Please help!

Have you just been diagnosed with rosacea ? This is the forum for you. You can walk out of the doctor's office with a head full of questions and feeling overwhelmed. Well settle in here and see that you head in the right direction to get some good relief from your symptoms.

Please help!

Postby jpappliance » Thu Jan 17, 2008 5:47 pm

This is my first post so bear with me. I have been diagnosed with rosacea for over ten years now. I am 28 years old. I have had rosacea like symptoms ever since I can remember. I have even looked back at pictures from the time I was a little boy and have always had red cheeks. I easily flush and I do so several times a day. My nose is also red. I have seen a few doctors, but have not been impressed with their knowledge or advise. Up until a year ago I did nothing to treat my roscea. I seemed to just deal with it. But it seemed that my redness began to worsen. I saw my doctor and she recommended laser treatment. I did one session of v-beam. The doctor told me to come back in a month for another session. It took my face almost a month to return to what it was pre-laser. Because of that I did not return for the next session. A few months passed until I sought out further help for the redness and flushing. I found a website for the rosacea institute of Texas. I spoke to a Dr. Neilson and he reffered me to Dr. Nase, rosacea speacialist. They recommended 7 laser treatments. I did these treatments in a 10 day time span begining on Oct. 28- Nov.7. I have seen 0 results and my face is still more red than before I began. My face also flushes more frequently and is extremely more sensitive. It seems as if almost everthing triggers it to become red. Does anyone know if this is a normal recovery time? Did I permanently make my rosacea worse. I have spoke with several doctors and each of them say that laser treatment should not worsen the condition. I spoke with both Dr. neilson and Nase and the both said that it may take more time. Dr. Nase also recommended more laser to go even deeper. Has anyone suffered similar problems? I am currently taking no medications. Someone suggested zenmed, which I have not tried. I would greatly appreciate any and all respones. Thank you very much for this forum. Justin.
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Re: Please help!

Postby Peter » Thu Jan 17, 2008 11:16 pm

Hello Justin

There have been a lot of bad reports coming out regarding this condensed treatment protocol you have just undertaken. From what I have been hearing it can do more harm than good, so in your position I certainly would not go back to this Clinic for further and even deeper laser work.

I am not sure what you were originally told to expect regarding your initial results but I can have a good guess and if you are not satisfied I would suggest putting a complaint into them in writing and asking for a refund. It would also help others who might be considering going there for treatment if you could post your experiences on the thread created on the Rosacea Forum but obviously it would mean joining. If you don't want to join then PM me the details and I'll ask someone to post them on your behalf.

http://forum.rosaceagroup.org/viewtopic.php?t=12293

My advice for the future would be to look out for a good dermatologist with a proven track record of treating rosacea. I assume you live in the US so there could be others on this Forum who could recommend someone near you. Lasers are not the only treatments out there for rosacea and there are safe drugs available which over a period of time can really help calm the flushing down that your are experiencing. First things first though and it's important to get some medical advice from a competent professional and beware of the "cowboys".

Where we can I'm sure we will all try and help you with advice but just remember be patient because treating rosacea can be very much trial and error until you find something that works for you.

All the best

Peter
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Re: Please help!

Postby David Pascoe » Fri Jan 18, 2008 1:08 am

Hi Justin,

Sorry to hear that your treatments don't appear to have helped you. Can you find a dermatologist close to you ? It can be tricky to find a doctor that has good experience with treating rosacea, but my feeling is that it is worthwhile. The support of a good derm is priceless. Sadly the support of a doctor who just wants to pay off their new car or just wants to shuffle you out the door is not so worthwhile. Finding out quickly which camp your prospective derm falls into is not easy, sadly.

Do you have a gentle skincare regime at the moment ?

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Re: Please help!

Postby melissaw » Fri Jan 18, 2008 7:44 pm

Hi Justin,

I'm sorry to hear of the ordeal you have been going through.
I agree with both Peter and David in that you should find a good derm near you and establish a relationship with him/her and begin a more conservative type of treatment.

I think you should treat your face very gently for now and not try a lot of new products and such. You had a lot of laser in a short time span so it does take time for your skin to heal from such a trauma to the system. I prefer waiting at least 10-12 weeks between my laser treatments as my skin cannot tolerate all that at once. It does take a few months to see results so don't despair. Perhaps you will see some improvement. But in any case, I would steer clear of the Neilsen clinic with that Dr. NotAllowed. If you read through all the pertinent threads you will see that he is bad news. I truly believe that clinic functions solely for the money and that they really don't care very much about the patients. If you don't see any improvement I would contact Neilsen and demand some money back at least. They make a lot of promises but when it comes to delivering there never is anything positive to report sadly.

Hang in there Justin as your skin will heal from this trauma. It will just take time and patience. In the meantime treat it gently and be good to yourself. Eat healthfully, drink lots of water, get enough sleep and try to stay away from as much stress as possible. Make sure you read through the archives as there is a lot of good info there. I wish you all the best and am sending good vibes your way!!

