Roaccutane, instant cure.

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Roaccutane, instant cure.

Postby benos » Tue Aug 09, 2011 3:05 pm

(rofl) Hi all,
I developed Rosacea at the age of 42 and have been plagued by it for five years. Doctors, and my wife, always told me it wasn't that bad and I should seek counselling, but when you look in the mirror all you want to do is cry. I had just started university and I missed almost the entire second year because I wouldn't go out. I tried tetra/oxy/ minocyclin, eventually ending up on the, so-called, Big Brother, Lymecycline. I also used Metro Gel and then Azelaic acid, none of which worked.
On my final visit to the specialist, they were going to sign me off regardless of my condition, I got tough and demanded to see someone else. I got my way and this specialist put me on Doxycycline; still no response. Finally, she suggested low dose Roaccutane and I was clear of any bumps and red sore patches within one week. It does makes my joints ache, gives me a bit of a headache and make my lips sore. But now I can get out of bed, have a wash, bang some simple cream and lip balm on and I'm out the door. It has changed my life.
I have only been on it for two months and they forgot to book me back in, this means I haven't had a pill for seven days but I still haven't had a breakout. I'm back tomorrow and I can't wait.
There is hope out there, make sure you fight for it.
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Re: Roaccutane, instant cure.

Postby oldredlady » Tue Aug 09, 2011 4:58 pm

Hi and welcome to the forums. :)

Congrats on your success in battling the rosacea beast. :) Low dose Accutane does help some members with p&p issues, though there are numerous documented side effects, some quite serious indeed. I'd advise caution when using strong meds., check in with your doc regularly and don't take strong meds. any longer than absolutely necessary.

Best wishes,
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Re: Roaccutane, instant cure.

Postby benos » Mon Apr 09, 2012 2:07 pm

Hello,
I thought I would let you know what happened after I came off Roaccutane. I was on a very small dose for four months and didn't have one outbreak but my cholesterol went up to 7.4 and so I was taken off it. The specialist said I should be ok for around a year; well three months later my lumps are back and that is with using Finacea cream everyday. My doctor has put me on Lymecycline, which didn't work before so I don't hold out much hope. I have all the old feelings returning and the arguments of not going out have returned. My wife has just gone shopping alone because I won't leave the house, and she is full of cold.We have a night out planned in a few weeks and I am already dreading it. The doctor has also put me on Beta blockers to see that helps with the flushing, which is fine but I can't see how that will help my nose.
Has anyone tried zinc cream or any other cream which has helped? Or any diet that may help.

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Re: Roaccutane, instant cure.

Postby fanny » Mon Apr 09, 2012 3:27 pm

Hi
I'm sorry for your suffering. I like zinc oxide, it works well for me. As with any new topical always do a patch test first. Have you been to an allergist, that could be a starting place to see if you are allergic to wheat, dairy products etc? Try keeping a food diary to see if anything you are ingesting is making matters worse.
Always use sunscreen when you go out, please do not stop going out, try not to let this condition control your life. Have you looked into laser treatment?
There are many options, never never never give up.
Take care
Fanny
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Re: Roaccutane, instant cure.

Postby TysonJones » Mon Apr 09, 2012 3:58 pm

Aloe vera gel and zinc oxide have saved me. Im also on doxy, finacea, metrogel, clarifoam, and a handful of supplements. But I really have seen the most different with aloe vera and the zinc.
Check out my Blog, where I write many songs, poems, and passages about my struggle with Rosacea and other things in life:
http://passagesofthepsyche.blogspot.com/
http://epicevolutions.blogspot.com/
http://the-darkness-rises.blogspot.com/
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Re: Roaccutane, instant cure.

Postby benos » Thu Oct 04, 2012 7:04 pm

Hi,
Thought I'd give you another update. I was put back on Roaccutane for two months and they took me off it again.I couldn't believe it and I am now watching my nose changing shape each day. The spots returned almost instantly,I honestly don't think they care at all. I'm back in November and will be banging the table for more tablets, I would rather die of heart attack( because of the tablets increase my cholesterol ) than walk around with a satsuma for a nose. Bit depressing I know but there it is.
Can I have my nose done, before it gets bad, with laser treatment and is it extortionate?
Benos the fat nosed reindeer. ( Well, it's nearly Christmas).
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Re: Roaccutane, instant cure.

Postby fanny » Fri Oct 05, 2012 1:13 pm

Hi
This condition does put us through the wringer doesn't it? I am so sorry for what you are going through. Peacock, one of our Board members, had laser surgery on his nose and had a great outcome. I expect the cost is not cheap, maybe Peacock could help out here.
I applaud the fact that you are keeping your sense of humor.
Take care
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