Comments on: Frequently Asked Questions http://rosacea-support.org Where the rosacea community meets to support each other Wed, 08 Feb 2012 16:47:32 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Sequoia http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-86373 Sequoia Fri, 13 Jan 2012 18:07:49 +0000 http://rosacea-support.org/faqhtml#comment-86373 Dear Yag, I know where your comming from and I sympathize!! It doesn't help when your in collage and have to walk from class room to classroom outside. Jo gave good advice, find a doctor, preferably a dermatologist, one who knows what your dealing with. Find one thats reliable because if it's Rosacea, you'll be seeing him/her for years to come. Just remember, Rosacea is a trial and error kind of condition, what works for some may not work for you. Be gentle to your skin when washing and I found that in the summer months my rosacea improves 100% as long as I always wear sunscreen and a visor to shade my face. In the winter I always wear a scarf around my face, making sure nothing but my eyes are showing,because the wind and cold is the worst! And stay away from Hot drinks and soup, I found that really makes it flair up. I just bought a cream that is approved by the National Rosacea Society. Its called Eucerin redness relief, you can buy it at any drug store and it doesnt cost alot. When it comes out of the bottle it's green but once you apply it, the green goes away. it works really well,seems to take the redness away right away. Believe me I'm a hermit because of Rosacea, but take heart, there are better days ahead. Once you get it under control and know your triggers there will be days you forget you have rosacea. But always take care to baby your skin and protect it. So for now Calm down, and know your not alone. Dear Yag, I know where your comming from and I sympathize!! It doesn’t help when your in collage and have to walk from class room to classroom outside. Jo gave good advice, find a doctor, preferably a dermatologist, one who knows what your dealing with. Find one thats reliable because if it’s Rosacea, you’ll be seeing him/her for years to come. Just remember, Rosacea is a trial and error kind of condition, what works for some may not work for you. Be gentle to your skin when washing and I found that in the summer months my rosacea improves 100% as long as I always wear sunscreen and a visor to shade my face. In the winter I always wear a scarf around my face, making sure nothing but my eyes are showing,because the wind and cold is the worst! And stay away from Hot drinks and soup, I found that really makes it flair up. I just bought a cream that is approved by the National Rosacea Society. Its called Eucerin redness relief, you can buy it at any drug store and it doesnt cost alot. When it comes out of the bottle it’s green but once you apply it, the green goes away. it works really well,seems to take the redness away right away. Believe me I’m a hermit because of Rosacea, but take heart, there are better days ahead. Once you get it under control and know your triggers there will be days you forget you have rosacea. But always take care to baby your skin and protect it. So for now Calm down, and know your not alone.

]]> By: Jo http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-86160 Jo Thu, 12 Jan 2012 22:48:25 +0000 http://rosacea-support.org/faqhtml#comment-86160 Sorry to hear that it's getting you down. Be patient and just try some of the suggestions given above. The best thing you can do is treat yourself to some mineral face powder and a good brush. Something like Bare Escenscuals or Jane Iredale or Bobbi Brown. It really can give good camoflage much better than foundation creams, and is not aggravating to rosacea. Get out there and enjoy yourself the best you can. Most people don't notice it as much as you think and we as individuals are much more self conscious about it. Drink plenty of water and try not to be sad. I always console myself with the facts that other people have much bigger problems. Has your doc diagnosed Rosacea? A 3 month course of anti biotics should help it and then you can try and keep on top of it with some of the prescribed topical skin producats and rosacea skincare products. Good Luck Sorry to hear that it’s getting you down. Be patient and just try some of the suggestions given above. The best thing you can do is treat yourself to some mineral face powder and a good brush. Something like Bare Escenscuals or Jane Iredale or Bobbi Brown. It really can give good camoflage much better than foundation creams, and is not aggravating to rosacea. Get out there and enjoy yourself the best you can. Most people don’t notice it as much as you think and we as individuals are much more self conscious about it. Drink plenty of water and try not to be sad. I always console myself with the facts that other people have much bigger problems. Has your doc diagnosed Rosacea? A 3 month course of anti biotics should help it and then you can try and keep on top of it with some of the prescribed topical skin producats and rosacea skincare products. Good Luck

]]> By: yag http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-86082 yag Thu, 12 Jan 2012 16:38:45 +0000 http://rosacea-support.org/faqhtml#comment-86082 hi fellow suffers! i am still confused as to whether i have rosacea or not! its really upsetting to have rosacea i e if it is! i want to have a free life! i am still in college, i still have my part of enjoyment left but i spend days hiding in my room when my friends go out and enjoy! i am sad! i wish i didnt have it! sob sob! whats a pretty face with rosacea? hi fellow suffers!
i am still confused as to whether i have rosacea or not! its really upsetting to have rosacea i e if it is! i want to have a free life! i am still in college, i still have my part of enjoyment left but i spend days hiding in my room when my friends go out and enjoy! i am sad! i wish i didnt have it! sob sob! whats a pretty face with rosacea?