Best wishes,
Melissa

BTW If you feel like it, it would be helpful to others if you report your experiences in the thread that Peter gave you the link to in his post. Here it is again:
http://forum.rosaceagroup.org/viewtopic.php?t=12293
You might be able to warn people from falling for Dr. NotAllowed.
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Re: Please help!

Postby melissaw » Sat Jan 19, 2008 2:40 pm

Hi Justin,

[Edited by mod to remove material containing too personal criticism of named individuals who don't even post here]

> "Dr. Geoffrey Nase, PhD"
> Fri May 27, 2005
> Re: [rosacea] Getting Your Money Back for Poor IPL
>
> Hi Ladies,
>
> While you are right about signing the paper saying that if
> anything happens....Se la Vive (sp?) this does NOT hold up
> in court. Physicians always carry some degree of
> responsibility and if you hire the cheapest lawyer and
> just send the doctor one draft with photos and that they
> will be pursuing a court case, they will settle 99.9% of
> the time out of court, right there on the spot. I dislike
> ambulance chasers, but I also dont respect physicians who
> dont stand up to their own moral code.
>
> On a lighter note, one male and one female rosacea
> sufferer who underwent 10 plus laser treatments without
> any help, confronted their doctors for some type of
> reimbursement. The doctors first offerered more laser
> treatments at no cost, but that certainly was not helping.
> I suggested that they just mention that they post to large
> rosacea support group frequently and where going to tell
> them their experience and mention the practice. That got
> their attention a little bit. Then I suggested that they
> send the doctors a link to Andrew Reids excellent Rosacea
> Blog on effectiveness of treatments that is a permanent,
> highly ranked site. You tell them you experience, grade
> their response and politely give them a zero. Both of the
> physicians gave the patients a FULL REFUND of $8,000 to
> $10,000 and asked the patients politely to take their
> report down.
>
> Just some ideas. Some people get poor results with any
> type of laser or IPL and we just dont know why yet, but
> there has to be some point where the doctor says, "I'd
> like to keep on trying if you want and will do it for free
> because I entered medicine to help patients and not
> support my four house mortgages".
>
> Regards,
>
> Geoffrey
>
http://health.groups.yahoo.com/group/ro ... sage/73528


Justin, I hope this helps you and anyone else still unsure about NotAllowed and his intentions.

All the best,
Melissa
Last edited by Aurelia on Sat Jan 19, 2008 3:33 pm, edited 1 time in total.
Reason: Too personal criticism of two named individuals
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Re: Please help!

Postby Aurelia » Sat Jan 19, 2008 2:59 pm

Well, how funny! :lol: Shouldn't laugh really, since I'm a mod, but seeing "notallowed" "notallowed" "notallowed" all over the place just looks so hilarious. Sorry. :lol:

I've just noticed the Nielson ad and commented on it myself, kind of on behalf of the mods. I think a lot of rosaceans who know the history will do a double-take the moment they spot it. Even so, saying that "the blogger pushes the "useful links on the page" might be going too far. Maybe there are other links on the site? I didn't personally look far enough to see. Besides, the servers choose the ads, although I have read that boards and bloggers get the option of saying that there are certain ads they won't accept. A tricky situation.

Beyond that, I'm just not going to make any comment at all, except to express my sympathy to Justin.

Kind regards,

Aurelia
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Re: Please help!

Postby melissaw » Sat Jan 19, 2008 3:10 pm

FYI I kept typing in NotAllowed not realizing that it would have automatically done so if I just typed in ****'s name. LOL.

Justin, don't feel badly about being fooled by the Rosacea Institute. We have all been taken in unfortunately by our strong desire for relief. They are quite expert at deceipt and it says nothing about you at all. We have all been there and no one is exempt from being deceived sadly. I have been fooled many times by wanting to believe the best about people.

I hope you are doing better!

All the best,
Melissa
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Re: Please help!

Postby Aurelia » Sat Jan 19, 2008 3:42 pm

Okay, it seems that I am the only mod around, so I am obligated to enforce our "friendship board" rules, which means either deleting the post entirely, or else stripping out everything that is harsh about the two named doctors. I have opted for the latter, and hope that is acceptable to all concerned, including our dear Melissa. No criticism of you intended, and I think we all understand your laudable feelings.

After you have given your opinion of my edit, perhaps we should await Justin's comments on what he intends to do next, and how his skin is faring now. (I really hope it is improving.)

Kind regards,

Aurelia
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Re: Please help!

Postby melissaw » Sat Jan 19, 2008 4:13 pm

No problem Aurelia.
I think the heart of the message remains and Justin and anyone else in a similar predicament understands what's going on.

All the best,
Melissa
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Re: Please help!

Postby Aurelia » Sat Jan 19, 2008 4:15 pm

Thanks, Melissa.

Much appreciated.

Kind regards,

Aurelia
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