Where the rosacea community meets to support each other

Written by on July 2, 2007

About Rosacea:

According to the National Rosacea Society, more than 14 million Americans suffer from the condition called Rosacea, and most of them don’t know it. Rosacea is an acne like inflammatory skin condition that can affect the nose, cheeks, chin and eyes. Sometimes (but no longer) called acne rosacea, rosacea is surprising because of how common it is and secondly how poorly understood it is.

In recent surveys by the National Rosacea Society, nearly 70 percent of rosacea patients said this condition had lowered their self-confidence and self-esteem, and 41 percent reported it had caused them to avoid public contact or cancel social engagements.

One recent study concluded that patients with rosacea have higher incidences of embarrassment, social anxiety, depression, and decreased Quality o Life compared with the rest of the population.

Those that suffer from rosacea, know well that rosacea is more than just a red face.

Where to look for more:

If you are just starting to look for internet resources related to Rosacea, your first stop should be the Rosacea FAQ. This will answer some of your simple questions and whet your appetite for more.

The Rosacea Support Group

Looking for some rosacea help ? In October 1998, I created an email group for rosacea sufferers. This group is still the largest rosacea group on the internet. We call this the Rosacea Support Email Group (or RSG for short). You can find this email group at Yahoo!Groups – rosacea-support.

The Rosacea Support Group has proved valuable for people suffering from rosacea to exchange information about rosacea symptoms and rosacea treatments. As of July 2009, there are more than 7500 registered members of this email group, with many many more reading the list without registering.

The Rosacea Support Community

In mid 2007 a new online community site, called the Rosacea Support Community (or RSComm for short) was launched to compliment the rosacea support email group. This is more like a bulletin board, and works well if you prefer that sort of interface compared to an email based group. This bulletin board used to be called the Rosacea Support Forum, but that got a bit confusing, so I renamed it to be the Rosacea Support Community.

Have you just been diagnosed with rosacea ? Head over to our Just Diagnosed With Rosacea section for some great information and support.

The email group and community members talk about their rosacea skin care products, rosacea symptoms, rosacea treatments, what medicine and health professionals have to say about rosacea, problems when treating rosacea, ocular rosacea, facial redness, rhinophyma and rosacea red noses, rosacea flushing, rosacea related pain, steroid induced rosacea as well as lots more. Also expect discussions about what traditional and alternative medicine has to say about rosacea. You probably won’t find many discussions about a rosacea cure as they are generally full of false hopes and can be unhelpful.

The community functions like an online rosacea self help group.

It can be quite scary when you are first faced with a rosacea diagnosis. We are here to help !

The Rosacea Blog

I have written and edited more than 800 articles of interest to rosacea sufferers. These articles were written over time to create a Rosacea Blog. Use the article and category links at the bottom to peruse the archives for an area that interests you. Links to other spotlighted articles are also found on the right hand side of the site and in the footer.

I use the Rosacea News Blog to keep everyone up to date with the latest rosacea treatments. New rosacea treatments are slowly emerging and while their progress seems to be slow, there is reason to be optimistic about the possibility of future treatments for rosacea.

Feel free to look around and leave a comment on pages that interest you.

How to Spell Rosacea

Common mis spellings of rosacea (sadly there are many of them) look like the following: roacea, rosae, rocase, rocacea, roace, roscea, rosacia, rosasea, roseacea. Well these are the common attempts at spelling rosacea that I see a lot. If you are looking for good information online then it helps to start with the correct spelling !

Geoffrey Nase & Rosacea

The rosacea community first heard from Dr. Geoffrey Nase (PhD) in February 1999. Geoffrey informed us that he was a severe rosacea sufferer and a vascular researcher.

Subsequently, his background and his zeal lead him to self publish a book titled Beating Rosacea. This book introduced us to some ideas about the basis of the disease and how we can go about treating it. This web site has promoted `Beating Rosacea’ for several years since it was published in 2001.

Recent events necessitate a question over the reliability of the information in `Beating Rosacea’.

Since the end of 2004, some in the rosacea community have lost faith in Dr. Geoffrey Nase PhD as a leader in rosacea. I want to believe that the last year doesn’t mean that we have lost our hopes and dreams that came with Geoffrey ; but sadly my hopes appear to be poorly placed. A recent newspaper item titled Rosacea Guru to end battle over critic’s site also deals with this sad story. More recently, you may also like to read about rosadyn.

