Comments on: Oracea too expensive ? http://rosacea-support.org/oracea-too-expensive.html Where the rosacea community meets to support each other Fri, 19 Mar 2010 07:35:58 +0800 http://wordpress.org/?v=2.9.2 hourly 1 By: Deborah http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-32271 Deborah Thu, 07 Jan 2010 18:08:16 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-32271 I am 52 years old and I used Tetracycline for about a year. The stomach upsets got worse and worse so that I absolutely could not take it anymore. I had nausea, and actual stomach pain. After stopping the Tetracycline, my face became a disaster with huge painful cysts forming under the skin and lasting for weeks. I started Finacea, which helps to dry out the cysts, but not prevent them. These cysts were causing facial scarring and I was about at the end of my rope when I started Oracea. I have no stomach upsets, and the drug is very effective in preventing the cysts on my face. The drug company has a rebate program, where it will cover the cost of the medicine that your insurance doesn't cover, and all you pay is a $25 copay for the medication. The program expires at the end of 2010, so you will have the $25/month copay for a year. Ask your dermatologist about it. I am 52 years old and I used Tetracycline for about a year. The stomach upsets got worse and worse so that I absolutely could not take it anymore. I had nausea, and actual stomach pain. After stopping the Tetracycline, my face became a disaster with huge painful cysts forming under the skin and lasting for weeks.

I started Finacea, which helps to dry out the cysts, but not prevent them. These cysts were causing facial scarring and I was about at the end of my rope when I started Oracea.

I have no stomach upsets, and the drug is very effective in preventing the cysts on my face.

The drug company has a rebate program, where it will cover the cost of the medicine that your insurance doesn’t cover, and all you pay is a $25 copay for the medication. The program expires at the end of 2010, so you will have the $25/month copay for a year. Ask your dermatologist about it.

]]> By: john c http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-31588 john c Tue, 01 Dec 2009 17:12:42 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-31588 I was on doxycyclin (40 mg) for five months and it worked well, though I had a slightly upset stomach from time to time. Then my doctor prescribed Oracea (40mg) over a 3 month period and it worked really well, with no side effects I could discern. But then she said she had to stop prescribing it after this time period, for 4 weeks at least. Now my skin has blown up again and my nose is swollen and pustular. I am back on metrogel and skinoren and find them almost totally ineffective. So my question is, how long term can one use Oracea for, because I for one, would be "happy" to afford it as long as I could. Thank you, John. I was on doxycyclin (40 mg) for five months and it worked well, though I had a slightly upset stomach from time to time. Then my doctor prescribed Oracea (40mg) over a 3 month period and it worked really well, with no side effects I could discern. But then she said she had to stop prescribing it after this time period, for 4 weeks at least. Now my skin has blown up again and my nose is swollen and pustular. I am back on metrogel and skinoren and find them almost totally ineffective. So my question is, how long term can one use Oracea for, because I for one, would be “happy” to afford it as long as I could.

Thank you,

John.

]]> By: Ruff http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-30937 Ruff Sat, 24 Oct 2009 06:49:23 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-30937 try 20mg twice a day... one in the morning and the other one drinking with water , crush it in there ... u have your own extended released dose... pass the voice... save the $$$ away from the pharma industry try 20mg twice a day… one in the morning and the other one drinking with water , crush it in there … u have your own extended released dose…

pass the voice… save the $$$ away from the pharma industry

]]> By: Sarah G http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-30643 Sarah G Wed, 14 Oct 2009 14:30:42 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-30643 The regular antibiotic doses definitely work but for me there are two problems: 1)antibiotic resistance 2) I get other problems like yeast infections and urinary tract infections because the “good” bacteria also get killed by the antibiotics. So I end up spending money on doctor visits and probiotics…but still cheaper than paying the $300 for Oracea. I have insurance, but the expensive dermatology treatments are often not covered. I’d be willing to pay up to $100/month (still way overpriced) for Oracea. However, they insist on charging well over $300. Right now I have a card from the manufacturer to get the meds for $25 month for the next year or so…so they get me liking it so I stay on it. I still won’t be able to afford $300. Why don’t they just charge like $75 and they would have millions more people buying their drug??? If the $25 deal goes away, I will probably try the Periostat 20mg (doxycycline) twice daily instead. Not perfect but better than the 500mg twice daily of tetracycline I have taken in the past. The regular antibiotic doses definitely work but for me there are two problems: 1)antibiotic resistance 2) I get other problems like yeast infections and urinary tract infections because the “good” bacteria also get killed by the antibiotics. So I end up spending money on doctor visits and probiotics…but still cheaper than paying the $300 for Oracea. I have insurance, but the expensive dermatology treatments are often not covered. I’d be willing to pay up to $100/month (still way overpriced) for Oracea. However, they insist on charging well over $300. Right now I have a card from the manufacturer to get the meds for $25 month for the next year or so…so they get me liking it so I stay on it. I still won’t be able to afford $300. Why don’t they just charge like $75 and they would have millions more people buying their drug??? If the $25 deal goes away, I will probably try the Periostat 20mg (doxycycline) twice daily instead. Not perfect but better than the 500mg twice daily of tetracycline I have taken in the past.

