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	<title>Comments on: treating ocular rosacea (from the AAO)</title>
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	<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html</link>
	<description>Where the rosacea community meets to support each other</description>
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		<title>By: Denise</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-31345</link>
		<dc:creator>Denise</dc:creator>
		<pubDate>Fri, 13 Nov 2009 15:32:59 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-31345</guid>
		<description>Wow!  I am so happy to find this site.  I have had rosacea for years and used creams and oral antibiotics.  More than 2 years ago I experienced eye pain and redness for the first time.  That has resulted in many MD appointments and different diagnosis and treatments to no avail.  I do the eye scrubs, eye lubricant drops, ointments, oral antibiotics, eye drops with antibiotics and steroids, and for the last six week restasis.  The restasis seems to be more irritating than helpful.  I have discontinued the restasis as of today.  The redness I can live with but the pain and decreased vision acuity is trying!  It&#039;s nice to hear that I&#039;m not alone!  Kind of misery loves company!  If anyone has any new ideas I&#039;d love to hear them.</description>
		<content:encoded><![CDATA[<p>Wow!  I am so happy to find this site.  I have had rosacea for years and used creams and oral antibiotics.  More than 2 years ago I experienced eye pain and redness for the first time.  That has resulted in many MD appointments and different diagnosis and treatments to no avail.  I do the eye scrubs, eye lubricant drops, ointments, oral antibiotics, eye drops with antibiotics and steroids, and for the last six week restasis.  The restasis seems to be more irritating than helpful.  I have discontinued the restasis as of today.  The redness I can live with but the pain and decreased vision acuity is trying!  It&#8217;s nice to hear that I&#8217;m not alone!  Kind of misery loves company!  If anyone has any new ideas I&#8217;d love to hear them.</p>
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		<title>By: Jim</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-31155</link>
		<dc:creator>Jim</dc:creator>
		<pubDate>Tue, 03 Nov 2009 20:12:37 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-31155</guid>
		<description>I believe this is all related to H Pylori.
I too have rosacea and chalazian of the eye,
Do any of you guys also suffer heartburn, bloating etc.
I DO NOT believe Doctors know what they are doing,
I do believe that we are all chemically inbalanced and the toxins from H Pylori are released through our skin and or eyes, And our only cure will be treating The H Pylori.</description>
		<content:encoded><![CDATA[<p>I believe this is all related to H Pylori.<br />
I too have rosacea and chalazian of the eye,<br />
Do any of you guys also suffer heartburn, bloating etc.<br />
I DO NOT believe Doctors know what they are doing,<br />
I do believe that we are all chemically inbalanced and the toxins from H Pylori are released through our skin and or eyes, And our only cure will be treating The H Pylori.</p>
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		<title>By: Digital Davo</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-30255</link>
		<dc:creator>Digital Davo</dc:creator>
		<pubDate>Fri, 25 Sep 2009 01:20:18 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-30255</guid>
		<description>Comment via email:

&quot;hi catherine:
 
i can only tell you that there are occasionally days where they feel and look better. i have had this for my entire life and have learned to live with it. washing my eyelids helps a little but it is a frustrating thing. people don&#039;t understand that it is not only a cosmetic thing but a physical pita.lol. my eyes feel like there is sand in them, they hurt, they itch and they strain easily. other than that, it&#039;s great! lol. you kind of get use to the redness and bloodshot eyes but you feel very insecure and self-conscious. the thing is drug companies have come up with drugs to grow eyelashes, tighten skin and improve your love life but nobody seems to be doing anything for this serious and uncomfortable ailment. I never realized there were so many millions of people suffering with rosacea. I don&#039;t and never has rosacea on my skin but have had eye rosacea for 35 years. Go figure.\Well tell your husband to keep the faith. Eye refeshing tear drops help as do eye compresses.
write me anytime.

