Comments on: MJF and Parkinson’s disease: if only rosacea had such a benefactor http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html Where the rosacea community meets to support each other Thu, 09 Feb 2012 00:45:24 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Kathy http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html/comment-page-1#comment-25568 Kathy Wed, 10 Dec 2008 14:50:55 +0000 http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html#comment-25568 I thought the article was very informative. Maybe we do need a celebrity on our behalf. Hey, Bill Clinton has Rosacea. Not sure if he has done anything for the cause though. I recently came across a situation that I thought I should comment on. I recently wrote a letter to my insurance company wondering why they wouldn't cover the cost of IPL Photo Facial Treatments. To my surprise, they wanted my Dermatologist to code the procedure as medically necessary in order for the treatments to be covered. Guess what? My Dermatologist refused to do this. One who has moderate Rosacea already knows that IPL treatments dramatically help combat the itching, redness, dryness and it also pushes the capillaries back into the skin where they are supposed to be. Another interesting fact that my Dermatologist told me was that now research has shown that continued use of antibiotics now produce brown pigmentation spots on the face. I was told that I should only take my antibiotic 4 times a week instead of 7 times a week. Hmmmm...... is this another indication that IPL treatments are the best choice for Rosacea patients? I am a firm believer that it is! If there is no cure for Rosacea, then I believe that the cost of IPL Photo Facials should not come out of the consumers pocket entirely. These treatments cost anywhere from $400.00 - $500.00 a session. Something needs to change. Starting at your local Dermatologists office. Sincerely, Hoping for a cure before I go broke and handing over my hard earned money to my local Dermatologist. I thought the article was very informative. Maybe we do need a celebrity on our behalf. Hey, Bill Clinton has Rosacea. Not sure if he has done anything for the cause though.

I recently came across a situation that I thought I should comment on. I recently wrote a letter to my insurance company wondering why they wouldn’t cover the cost of IPL Photo Facial Treatments. To my surprise, they wanted my Dermatologist to code the procedure as medically necessary in order for the treatments to be covered. Guess what? My Dermatologist refused to do this. One who has moderate Rosacea already knows that IPL treatments dramatically help combat the itching, redness, dryness and it also pushes the capillaries back into the skin where they are supposed to be. Another interesting fact that my Dermatologist told me was that now research has shown that continued use of antibiotics now produce brown pigmentation spots on the face. I was told that I should only take my antibiotic 4 times a week instead of 7 times a week. Hmmmm…… is this another indication that IPL treatments are the best choice for Rosacea patients? I am a firm believer that it is! If there is no cure for Rosacea, then I believe that the cost of IPL Photo Facials should not come out of the consumers pocket entirely. These treatments cost anywhere from $400.00 – $500.00 a session. Something needs to change. Starting at your local Dermatologists office.

Sincerely,
Hoping for a cure before I go broke and handing over my hard earned money to my local Dermatologist.

]]> By: David Pascoe http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html/comment-page-1#comment-25564 David Pascoe Wed, 10 Dec 2008 00:28:25 +0000 http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html#comment-25564 To me it seems there is something more interesting here than just the dollar amounts. What they are doing is changing the way of thinking about research funding and taking control of the whole enterprise. Any percentage poorly spent is poorly spent. To me it seems there is something more interesting here than just the dollar amounts.

What they are doing is changing the way of thinking
about research funding and taking control of the whole enterprise.

Any percentage poorly spent is poorly spent.

]]> By: Brady Barrows http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html/comment-page-1#comment-25561 Brady Barrows Tue, 09 Dec 2008 17:45:10 +0000 http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html#comment-25561 The Form 990 for 2007 shows that the MJFF spends $23.6 Million for research and received $38.4 Million in revenue. That means that for every dollar donated to the MJFF that 61 cents is spent on research. That is excellent and shouldn't that be the way a non profit should be? The Form 990 for 2007 shows that the MJFF spends $23.6 Million for research and received $38.4 Million in revenue. That means that for every dollar donated to the MJFF that 61 cents is spent on research. That is excellent and shouldn’t that be the way a non profit should be?

]]> By: Brady Barrows http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html/comment-page-1#comment-25558 Brady Barrows Tue, 09 Dec 2008 15:54:15 +0000 http://rosacea-support.org/mjf-and-parkinsons-disease-if-only-rosacea-had-such-a-benefactor.html#comment-25558 David, Good article. It would be good to actually read the Form 990 to see how this organization spends its funds and if the money is actually being spent as you say, which is very novel. I have always thought that a non profit rosacea research organization should spend most of its money on novel rosacea research rather than on administration or running the organization, but alas, most non profits spend the majority on such things and research is but a tiny portion of what is accomplished. Thanks for the article and pointing out the MJF Foundation which I will carefully follow how they spend their money. David,
Good article. It would be good to actually read the Form 990 to see how this organization spends its funds and if the money is actually being spent as you say, which is very novel. I have always thought that a non profit rosacea research organization should spend most of its money on novel rosacea research rather than on administration or running the organization, but alas, most non profits spend the majority on such things and research is but a tiny portion of what is accomplished. Thanks for the article and pointing out the MJF Foundation which I will carefully follow how they spend their money.

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