Comments on: Treating Ocular Rosacea (from the AAO) http://rosacea-support.org/treating-ocular-rosacea-from-aao.html Where the rosacea community meets to support each other Thu, 09 Feb 2012 00:45:24 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: T. Grey http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-75627 T. Grey Wed, 07 Dec 2011 15:50:14 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-75627 H. Pylori H. Pylori

]]> By: David Pascoe http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-66518 David Pascoe Thu, 13 Oct 2011 03:21:18 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-66518 Hi Amanda, There is no direct association between ocular symptoms and facial symptoms. Many will have one or the other, and others both. Not enough is known about rosacea to say who will develop what types of rosacea at what times. If you don't already have facial symptoms then that is a good sign. Some treatments for ocular rosacea will also help facial rosacea, so that is also good news. As a preventative measure you want to consider if there is anything you can do to reduce facial flushing if you suffer from them. Also the use of a gentle skincare regime and daily physical sunscreen is another good item to keep in your war chest. The internet is a great resource for almost all diseases, but especially for rosacea it can be scary to read the worst case scenarios all the time. People do get better from rosacea. all the best, davidp. Hi Amanda,

There is no direct association between ocular symptoms and facial symptoms. Many will have one or the other, and others both.

Not enough is known about rosacea to say who will develop what types of rosacea at what times.

If you don’t already have facial symptoms then that is a good sign.

Some treatments for ocular rosacea will also help facial rosacea, so that is also good news.

As a preventative measure you want to consider if there is anything you can do to reduce facial flushing if you suffer from them. Also the use of a gentle skincare regime and daily physical sunscreen is another good item to keep in your war chest.

The internet is a great resource for almost all diseases, but especially for rosacea it can be scary to read the worst case scenarios all the time. People do get better from rosacea.

all the best,
davidp.

]]> By: Amanda http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-66516 Amanda Thu, 13 Oct 2011 01:39:13 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-66516 I was just diagnosed with ocular rosacea. Does this eventually lead to rosacea symptoms on the face? I am getting very nervose reading everything out there. I was just diagnosed with ocular rosacea. Does this eventually lead to rosacea symptoms on the face? I am getting very nervose reading everything out there.

]]> By: Kathy http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-62428 Kathy Sat, 30 Jul 2011 01:51:49 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-62428 I have ocular rosacea and I would also like to wear eye makeup. I would appreciate it if any of you have found an eye makeup that does not irritate. Also I would really like to be able to wear contact lenses again. Have any of you had experience with wearing contacts and also having ocular rosacea. I am currently on 200 mg of doxycycline a day with not much success. I have a flare-up of my ocular rosacea about avery 10 days. Any information would be greatly appreciated. Thank you. I have ocular rosacea and I would also like to wear eye makeup. I would appreciate it if any of you have found an eye makeup that does not irritate. Also I would really like to be able to wear contact lenses again. Have any of you had experience with wearing contacts and also having ocular rosacea. I am currently on 200 mg of doxycycline a day with not much success. I have a flare-up of my ocular rosacea about avery 10 days. Any information would be greatly appreciated. Thank you.

]]> By: Monica http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-61785 Monica Sun, 17 Jul 2011 22:51:51 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-61785 I have ocular rosacea but still want to wear eye makeup. By the evening my eyes can feel like oil slicks. A friend without rosacea recently had permanent eyeliner applied - basically a tattoo. Does anyone have experience with this? Any advice? I have ocular rosacea but still want to wear eye makeup. By the evening my eyes can feel like oil slicks. A friend without rosacea recently had permanent eyeliner applied – basically a tattoo. Does anyone have experience with this? Any advice?

]]> By: Rjj http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-60060 Rjj Thu, 23 Jun 2011 04:00:36 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-60060 Bronxboymark....awesome comments! Also, anyone care to list the brand names of fishoil that work for you. Also, does anyone have any experience with flax seed oil? Thanks, Rjj Bronxboymark….awesome comments!

Also, anyone care to list the brand names of fishoil that work for you.

Also, does anyone have any experience with flax seed oil?