Mark&quot;</description>
		<content:encoded><![CDATA[<p>Comment via email:</p>
<p>&#8220;hi catherine:</p>
<p>i can only tell you that there are occasionally days where they feel and look better. i have had this for my entire life and have learned to live with it. washing my eyelids helps a little but it is a frustrating thing. people don&#8217;t understand that it is not only a cosmetic thing but a physical pita.lol. my eyes feel like there is sand in them, they hurt, they itch and they strain easily. other than that, it&#8217;s great! lol. you kind of get use to the redness and bloodshot eyes but you feel very insecure and self-conscious. the thing is drug companies have come up with drugs to grow eyelashes, tighten skin and improve your love life but nobody seems to be doing anything for this serious and uncomfortable ailment. I never realized there were so many millions of people suffering with rosacea. I don&#8217;t and never has rosacea on my skin but have had eye rosacea for 35 years. Go figure.\Well tell your husband to keep the faith. Eye refeshing tear drops help as do eye compresses.<br />
write me anytime.</p>
<p>Mark&#8221;</p>
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		<title>By: catherine</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-30222</link>
		<dc:creator>catherine</dc:creator>
		<pubDate>Wed, 23 Sep 2009 08:41:24 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-30222</guid>
		<description>My husband has this eye problem for about 4 years.  He has been to eye specialists who said that his eyes were oily and has recomended blepharitis gel for cleaning the eyelids and we have also tried warm compress.  One of hte eye specialists recommended retasis which my husband has tried but only for a month and give up as there is not much improvement.  He told me his eyes felt gelly and he has oily face.  I will cleanse his eyelids with the blepharel gel thrice a day but still not much improvemnt.  Glad to hear from your experience about what treatment you have.  Thanks and look forward to receiving a response from you.</description>
		<content:encoded><![CDATA[<p>My husband has this eye problem for about 4 years.  He has been to eye specialists who said that his eyes were oily and has recomended blepharitis gel for cleaning the eyelids and we have also tried warm compress.  One of hte eye specialists recommended retasis which my husband has tried but only for a month and give up as there is not much improvement.  He told me his eyes felt gelly and he has oily face.  I will cleanse his eyelids with the blepharel gel thrice a day but still not much improvemnt.  Glad to hear from your experience about what treatment you have.  Thanks and look forward to receiving a response from you.</p>
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		<title>By: MARK</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-30215</link>
		<dc:creator>MARK</dc:creator>
		<pubDate>Wed, 23 Sep 2009 01:38:26 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-30215</guid>
		<description>I AM 49 AND SUFFERED SINCE I WAS 14 WITH EYE REDNESS, BLOODSHOT AND DRY. I WAS UNDER AN OPTOMOLOGIST CARE SINCE I WAS 17. I DIDN&#039;T KNOW WHAT I HAD AN NO DOCTOR GAVE ME A SPECIFIC DIAGNOSIS UNTIL LAST YEAR. I WAS TREATED FOR BLEPHARITIS, CONJUNTIVITIS, DRY EYE AND ALLERGIES. I WAS GIVEN TOPICAL ANTI-INFLAMMATORIES, STEROIDS AND ANTIBIOTICS. I WAS GIVEN ARTIFICIAL TEARS, EYE WASHES AND CLEANSERS. SOME BROUGHT MARGINAL RELIEF AND OTHERS DID NOTHING. I WAS ON A STEROID DROP FOR OVER 15 YEARS AND WAS LUCKY ENOUGH NOT DEVELOPE CATARACTS OR GLAUCOMA BECAUSE OF THE LENGTH OF MY STEROID USE.
I HAVE SUFFERED EMOTIONALLY BECAUSE OF THIS WITH PEOPLE THINKING I WAS A DRUGGIE, ALCOHOLIC OR BOTH. I WAS INSECURE AND STILL AM ABOUT IT. THE WORST THING ABOUT ALL OF THIS IS THAT I HAVE BIG EYES SO IT MAKES IT MORE VISIBLE. IF I HAD BEADIE EYES I MAY HAVE BEEN ABLE TO HIDE IT A LITTLE BETTER.