]]> By: Sequoia http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-85644 Sequoia Tue, 10 Jan 2012 23:30:37 +0000 http://rosacea-support.org/faqhtml#comment-85644 I asked my Dr. about L-lysine and he said to give it a try, couldn't hurt. So I'll start taking 1 aday? They are 1000mg. Maybe 2 aday if that doesnt help. Thank's for all the info and support! This is has been my first time emailing a support group and even though there's not much anyone can do to take Rosacea away, It really does help to know I'm not the only one going through this. I think thats what always bothered me before, not knowing a single person who had it too and could understand what I was going through. Thanks... Have a great face day! I asked my Dr. about L-lysine and he said to give it a try, couldn’t hurt. So I’ll start taking 1 aday? They are 1000mg. Maybe 2 aday if that doesnt help. Thank’s for all the info and support! This is has been my first time emailing a support group and even though there’s not much anyone can do to take Rosacea away, It really does help to know I’m not the only one going through this. I think thats what always bothered me before, not knowing a single person who had it too and could understand what I was going through. Thanks… Have a great face day!

]]> By: Jo http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-85584 Jo Tue, 10 Jan 2012 17:05:34 +0000 http://rosacea-support.org/faqhtml#comment-85584 I think that Alhpa Lipoic Acid is Omega 3 which is in Fish Oils. It has anti inflammatory. I already take fish oil supplements which i think include Omega 3, 6 and 9. On its own I don't think it helps the rosacea but because I think generally I have inflammation in my body which is a contibutory factor with rosacea I think, then I take these supplements too. Glad your skin seems to be improving fingers crossed. I think that Alhpa Lipoic Acid is Omega 3 which is in Fish Oils. It has anti inflammatory. I already take fish oil supplements which i think include Omega 3, 6 and 9. On its own I don’t think it helps the rosacea but because I think generally I have inflammation in my body which is a contibutory factor with rosacea I think, then I take these supplements too.

Glad your skin seems to be improving fingers crossed.

]]> By: Sequoia http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-85407 Sequoia Mon, 09 Jan 2012 23:51:28 +0000 http://rosacea-support.org/faqhtml#comment-85407 Thanks Jo and Barbara, I started using the z-pac yesterday and it seems to be working although it could be that my bumps are disappearing on their own and gearing up for another attack. lol (really not funny) Anyways I looked on line about L-Lysine and it seems to have alot of positive things about it, including helping your bones. But the drawbacks are kidney problems and it could interfere with meds I'm already taking. So I'm going to call the doc tomorrow and see. I went to GNC today and bought a bottle anyways. I talked to the woman who works there and she said alot of people buy it for cold sores, which I already knew, But she also said an elderly woman bought Alpha Lipoic Acid and said it helps to control her rosacea. Did you ever hear of that? I have been using the following lotions and potions for years and through trail and error found they work the best for me: Basis sensitive skin soap, Aveeno ultracalming foaming cleanser and Aveeno ultra calming daily moisturizer. and I couldn't live with out Mary Kay extra emollient night cream. It actully isn't a cream, more like vaseline, but where I live we have very cold winters, so I use it day and night. For some reason it takes the redness, even the swelling down on my face. love it. I do know I can't use any of these new products wih pro-retional ( for wrinkles) I haven't figured out what I'm suppose to do about looking younger! Oh Well, Thanks again, let me know if you've heard of Alpa Lipoic Acid. Bye. Thanks Jo and Barbara,
I started using the z-pac yesterday and it seems to be working although it could be that my bumps are disappearing on their own and gearing up for another attack. lol
(really not funny) Anyways I looked on line about L-Lysine and it seems to have alot of positive things about it, including helping your bones. But the drawbacks are kidney problems and it could interfere with meds I’m already taking. So I’m going to call the doc tomorrow and see. I went to GNC today and bought a bottle anyways.
I talked to the woman who works there and she said alot of people buy it for cold sores, which I already knew, But she also said an elderly woman bought Alpha Lipoic Acid and said it helps to control her rosacea. Did you ever hear of that?
I have been using the following lotions and potions for years and through trail and error found they work the best for me: Basis sensitive skin soap, Aveeno ultracalming foaming cleanser and Aveeno ultra calming daily moisturizer. and I couldn’t live with out Mary Kay extra emollient night cream. It actully isn’t a cream, more like vaseline, but where I live we have very cold winters, so I use it day and night. For some reason it takes the redness, even the swelling down on my face. love it. I do know I can’t use any of these new products wih pro-retional ( for wrinkles) I haven’t figured out what I’m suppose to do about looking younger! Oh Well, Thanks again, let me know if you’ve heard of Alpa Lipoic Acid. Bye.

