7,360 or $USD 9,400.

Surprising Result?

The suggestion that vitiligo sufferers would be willing to pay 3 times as much as rosacea sufferers to achieve a cure surprised me.

Whilst vitiligo is no doubt unsightly in the worst cases, rosacea is equally, if not harder to handle psychologically. Also some forms of rosacea, for example neurogenic rosacea can be quite debilitating preventing you from many normal life activities.

How much would you pay for a cure?

Get Your theoretical check book out. At your worst, what would you have been willing to expend to get rid of your rosacea? Leave your response below, and perhaps tell us why too.

Who knows perhaps we might be able to get ourselves noticed simply by quantifying the burden of rosacea in dollar terms.

Willingness to pay and quality of life in patients with rosacea.

J Eur Acad Dermatol Venereol. 2012 May 14, Beikert FC, Langenbruch AK, Radtke MA, Augustin M., IVDP – Institute for Health Services Research in Dermatology and Nursing, University Medical Center Hamburg, Germany.

Background: Rosacea is a chronic inflammatory dermatosis affecting >2% of the population. Willingness to pay (WTP) is a well established method which reflects the individual burden of disease.

Objectives: Evaluation of WTP and quality of life (QoL) in patients with rosacea.

Methods: Nationwide postal survey on adult patients with rosacea affiliated with the German rosacea patient advocacy group. WTP was evaluated by three standardized items and compared to historical data on vitiligo (n = 1023). QoL was assessed using the Dermatology Life Quality Index (DLQI).

Results: Data from n = 475 rosacea patients (79.9% women, mean age 56.3, range 26-90) were analysed. On average, patients were willing to pay € 2880 (median € 500) for complete healing compared with € 7360 (median € 3000) in vitiligo.

Relative WTP was higher in women; the highest sums were registered for the age group 21-30 years.

The extent of facial involvement predicted a higher relative WTP, whereas WTP decreased with the duration of symptoms and age.

Mean DLQI total score was 4.3 compared to 7.0 in vitiligo.

In rosacea, the highest values were observed in patients < 30 years. Severe QoL reductions (DLQI>10) were less frequent (11%) than in vitiligo (24.6%).

The correlation between WTP and DLQI was significant (e.g. r = 0.249, P = 0.000 for relative WTP).

Conclusion: Rosacea patients show a moderate WTP and average QoL reduction is mild. WTP proved to be a valid tool to assess patients’ burden of disease. Patient education and the development of effective treatment options might still improve patients’ satisfaction.

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Read more about: Mental Health, Rosacea Cure

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About the Author: David Pascoe started the Rosacea Support Group in October 1998. .

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13 Reader Comments

  1. Dan says:

    $10,000

  2. Erik Wright says:

    I’d be willing to spend probably around five grand to cure my Rosacea, anything more would require some serious though and consideration. I’m a 22 year old male.

    That Vitiligo sufferers would be willing to pay more does not surprise me. While rosacea is unsightly and uncomfortable, Vitiligo can feel like you are having your cultural identity stripped away from you.

  3. DaveM81 says:

    I would be willing to pay far, far in excess of those average figures for a guaranteed and permanent cure for my condition, such is the effect it has had on my life. I’d go as far as to say I’d remortgage my house if necessary.

  4. MsLux says:

    €10,000 to be able to have pale or olive coloured robust skin. Life is hard enough!

  5. Anita T. Monroe says:

    What would I pay? I have had this condition for almost fifty, that’s 50!
    years. It has blighted my life. I’d pay any amount, not just for me, but for others who could be spared this particular misery.

  6. alisha says:

    I would also mortgage my house…Just to have one day – one night without burning, stinging cheeks and eyes..it becomes such an emotional disease too. You can’t hide it..people stare, feel pity and ask what is wrong or if I am feeling ok..it starts to break you down..I agree with anita..I would do it for myself and if it worked..I would want to pay for others

  7. TC says:

    I agree with you guys, I would give everything I own to have a “normal” life.

  8. th_ says:

    i am 22 year old male i would consider my self typically good looking even some people 2 problem is when i get beat red i just wanna teleport to my house and hide under the pillows! i remember when i put a high amount of brimonidine firstly on my face after 30 min my face got 100% clear white i got so happy that 10-12 hours having 100%clear face and no flares that i think i would easily pay like 20000 euros i dont got that money but if some1 said to me come work for me for free 2 years and i will cure your rosacea forever i would definetely do it i believe the more years i pass with rosacea are like lost years..i dont say my life sucks but i would be so complete and happy if i could cure it

  9. Jennifer says:

    I agree with most that it has affected my life so much that I wouldn’t even begin to know how much I would pay to make it all go away and NEVER come back. It has been 25 years of embarrassment and being told that I can’t believe a doctor can’t fix that for you? Burning, stinging, irritation, redness, bumps and skin changes that look very unhealthy. For anyone that says they wouldn’t consider paying for a cure has not experienced a refractive form of the disease. You get to the point where medications stop working. And then what? I am so glad that I found this website because it has been such a help to me. Thank you!!

  10. David Pascoe says:

    From facebook post.

    “God I would pay so much bloody money it’s untrue. But I’d have to be assured a total cure. Plus it’s worth saying that rosacea comes in all shapes and forms. Mine is flushing only and it’s been an absolute clusterf*ck to my working and social life. “

  11. David Pascoe says:

    “The Cochrane Collaboration lists isotretinoin as one of the FEW things that are effective in rosacea-especiallly papulopustular.Private prescritions run at $USD 40 approx- all PP Rosacea sufferers should be on isotretinoin-tiny dose only needed”

    “Feels like I’ve spent a million dollars!!!!!! “

  12. David Pascoe says:

    “I cured mine with this groups help soolantra cured me from 4 years of terrible skin in less than 3 weeks”

  13. Ginny says:

    At this point, $10,000 easily but I would likely pay more knowing this could get worse.

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