ANYWAY, I SOMEHOW SURVIVED IT ALL AND MANAGED TO ALWAYS BE SOCIALLY ACTIVE BUT IT WASN&#039;T EASY. I DID LET IT GET TO ME AT TIMES AND OTHER TIMES I WOULD JUST SAY HELL WITH IT AND IF YOU HAD SOMETHING TO SAY I WOULD JUST LET YOU HAVE IT.
IT IS NOT AN EASY THING TO LIVE WITH AND I NO HOW DEPRESSING IT CAN BE TO DEAL WITH IT AND THE SOCIAL IMPLICATIONS.
DON&#039;T LET IT DESTROY YOUR HAPPINESS. THE BEST WAY TO DEAL IS TO LET PEOPLE KNOW WHAT YOU HAVE WHEN THEY MAKE A COMMENT TO YOU. MOST OF THE TIME THEY WON&#039;T BUT YOU CAN FEEL THEM STARING AT YOU.
IT HAS ONLY BEEN RECENTLY I MET A DOCTOR WHO DIAGNOSED IT CORRECTLY. I TAKE RESTASIS TWICE A DAY, ARTIFICIAL TEARS TWICE A DAY AND A DISOLVING TABLET I PLACE IN MY EYE TWICE A DAY CALLED LUCIVERT. I ALSO HAVE PLUGS TO CONTROL MY TEAR DRAINAGE.
ALL I CAN SAY IS A GOOD PERSONALITY WILL GET YOU THROUGH. I HAVE ALWAYS BEEN THE JOKER AND LIFE OF THE PARTY AND THAT HAS HELPED ME SURVIVE.
IF ANYONE NEEDS SOMEONE TO TALK TO ABOUT THIS CONTACT ME ANYTIME AT MY EMAIL.
BRONXBOYMARK@AOL.COM</description>
		<content:encoded><![CDATA[<p>I AM 49 AND SUFFERED SINCE I WAS 14 WITH EYE REDNESS, BLOODSHOT AND DRY. I WAS UNDER AN OPTOMOLOGIST CARE SINCE I WAS 17. I DIDN&#8217;T KNOW WHAT I HAD AN NO DOCTOR GAVE ME A SPECIFIC DIAGNOSIS UNTIL LAST YEAR. I WAS TREATED FOR BLEPHARITIS, CONJUNTIVITIS, DRY EYE AND ALLERGIES. I WAS GIVEN TOPICAL ANTI-INFLAMMATORIES, STEROIDS AND ANTIBIOTICS. I WAS GIVEN ARTIFICIAL TEARS, EYE WASHES AND CLEANSERS. SOME BROUGHT MARGINAL RELIEF AND OTHERS DID NOTHING. I WAS ON A STEROID DROP FOR OVER 15 YEARS AND WAS LUCKY ENOUGH NOT DEVELOPE CATARACTS OR GLAUCOMA BECAUSE OF THE LENGTH OF MY STEROID USE.<br />
I HAVE SUFFERED EMOTIONALLY BECAUSE OF THIS WITH PEOPLE THINKING I WAS A DRUGGIE, ALCOHOLIC OR BOTH. I WAS INSECURE AND STILL AM ABOUT IT. THE WORST THING ABOUT ALL OF THIS IS THAT I HAVE BIG EYES SO IT MAKES IT MORE VISIBLE. IF I HAD BEADIE EYES I MAY HAVE BEEN ABLE TO HIDE IT A LITTLE BETTER.<br />
ANYWAY, I SOMEHOW SURVIVED IT ALL AND MANAGED TO ALWAYS BE SOCIALLY ACTIVE BUT IT WASN&#8217;T EASY. I DID LET IT GET TO ME AT TIMES AND OTHER TIMES I WOULD JUST SAY HELL WITH IT AND IF YOU HAD SOMETHING TO SAY I WOULD JUST LET YOU HAVE IT.<br />
IT IS NOT AN EASY THING TO LIVE WITH AND I NO HOW DEPRESSING IT CAN BE TO DEAL WITH IT AND THE SOCIAL IMPLICATIONS.<br />
DON&#8217;T LET IT DESTROY YOUR HAPPINESS. THE BEST WAY TO DEAL IS TO LET PEOPLE KNOW WHAT YOU HAVE WHEN THEY MAKE A COMMENT TO YOU. MOST OF THE TIME THEY WON&#8217;T BUT YOU CAN FEEL THEM STARING AT YOU.<br />
IT HAS ONLY BEEN RECENTLY I MET A DOCTOR WHO DIAGNOSED IT CORRECTLY. I TAKE RESTASIS TWICE A DAY, ARTIFICIAL TEARS TWICE A DAY AND A DISOLVING TABLET I PLACE IN MY EYE TWICE A DAY CALLED LUCIVERT. I ALSO HAVE PLUGS TO CONTROL MY TEAR DRAINAGE.<br />
ALL I CAN SAY IS A GOOD PERSONALITY WILL GET YOU THROUGH. I HAVE ALWAYS BEEN THE JOKER AND LIFE OF THE PARTY AND THAT HAS HELPED ME SURVIVE.<br />
IF ANYONE NEEDS SOMEONE TO TALK TO ABOUT THIS CONTACT ME ANYTIME AT MY EMAIL.<br />
<a href="mailto:BRONXBOYMARK@AOL.COM">BRONXBOYMARK@AOL.COM</a></p>
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		<title>By: Susan</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-30126</link>
		<dc:creator>Susan</dc:creator>
		<pubDate>Wed, 16 Sep 2009 20:59:56 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-30126</guid>
		<description>Please, please, particularly if you are a physician, go to demodexsolutions.com then click on about demodex in the green box on the left.  If you read the information , you will find there are ways to prove the existance of the mites by a simple test.  Pay close attention to the associative diseases section.  