]]> By: maureen rosky http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-30337 maureen rosky Tue, 29 Sep 2009 15:21:15 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-30337 Hi David, Thanks for your comment. Do you know how long people can stay on Doxycycline? Thanks Maureen Hi David, Thanks for your comment. Do you know how long people can stay on Doxycycline?
Thanks Maureen

]]> By: David Pascoe http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-30327 David Pascoe Tue, 29 Sep 2009 01:36:44 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-30327 Hi Maureen, 150mg a day of doxycycline is a standard dose to reduce the papules and pustules of rosacea. Whilst other treatments like anti-fungals or topical steroids are often the first line treatment for seborrheic dermatitis it is possible that the anti-inflammatory and anti-biotic effects of doxycyline at that dose helps SD too. davidp. Hi Maureen,

150mg a day of doxycycline is a standard dose to reduce the papules and pustules of rosacea. Whilst other treatments like anti-fungals or topical steroids are often the first line treatment for seborrheic dermatitis it is possible that the anti-inflammatory and anti-biotic effects of doxycyline at that dose helps SD too.

davidp.

]]> By: maureen rosky http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-30319 maureen rosky Mon, 28 Sep 2009 16:36:14 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-30319 Hi Digital Davo, just reading the comments you and Dr. ThomasBarrows made in regard to Orancea. Could you or the Dr. answer a question I have in regards to treating Seborrhea Dermatitis? Can Doryx 150mg treat a person who has Rosacea plus Seborrhea Dermatitis. I did hear that Doryx is the generic form of Doxycline. A person on one of the other sites was given this for her Rosacea and Seborrhea Dermatitis and has had great results. It 's like her Rosacea is gone. Thanks ,I hope someone can comment Maureen Hi Digital Davo, just reading the comments you and Dr. ThomasBarrows made in regard to Orancea. Could you or the Dr. answer a question I have in regards to treating Seborrhea Dermatitis? Can Doryx 150mg treat a person who has Rosacea plus Seborrhea Dermatitis. I did hear that Doryx is the generic form of Doxycline. A person on one of the other sites was given this for her Rosacea and Seborrhea Dermatitis and has had great results. It ’s like her Rosacea is gone.
Thanks ,I hope someone can comment
Maureen

]]> By: David Pascoe http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-28005 David Pascoe Wed, 20 May 2009 02:29:10 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-28005 When I was trying to wean myself off doryx I went down to 50mg a day and then 50mg every second day and I think this helped me taper down. I did this over a few months and was eventually able to stop them altogether. So for me 50mg of doxycycline a day was quite a satisfactory treatment. davidp. When I was trying to wean myself off doryx I went down to 50mg a day and then 50mg every second day and I think this helped me taper down. I did this over a few months and was eventually able to stop them altogether.

So for me 50mg of doxycycline a day was quite a satisfactory treatment.

davidp.

]]> By: Thomas Barrows, MD http://rosacea-support.org/oracea-too-expensive.html/comment-page-1#comment-28000 Thomas Barrows, MD Tue, 19 May 2009 19:43:57 +0000 http://rosacea-support.org/oracea-too-expensive.html#comment-28000 The cost of new medications versus their actual benefits is certainly a debate worth having! I am a physician and Rosacea patient. I was spending a little over $200 a month on Oracea and I found that it worked very well. However, I switched to once a day dosing of generic Doxycycline 100 mg and find the results are the same and it now only costs me about $5 a month for therapy. I suspect I could probably cut back to only 50 mg of generic Doxycycline a day since there are reports of the effectiveness of this dose. I have never had any GI complaints or problems with photosensitization with generic Doxycycline and frankly I think these concerns are over-rated. The cost of new medications versus their actual benefits is certainly a debate worth having! I am a physician and Rosacea patient. I was spending a little over $200 a month on Oracea and I found that it worked very well. However, I switched to once a day dosing of generic Doxycycline 100 mg and find the results are the same and it now only costs me about $5 a month for therapy.

I suspect I could probably cut back to only 50 mg of generic Doxycycline a day since there are reports of the effectiveness of this dose. I have never had any GI complaints or problems with photosensitization with generic Doxycycline and frankly I think these concerns are over-rated.

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