Thanks,
Rjj

]]> By: David Pascoe http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-60059 David Pascoe Thu, 23 Jun 2011 03:40:01 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-60059 An email I have copied from <a href="http://health.groups.yahoo.com/group/rosacea-support/message/109299" rel="nofollow">Message 109299</a> <blockquote> Hi Dot, I take regular low dose doxycycline 20mg twice a day and it works beautifully as an alternative for Oracea and it is covered. I have Ocular rosacea too and between the doxy and 5 fish oil caps a day i have my eyes almost back to normal and I wear contacts everyday. Sunny </blockquote> An email I have copied from Message 109299

Hi Dot,

I take regular low dose doxycycline 20mg twice a day and it works beautifully as an alternative for Oracea and it is covered. I have Ocular rosacea too and between the doxy and 5 fish oil caps a day i have my eyes almost back to normal and I wear contacts everyday.

Sunny

]]> By: Nazareth http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-56723 Nazareth Mon, 09 May 2011 02:28:12 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-56723 I have been living with rosacea for many years now and have always been able to keep it under control. I recently started to break out with what was diagnosed as "allergic reactions" in my eyes. I was prescribed fungal cream as well as steroid creams with no success. After reading and visiting this site frequently, I realized that what I have is ocular rosacea. The problem with this is that my doctors don't know or have no experienced this before. I have no other options as we are military and in Japan where I have no other options but to see our military doctors. The problem I really want to solve is how to keep my eye lids moisturized. I cannot use the same moisturizer as I use on my face as it burns my eye lids and leaves them very swollen and dry. My eyes look horrible and there's not much I can do about it except let them be. I have started the baby shampoo cleanse every night and am also doing warm compresses. Does anyone have any suggstions on what I can use to keep my eye lids moistuized without bringing a reaction on to them?? I've heard jojoba oil...anyone ever try that? Any suggestions are very much appreciated. I have been living with rosacea for many years now and have always been able to keep it under control. I recently started to break out with what was diagnosed as “allergic reactions” in my eyes. I was prescribed fungal cream as well as steroid creams with no success. After reading and visiting this site frequently, I realized that what I have is ocular rosacea. The problem with this is that my doctors don’t know or have no experienced this before. I have no other options as we are military and in Japan where I have no other options but to see our military doctors. The problem I really want to solve is how to keep my eye lids moisturized. I cannot use the same moisturizer as I use on my face as it burns my eye lids and leaves them very swollen and dry. My eyes look horrible and there’s not much I can do about it except let them be. I have started the baby shampoo cleanse every night and am also doing warm compresses.
Does anyone have any suggstions on what I can use to keep my eye lids moistuized without bringing a reaction on to them?? I’ve heard jojoba oil…anyone ever try that? Any suggestions are very much appreciated.

]]> By: Rob http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-54380 Rob Sun, 17 Apr 2011 22:11:28 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-54380 hi im 14 and since i can remember my eyes have been becoming more red and more swollen. they are now really bad. my eye lid ends have become a dark shade of red and are sore. i also have hardly any eyelashes. i get really bad gunk and crust around my eyes and thick on my eyelids. my eye lids also feel like theres cracks or crevasis in them vertically. my eyes push out of their sockets now and my vision is blurred. my skin is flaky and i hae really bad dandruff(flaky scalp)as you can imagine the word alien is thrown around alot at school.i have read steroids will make me go blind and am worried if i go to the docters and my parents wouldnt believe me if i told them ocular rosacia is a real condition. its getting worse and worse and im getting worried. any advice please send me a email roaderob@googlemail.com hi im 14 and since i can remember my eyes have been becoming more red and more swollen. they are now really bad. my eye lid ends have become a dark shade of red and are sore. i also have hardly any eyelashes. i get really bad gunk and crust around my eyes and thick on my eyelids. my eye lids also feel like theres cracks or crevasis in them vertically. my eyes push out of their sockets now and my vision is blurred. my skin is flaky and i hae really bad dandruff(flaky scalp)as you can imagine the word alien is thrown around alot at school.i have read steroids will make me go blind and am worried if i go to the docters and my parents wouldnt believe me if i told them ocular rosacia is a real condition. its getting worse and worse and im getting worried. any advice please send me a email roaderob@googlemail.com

]]> By: David Pascoe http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-53783 David Pascoe Fri, 01 Apr 2011 01:01:57 +0000 http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-53783 Thanks so much for your very helpful comments Tanya. Thanks so much for your very helpful comments Tanya.

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