I have been diagnoised with Morgellons disease and have been searching the internet for two years.  I believe this is the connection.</description>
		<content:encoded><![CDATA[<p>Please, please, particularly if you are a physician, go to demodexsolutions.com then click on about demodex in the green box on the left.  If you read the information , you will find there are ways to prove the existance of the mites by a simple test.  Pay close attention to the associative diseases section.  </p>
<p>I have been diagnoised with Morgellons disease and have been searching the internet for two years.  I believe this is the connection.</p>
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		<title>By: Digital Davo</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-28679</link>
		<dc:creator>Digital Davo</dc:creator>
		<pubDate>Fri, 03 Jul 2009 04:04:35 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-28679</guid>
		<description>Hi Terry,

OK I&#039;m no Opthamologist, you might have a better chance with your text books, but let me have a try.

Punctal Occlusion 

This is the easy one. The punctual plugs are where the tears drain out of the eye - in the corners of the eye towards the nose. If the eyes are not wet enough from your own tears, a doctor may put a plug into the `drain&#039; to slow the exit of tears.

Punctate Epitheliopathy

An epithelium is the covering of the eye, so this sounds like a disease of the epithelium seen as small holes or elevations on the surface.

Mucopurulent Blepharoconjunctivitis

At a guess I&#039;d say a form of blepharitis/conjuctivits where mucus and pus are present. The conjuctiva is of course one of the protective layers of the eye. Blepharitis is inflamation of the eyelid margins. So it sounds like a condition where the eyelid and eye surface is involved and pus/mucus is being produced.

I&#039;d be happy for corrections !</description>
		<content:encoded><![CDATA[<p>Hi Terry,</p>
<p>OK I&#8217;m no Opthamologist, you might have a better chance with your text books, but let me have a try.</p>
<p>Punctal Occlusion </p>
<p>This is the easy one. The punctual plugs are where the tears drain out of the eye &#8211; in the corners of the eye towards the nose. If the eyes are not wet enough from your own tears, a doctor may put a plug into the `drain&#8217; to slow the exit of tears.</p>
<p>Punctate Epitheliopathy</p>
<p>An epithelium is the covering of the eye, so this sounds like a disease of the epithelium seen as small holes or elevations on the surface.</p>
<p>Mucopurulent Blepharoconjunctivitis</p>
<p>At a guess I&#8217;d say a form of blepharitis/conjuctivits where mucus and pus are present. The conjuctiva is of course one of the protective layers of the eye. Blepharitis is inflamation of the eyelid margins. So it sounds like a condition where the eyelid and eye surface is involved and pus/mucus is being produced.</p>
<p>I&#8217;d be happy for corrections !</p>
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		<title>By: Terry Matthews</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-28665</link>
		<dc:creator>Terry Matthews</dc:creator>
		<pubDate>Thu, 02 Jul 2009 18:46:10 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-28665</guid>
		<description>Hi David,

I have had rosacea for several years, under control now, thank goodness, but I now realize from reading on this website (many thanks!) that my eye problems are ocular rosacea!  However, as a sufferer rather than a medical practitioner, I am having a great deal of trouble understanding the terminology.
Could you please translate the above &quot;Treating Occular Rosacea&quot;.  I have a medical dictionary in one hand and Google up on another tab.  Still cannot find &quot;punctate epitheliopathy&quot; or &quot;punctal occlusion&quot; or  &quot;mucopurulent blepharoconjunctivitis&quot;.  Give me a break!  I need to know what these are and what I can do about them or if I even have them!
I do understand about warm compresses and artificial tears and can start with those immediately to help alieviate some symptoms.
Thanks for all the help and the realization that I am not alone in this.

