Comments on: treating rhinophyma with accutane (roaccutane, isotretinoin) http://rosacea-support.org/treating-rhinophyma-with-accutane.html Where the rosacea community meets to support each other Thu, 19 Nov 2009 14:06:40 +0800 http://wordpress.org/?v=2.8.6 hourly 1 By: mik http://rosacea-support.org/treating-rhinophyma-with-accutane.html/comment-page-1#comment-29894 mik Fri, 28 Aug 2009 09:43:33 +0000 http://rosacea-support.org/treating-rhinophyma-with-accutane-roaccutane-isotretinoin.html#comment-29894 I too am afraid to go on accutane again for it caused the rosacea as well as my messed up nose in the first place. My nose is lumpy and horrible and in the past 6 months have been getting papules and pustules from inflammation. There is so little info about this condition and I thank you for the steps your taking. And isn't it true that once you stop the accutane that the enlarged glands will just return to their enlarged states? I too am afraid to go on accutane again for it caused the rosacea as well as my messed up nose in the first place.
My nose is lumpy and horrible and in the past 6 months have been getting papules and pustules from inflammation. There is so little info about this condition and I thank you for the steps your taking.

And isn’t it true that once you stop the accutane that the enlarged glands will just return to their enlarged states?

]]> By: Laima Rastenis http://rosacea-support.org/treating-rhinophyma-with-accutane.html/comment-page-1#comment-28878 Laima Rastenis Fri, 10 Jul 2009 20:00:06 +0000 http://rosacea-support.org/treating-rhinophyma-with-accutane-roaccutane-isotretinoin.html#comment-28878 I too would like to know what you think of Rosadyn--the new neutraceutical from Dr. Nase. I too would like to know what you think of Rosadyn–the new neutraceutical from Dr. Nase.

]]> By: Peter H http://rosacea-support.org/treating-rhinophyma-with-accutane.html/comment-page-1#comment-27979 Peter H Mon, 18 May 2009 15:50:51 +0000 http://rosacea-support.org/treating-rhinophyma-with-accutane-roaccutane-isotretinoin.html#comment-27979 Dear David, after absorbing information from your extremely informative website (very well done!) for over half a year I thought it would be more than appropriate to start contributing as well. I am a Dutch born 42 year old male living a healthy life in Sweden and I am diagnosed with Rosacea Sept. 2008. I have a serious cystic acne history specifically on face and back (as my two older brothers and sister) and between the age of 15 and 23 tried the basic OTC and doctors descriptions available (from benzoyl peroxide to oral antibiotics) all of no avail. In 1989 I had my first 6 month of Roaccutane (Accutane) treatment and this totally cleared my acne and oily (sebum) skin for over a year after ending the treatment. Acne and oily skin returned but to a lesser extend and another Roaccutane treatment in 1993 helped me to manage the acne to a c. 80% improvement compared to the pre-accutane period. Around the age of 30 my scarred face and back cleared completely from acne for what I thought would be forever since my brothers and sister, without any Accutane treatment, cleared also for 95% from acne around the same age. My conclusion for the efficacy of Accutane on acne: reduction of sebum production and inhibition of the sebaceous glands. As unpleasant surprise the acne started to return 12 years later but this time together with a reddening of the face, dry skin, papules & pustules and widening facial blood vessels under both eyes. The house doctor and dermatologist diagnosis were easily made but the only part which still leaves me wondering is the red neck including inflammatory pustules and papules and the return of some acne on my back. For me its best described as a combination of Rosacea in the face together with (adult) acne on neck and back but the dermatologist prefers to call it extrafacial rosacea. I have been taking oral limecycline (tetralysal) for 3 month (600 mg for 6 weeks followed by 300mg for another 6) and already after day 3 the bumps on face and neck and to some extend on the back were gone but the facial redness, widening blood vessels together with facial ‘inward red coins’ stayed. After the 6 month of limecycline my daily regimen consists of Cetaphil mild cleanser, one drop of Jojoba Oil, Rosacea LTD3 and Rosacea care sunscreen all on face and neck. My face still clears every day (except for the blood vessels) the only problem left is a return of lesions on neck and back. I am now again taking limecycline (300 mg a day) together with the full daily regimen and again the neck lesions cleared almost immediately followed by the back lesions. I plan to stop gradually again soon with the limecycline and start experimenting with not using oil and LTD3 in the neck to see if face and neck react differently. Low - or micro dose long term antibiotics or accutane seem to offer at least a solution (to my believe both trough the ability to modulate the inflammatory response pathway) the only worry I have is the long term consequences. Especially since I have the feeling that taking Roaccutane a long time ago could be the main reason for having Rosacea in the first please. Although I have to admit directly that this is just a feeling without any scientific evidence. Thanks again for this great site and I will keep reading and contributing! One more question for David: do you have an opinion on Rosadyn (not on the person behind it)? Dear David, after absorbing information from your extremely informative website (very well done!) for over half a year I thought it would be more than appropriate to start contributing as well. I am a Dutch born 42 year old male living a healthy life in Sweden and I am diagnosed with Rosacea Sept. 2008. I have a serious cystic acne history specifically on face and back (as my two older brothers and sister) and between the age of 15 and 23 tried the basic OTC and doctors descriptions available (from benzoyl peroxide to oral antibiotics) all of no avail. In 1989 I had my first 6 month of Roaccutane (Accutane) treatment and this totally cleared my acne and oily (sebum) skin for over a year after ending the treatment. Acne and oily skin returned but to a lesser extend and another Roaccutane treatment in 1993 helped me to manage the acne to a c. 80% improvement compared to the pre-accutane period. Around the age of 30 my scarred face and back cleared completely from acne for what I thought would be forever since my brothers and sister, without any Accutane treatment, cleared also for 95% from acne around the same age. My conclusion for the efficacy of Accutane on acne: reduction of sebum production and inhibition of the sebaceous glands. As unpleasant surprise the acne started to return 12 years later but this time together with a reddening of the face, dry skin, papules & pustules and widening facial blood vessels under both eyes. The house doctor and dermatologist diagnosis were easily made but the only part which still leaves me wondering is the red neck including inflammatory pustules and papules and the return of some acne on my back. For me its best described as a combination of Rosacea in the face together with (adult) acne on neck and back but the dermatologist prefers to call it extrafacial rosacea. I have been taking oral limecycline (tetralysal) for 3 month (600 mg for 6 weeks followed by 300mg for another 6) and already after day 3 the bumps on face and neck and to some extend on the back were gone but the facial redness, widening blood vessels together with facial ‘inward red coins’ stayed. After the 6 month of limecycline my daily regimen consists of Cetaphil mild cleanser, one drop of Jojoba Oil, Rosacea LTD3 and Rosacea care sunscreen all on face and neck. My face still clears every day (except for the blood vessels) the only problem left is a return of lesions on neck and back. I am now again taking limecycline (300 mg a day) together with the full daily regimen and again the neck lesions cleared almost immediately followed by the back lesions. I plan to stop gradually again soon with the limecycline and start experimenting with not using oil and LTD3 in the neck to see if face and neck react differently. Low – or micro dose long term antibiotics or accutane seem to offer at least a solution (to my believe both trough the ability to modulate the inflammatory response pathway) the only worry I have is the long term consequences. Especially since I have the feeling that taking Roaccutane a long time ago could be the main reason for having Rosacea in the first please. Although I have to admit directly that this is just a feeling without any scientific evidence. Thanks again for this great site and I will keep reading and contributing!
One more question for David: do you have an opinion on Rosadyn (not on the person behind it)?

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