Where the rosacea community meets to support each other

Written by on July 2, 2007

According to the National Rosacea Society, more than 14 million Americans suffer from the condition called Rosacea, and most of them don’t know it. Rosacea is an acne like inflammatory skin condition that can affect the nose, cheeks, chin and eyes. Sometimes (but no longer) called acne rosacea, rosacea is surprising because of how common it is and secondly how poorly understood it is.

In recent surveys by the National Rosacea Society, nearly 70 percent of rosacea patients said this condition had lowered their self-confidence and self-esteem, and 41 percent reported it had caused them to avoid public contact or cancel social engagements.

One recent study concluded that patients with rosacea have higher incidences of embarrassment, social anxiety, depression, and decreased Quality o Life compared with the rest of the population.

Those that suffer from rosacea, know well that rosacea is more than just a red face.

Where to look for more:

If you are just starting to look for internet resources related to Rosacea, your first stop should be the Rosacea FAQ. This will answer some of your simple questions and whet your appetite for more.

The Rosacea Support Group

Looking for some rosacea help ? In October 1998, I created an email group for rosacea sufferers. This group is still the largest rosacea group on the internet. We call this the Rosacea Support Email Group (or RSG for short). You can find this email group at Yahoo!Groups – rosacea-support.

The Rosacea Support Group has proved valuable for people suffering from rosacea to exchange information about rosacea symptoms and rosacea treatments. As of July 2009, there are more than 7500 registered members of this email group, with many many more reading the list without registering.

The Rosacea Support Community

In mid 2007 a new online community site, called the Rosacea Support Community (or RSComm for short) was launched to compliment the rosacea support email group. This is more like a bulletin board, and works well if you prefer that sort of interface compared to an email based group. This bulletin board used to be called the Rosacea Support Forum, but that got a bit confusing, so I renamed it to be the Rosacea Support Community.

Have you just been diagnosed with rosacea ? Head over to our Just Diagnosed With Rosacea section for some great information and support.

The email group and community members talk about their rosacea skin care products, rosacea symptoms, rosacea treatments, what medicine and health professionals have to say about rosacea, problems when treating rosacea, ocular rosacea, facial redness, rhinophyma and rosacea red noses, rosacea flushing, rosacea related pain, steroid induced rosacea as well as lots more. Also expect discussions about what traditional and alternative medicine has to say about rosacea. You probably won’t find many discussions about a rosacea cure as they are generally full of false hopes and can be unhelpful.

The community functions like an online rosacea self help group.

It can be quite scary when you are first faced with a rosacea diagnosis. We are here to help !

The Rosacea Blog

I have written and edited more than 800 articles of interest to rosacea sufferers. These articles were written over time to create a Rosacea Blog. Use the article and category links at the bottom to peruse the archives for an area that interests you. Links to other spotlighted articles are also found on the right hand side of the site and in the footer.

I use the Rosacea News Blog to keep everyone up to date with the latest rosacea treatments. New rosacea treatments are slowly emerging and while their progress seems to be slow, there is reason to be optimistic about the possibility of future treatments for rosacea.

Feel free to look around and leave a comment on pages that interest you.

How to Spell Rosacea

Common mis spellings of rosacea (sadly there are many of them) look like the following: roacea, rosae, rocase, rocacea, roace, roscea, rosacia, rosasea, roseacea. Well these are the common attempts at spelling rosacea that I see a lot. If you are looking for good information online then it helps to start with the correct spelling !

Geoffrey Nase & Rosacea

The rosacea community first heard from Dr. Geoffrey Nase (PhD) in February 1999. Geoffrey informed us that he was a severe rosacea sufferer and a vascular researcher.

Subsequently, his background and his zeal lead him to self publish a book titled Beating Rosacea. This book introduced us to some ideas about the basis of the disease and how we can go about treating it. This web site has promoted `Beating Rosacea’ for several years since it was published in 2001.

Recent events necessitate a question over the reliability of the information in `Beating Rosacea’.

Since the end of 2004, some in the rosacea community have lost faith in Dr. Geoffrey Nase PhD as a leader in rosacea. I want to believe that the last year doesn’t mean that we have lost our hopes and dreams that came with Geoffrey ; but sadly my hopes appear to be poorly placed. A recent newspaper item titled Rosacea Guru to end battle over critic’s site also deals with this sad story. More recently, you may also like to read about rosadyn.

On a personal level, I have thought quite a bit about recent events that relate to Geoffrey Nase, rosacea and the internet. I’ve captured these thoughts in a document I have titled `When your Internet Angel is a “Dog”‘.

About the Author

About the Author: David Pascoe started the Rosacea Support Group in October 1998. .

 

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