Terry</description>
		<content:encoded><![CDATA[<p>Hi David,</p>
<p>I have had rosacea for several years, under control now, thank goodness, but I now realize from reading on this website (many thanks!) that my eye problems are ocular rosacea!  However, as a sufferer rather than a medical practitioner, I am having a great deal of trouble understanding the terminology.<br />
Could you please translate the above &#8220;Treating Occular Rosacea&#8221;.  I have a medical dictionary in one hand and Google up on another tab.  Still cannot find &#8220;punctate epitheliopathy&#8221; or &#8220;punctal occlusion&#8221; or  &#8220;mucopurulent blepharoconjunctivitis&#8221;.  Give me a break!  I need to know what these are and what I can do about them or if I even have them!<br />
I do understand about warm compresses and artificial tears and can start with those immediately to help alieviate some symptoms.<br />
Thanks for all the help and the realization that I am not alone in this.</p>
<p>Terry</p>
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		<title>By: Digital Davo</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-27862</link>
		<dc:creator>Digital Davo</dc:creator>
		<pubDate>Tue, 12 May 2009 08:43:14 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-27862</guid>
		<description>Hi Norman,

I think the idea of a best doctor may well be one of those concepts that are hard to pin down and may even consume and waste time - most especially because best will be a personal perception.

I haven&#039;t sought out a doctor for ocular rosacea myself but I do know of a couple of doctors that have been very helpful to the online rosacea community.

Dr. Eric Jones, MD from the Devers Eye Institute in Portland, Oregon gave us a nice interview here: &lt;a href=&quot;http://rosacea-research.org/wiki/index.php/Ocular_Rosacea:_Dr._Eric_Jones,_MD&quot; rel=&quot;nofollow&quot;&gt;Ocular Rosacea: Dr. Eric Jones, MD&lt;/a&gt; as well as &lt;a href=&quot;http://rosacea-research.org/wiki/index.php?title=Ocular_Rosacea:_Dr._Mark_J._Mannis,_MD&quot; rel=&quot;nofollow&quot;&gt;Ocular Rosacea: Dr. Mark J. Mannis, MD&lt;/a&gt;.

Dr. Mannis is an experienced Opthamologist Department of Ophthalmology &amp; Vision Science at the University of California, Davis - closer to you. I don&#039;t know if he still se patients, but that might be worth investigating also.

You might also find some helpful people hanging out in the &lt;a href=&quot;http://rosacea-support.org/community/viewforum.php?f=20&quot; rel=&quot;nofollow&quot;&gt;Ocular Rosacea Community&lt;/a&gt; forum.

Hope this helps,
davidp.</description>
		<content:encoded><![CDATA[<p>Hi Norman,</p>
<p>I think the idea of a best doctor may well be one of those concepts that are hard to pin down and may even consume and waste time &#8211; most especially because best will be a personal perception.</p>
<p>I haven&#8217;t sought out a doctor for ocular rosacea myself but I do know of a couple of doctors that have been very helpful to the online rosacea community.</p>
<p>Dr. Eric Jones, MD from the Devers Eye Institute in Portland, Oregon gave us a nice interview here: <a href="http://rosacea-research.org/wiki/index.php/Ocular_Rosacea:_Dr._Eric_Jones,_MD" rel="nofollow">Ocular Rosacea: Dr. Eric Jones, MD</a> as well as <a href="http://rosacea-research.org/wiki/index.php?title=Ocular_Rosacea:_Dr._Mark_J._Mannis,_MD" rel="nofollow">Ocular Rosacea: Dr. Mark J. Mannis, MD</a>.</p>
<p>Dr. Mannis is an experienced Opthamologist Department of Ophthalmology &#038; Vision Science at the University of California, Davis &#8211; closer to you. I don&#8217;t know if he still se patients, but that might be worth investigating also.</p>
<p>You might also find some helpful people hanging out in the <a href="http://rosacea-support.org/community/viewforum.php?f=20" rel="nofollow">Ocular Rosacea Community</a> forum.</p>
<p>Hope this helps,<br />
davidp.</p>
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		<title>By: Norman</title>
		<link>http://rosacea-support.org/treating-ocular-rosacea-from-aao.html/comment-page-1#comment-27859</link>
		<dc:creator>Norman</dc:creator>
		<pubDate>Tue, 12 May 2009 03:11:14 +0000</pubDate>
		<guid isPermaLink="false">http://rosacea-support.org/treating-ocular-rosacea-from-the-aao.html#comment-27859</guid>
		<description>I need to locate a specialist the treats Ocular Rosacea.  We live in San Francisco, CA but will travel to find the BEST Doctor.  Can you recommend a Doctor?

Your help is much appriciated,

Norman</description>
		<content:encoded><![CDATA[<p>I need to locate a specialist the treats Ocular Rosacea.  We live in San Francisco, CA but will travel to find the BEST Doctor.  Can you recommend a Doctor?</p>
<p>Your help is much appriciated,</p>
<p>Norman</p>
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