]]> By: Jo http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-85133 Jo Sun, 08 Jan 2012 20:17:57 +0000 http://rosacea-support.org/faqhtml#comment-85133 L-lysine is an amino acid. I would stick your Doc if he has been helpful. I know when my rosacea has gone out of control Tetracycline has helped me. It seems different treatments work for everyone. Malin & Goetz is made in US so you should be able to get in any of the big stores, you can google it. They sell it SPACE NK Apothecary over here. I am using AVENE anti redness extra gentle cleanser and moisturiser and Mineral Powder makeup which helps confidence. I have also noticed if I drink bad quality wine, particularly white with sulphites then the little red bumps seem to appear! Roaccutane is a retinoid and used for Acne. It can only be prescribed by a consultant dermatologist over here, as you need to have monthly blood tests to check for liver function and it strongly contraindicated in pregnancy. You could try googling the Daily Mail online to read about Laura Tennant and Eve Cameron and how it helped them. GoodLuck L-lysine is an amino acid. I would stick your Doc if he has been helpful. I know when my rosacea has gone out of control Tetracycline has helped me. It seems different treatments work for everyone. Malin & Goetz is made in US so you should be able to get in any of the big stores, you can google it. They sell it SPACE NK Apothecary over here. I am using AVENE anti redness extra gentle cleanser and moisturiser and Mineral Powder makeup which helps confidence.

I have also noticed if I drink bad quality wine, particularly white with sulphites then the little red bumps seem to appear!

Roaccutane is a retinoid and used for Acne. It can only be prescribed by a consultant dermatologist over here, as you need to have monthly blood tests to check for liver function and it strongly contraindicated in pregnancy. You could try googling the Daily Mail online to read about Laura Tennant and Eve Cameron and how it helped them.

GoodLuck

]]> By: Barbara http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-85116 Barbara Sun, 08 Jan 2012 18:21:36 +0000 http://rosacea-support.org/faqhtml#comment-85116 I have been using Mario Badescu's calming cream for the last couple of weeks and it is soooo soothing and has calmed the redness. My metrocream still has not arrived from Planet Pharmacy so I have been unmedicated for at least 6 weeks and if not for the Badescu products (I use the cleanser also) I am sure it would be much worse. There is a line by Rosacea Care that also has wonderful products and great customer service. I am going to try some L-Lysine too. Oh, and Pur Minerals makeup is a great line for hiding that nasty redness! I have been using Mario Badescu’s calming cream for the last couple of weeks and it is soooo soothing and has calmed the redness. My metrocream still has not arrived from Planet Pharmacy so I have been unmedicated for at least 6 weeks and if not for the Badescu products (I use the cleanser also) I am sure it would be much worse. There is a line by Rosacea Care that also has wonderful products and great customer service.
I am going to try some L-Lysine too.
Oh, and Pur Minerals makeup is a great line for hiding that nasty redness!

]]> By: Sequoia http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-85070 Sequoia Sun, 08 Jan 2012 14:39:22 +0000 http://rosacea-support.org/faqhtml#comment-85070 Thanks Jo, I plan to buy the L-lysine at the GNC and give it a try. I'm open for any suggestions at this point. Sometimes I think changing Dr's might help but I've been with this one for 30 years, I'd feel bad. But I plan to write down any info I read to show him and maybe we can figure out what works best. Right now he told me to stop taking minocycline for a week and take zithromax (zpac) thinking this might calm it down. What exactly is L-lysine and is there any side effects? Also can you buy the skin care products (malin and Goetz) here in the US? And what have you heard about Roaccutane? If it works, I'd give it a try, no matter the cost! Thanks for your help, Thanks Jo, I plan to buy the L-lysine at the GNC and give it a try. I’m open for any suggestions at this point. Sometimes I think changing Dr’s might help but I’ve been with this one for 30 years, I’d feel bad. But I plan to write down any info I read to show him and maybe we can figure out what works best. Right now he told me to stop taking minocycline for a week and take zithromax (zpac) thinking this might calm it down. What exactly is L-lysine and is there any side effects? Also can you buy the skin care products (malin and Goetz) here in the US? And what have you heard about Roaccutane? If it works, I’d give it a try, no matter the cost!
Thanks for your help,

]]> By: Jo http://rosacea-support.org/frequently-asked-questions/comment-page-3#comment-85019 Jo Sun, 08 Jan 2012 11:00:03 +0000 http://rosacea-support.org/faqhtml#comment-85019 So sorry that the Finacea has not worked for you Sequoia. I have heard that the Malin & Goetz range of skincare is helpful although I have not tried them myself one of the developers of this range is a fellow rosacea sufferer. I also read an article in the Daily Mail about a rosacea sufferer who had been prescribed ROaccutane, very powerful and very expensive. They don't ordinarily use this in UK but do prescribe it in France. Again i don't know if this is always successful. As I said in a previous email, I have also found taking the amino acid L-lysine x3 a day helpful. You buy it in health food shops. I think a previous comment misunderstood this as an antibiotic. Best of luck. So sorry that the Finacea has not worked for you Sequoia.

I have heard that the Malin & Goetz range of skincare is helpful although I have not tried them myself one of the developers of this range is a fellow rosacea sufferer.

I also read an article in the Daily Mail about a rosacea sufferer who had been prescribed ROaccutane, very powerful and very expensive. They don’t ordinarily use this in UK but do prescribe it in France. Again i don’t know if this is always successful.

As I said in a previous email, I have also found taking the amino acid L-lysine x3 a day helpful. You buy it in health food shops. I think a previous comment misunderstood this as an antibiotic.

Best of luck.

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