On a personal level, I have thought quite a bit about recent events that relate to Geoffrey Nase, rosacea and the internet. I’ve captured these thoughts in a document I have titled `When your Internet Angel is a “Dog”‘.

About the Author

About the Author: David Pascoe started the Rosacea Support Group in October 1998. .

 

Recent Rosacea Blog Posts

Mirvaso Gel Pump – for those who don’t like a tube?

Following in the footsteps of making Metrogel 1% available in a pump, Galderma has announced that Mirvaso Gel is now available in a pump dispenser. Previously Galderma has claimed the benefits of a pump over a tube include –  better looking dispenser, minimizing waste, easier compliance with prescribing instructions and “facilitating product handling”. Galderma Press […]

Continue Reading

Oxymetazoline 1% Cream for 1H 2017

Allergan today have confirmed that a new drug application for their 1% oxymetazoline hcl cream has been formally lodged with the FDA. The prediction from Allergan is that the approval will come in the first half of 2017. This is the first confirmation that Allergan has settled on a 1% formulation of oxymetazoline hydrochloride, having […]

Continue Reading

Rosacea News is starting a new series of articles that I’m calling “My Rosacea Story”. There is real power in hearing other people’s stories. We’d love to hear from you too. Feel free to send me an email, and to use the following questions as a starting point. Thanks to Vanessa for sharing your Rosacea […]

Continue Reading

RosaceaCare Tinted ZincO Cream User Reviews

ZincO Cream as a product has been around for many years now. It is time that it had its own page on this site where we can collect reviews and comments in one place. I still use ZincO Cream everyday to offer protection from the sun and to smooth over facial redness. I trust that you […]

Continue Reading

Timolol (Timoptic) for the redness of rosacea

The glaucoma treament Timolol is to be trialed as a treatment for the facial redness of rosacea. Timolol is a non-selective beta-adrenergic receptor antagonist, somewhat similar to Brimonidine. Mirvaso is the recently approved treatment for the red face of rosacea that is based on bromonidine. Timolol has been used in the past as a dermatological agent […]

Continue Reading

Finacea Foam makes $680K for Foamix

A recent press release from Foamix gives a view into how well Finacea Foam is selling. Based on Q1 2016 sales of the newly approved Finacea Foam, Bayer HealthCare made a royalty payment of $682,000 to Foamix as a fee for licensing their foaming technology. Along with the comment that Finacea Foam sales are continuing […]

Continue Reading

Rosacea News is starting a new series of articles that I’m calling “My Rosacea Story”. There is real power in hearing other people’s stories. We’d love to hear from you too. Feel free to send me an email, and to use the following questions as a starting point. Thanks to Susie G for sharing. How long […]

Continue Reading

Foamix Minocycline Foam (FMX103) still in development

Confirmation today that Foamix’s minocycline based FMX103 is still in clinical trials as a rosacea treatment. A press release from the company tells us that the Phase 2 trials have completed. The trial compared 3% minocycline foam, 1.5% minocycline foam and the vehicle foam. Foamix are hopeful that their foam formulation of topical minocycline can […]

Continue Reading

Soolantra more expensive than Finacea, but better, apparently

A study has been released that headlines a result that even though Soolantra costs more than Finacea, overall it is actually cheaper than Finacea. The study uses a complicated formula to deduce that even though Soolantra sells for more per tube than Finacea, the overall cost versus the benefit you receive shows that Soolantra is […]

Continue Reading

Omiganan still in the rosacea pipeline

There aren’t many drugs currently in late development for rosacea. Finacea foam and Soolantra have been approved, and it looks like Azultro is on the way. One of the remaining drugs that is still inching its way through the approval process is Omiganan. Confirmation that Omiganan is still alive in the rosacea development pipeline comes from […]

Continue Reading

Get More Info

Subscribe now to receive the latest information about rosacea in your inbox.

Join more than 10,900 other readers and stay in touch with Rosacea Support

Subscribe via RSS Feed Connect on Pinterest Connect on Google Plus
Top

Subscribe to Rosacea News

Enter your email address to receive the latest news about rosacea in your inbox.