Comments on: focus on low-dose accutane http://rosacea-support.org/focus-on-low-dose-accutane.html Where the rosacea community meets to support each other Fri, 19 Mar 2010 01:13:25 +0800 http://wordpress.org/?v=2.9.2 hourly 1 By: shantelle http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-33691 shantelle Tue, 16 Mar 2010 06:29:26 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-33691 Hi all I'm 28 and up until 2 months ago was on low dose Accutane (called Isotane in New Zealand) for just over three years. When i started the medication I was for severe acne (not Rosacea). Bothersome Rosacea-like problems started when I finally stopped taking the medication (being on 1x10mg wk for 2 of 3 years) during the mid summer- massive flushing just on the nose, tiny little pimple outbreaks (again- just on the nose!). Very strange and very very disheartening. Having read Isotretinoin helps Rosacea via this site, i'm a little bit wary- i'm half inclined to say it induced my Rosacea. Now i'm just SO sensitive to sunlight I have to almost hybernate in the summer time. Now I have to have cold dinners and cannot do any exercise to avoid flushing for hours. Has anyone else had this sort of trouble with Isotretinoin once having stopped taking it?? If not I just can't understand why the low-dose medication wouldn't have prevented the start of Rosacea?? Hi all

I’m 28 and up until 2 months ago was on low dose Accutane (called Isotane in New Zealand) for just over three years. When i started the medication I was for severe acne (not Rosacea). Bothersome Rosacea-like problems started when I finally stopped taking the medication (being on 1×10mg wk for 2 of 3 years) during the mid summer- massive flushing just on the nose, tiny little pimple outbreaks (again- just on the nose!). Very strange and very very disheartening. Having read Isotretinoin helps Rosacea via this site, i’m a little bit wary- i’m half inclined to say it induced my Rosacea. Now i’m just SO sensitive to sunlight I have to almost hybernate in the summer time. Now I have to have cold dinners and cannot do any exercise to avoid flushing for hours. Has anyone else had this sort of trouble with Isotretinoin once having stopped taking it?? If not I just can’t understand why the low-dose medication wouldn’t have prevented the start of Rosacea??

]]> By: Kristina B http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-32703 Kristina B Sun, 07 Feb 2010 16:16:26 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-32703 I was told by my derm a few years back that I have a touch of Roasacea. I was experiencing flushing and some redness, sensitivity to products, suncreeens, makeup, face creams etc. I was having the occasional acne lesion and the pore size was getting larger. I started a low dose accutane regime, of 10 mg twice per week. I also did a couple of IPL's and Pulse dye laser for the red areas in the face. All of this has worked wonders for me. My goal was to not have to wear makeup! I also came across some studies of isotretinoins effect on photoaging- apparently it will do a similar job to lasers! Without the fear of things going wrong. I did 4 months of low dose accutane. The dose might have been a bit high for me at 2X10 twice per week, because I had all the side effects with scaling skin dry lips etc, so in retrospect, I should have gone on perhaps half that dose, for a longer period of time. I can now report that I have no need for makeup- pores are gone, even nice skin tone, and the Pulse dye laser and IPL treatments were a great addition! I was told by my derm a few years back that I have a touch of Roasacea. I was experiencing flushing and some redness, sensitivity to products, suncreeens, makeup, face creams etc. I was having the occasional acne lesion and the pore size was getting larger. I started a low dose accutane regime, of 10 mg twice per week. I also did a couple of IPL’s and Pulse dye laser for the red areas in the face. All of this has worked wonders for me. My goal was to not have to wear makeup! I also came across some studies of isotretinoins effect on photoaging- apparently it will do a similar job to lasers! Without the fear of things going wrong. I did 4 months of low dose accutane. The dose might have been a bit high for me at 2X10 twice per week, because I had all the side effects with scaling skin dry lips etc, so in retrospect, I should have gone on perhaps half that dose, for a longer period of time. I can now report that I have no need for makeup- pores are gone, even nice skin tone, and the Pulse dye laser and IPL treatments were a great addition!

]]> By: Joanna http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-30934 Joanna Sat, 24 Oct 2009 05:17:30 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-30934 Ben, I also developed rosacea when I turned 24-25 it's been 4 years and I absolutely hate the flushing interfering with my public speaking. I am always praying not to flush during a presentation and it always happens. The flushing broken capillaries and the extremely oily face is the worst... How I wish to have a nice oily free, flush free skin. I am also considering accutane. Keep us posted! Ben, I also developed rosacea when I turned 24-25 it’s been 4 years and I absolutely hate the flushing interfering with my public speaking. I am always praying not to flush during a presentation and it always happens. The flushing broken capillaries and the extremely oily face is the worst… How I wish to have a nice oily free, flush free skin. I am also considering accutane. Keep us posted!

]]> By: johntissington http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-30607 johntissington Mon, 12 Oct 2009 16:04:23 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-30607 If you haven't tried Finacea give it a go with IPL and LED light. That affords me more control than I ever had with Roaccutane and no side effects. Roaccutane is a very powerful drug and even on low doseage would be a last resort for me. If you haven’t tried Finacea give it a go with IPL and LED light. That affords me more control than I ever had with Roaccutane and no side effects.

Roaccutane is a very powerful drug and even on low doseage would be a last resort for me.

]]> By: ben http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-30604 ben Mon, 12 Oct 2009 11:09:45 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-30604 Hi All, I was on roaccutane (accutane) 9 years ago for acne when i was 16, cleared my skin up amazingly! i remember having dry lips and still to this day have dry lips. However i have now started to develop mild rasacea, redness on my nose cheeks and ears. I hoped on line to see if rosacea is a longtime side affect of roaccutane, but by reading your post it might be that accutane can help me,again. Its as if my skin is trying to become oily again and while doing this making my face red. I used to always have to use moustrier but since getting rosacea i havent needed to. The hardest thing for me is the facial blushing, and being a sales rep is so unbelivably hard. I'm going to see my doctor asap and go on a low dose of roaccutane, thank you to everyone who has posted, it does help when you can read other peoples storys. Hi All, I was on roaccutane (accutane) 9 years ago for acne when i was 16, cleared my skin up amazingly! i remember having dry lips and still to this day have dry lips. However i have now started to develop mild rasacea, redness on my nose cheeks and ears. I hoped on line to see if rosacea is a longtime side affect of roaccutane, but by reading your post it might be that accutane can help me,again. Its as if my skin is trying to become oily again and while doing this making my face red. I used to always have to use moustrier but since getting rosacea i havent needed to. The hardest thing for me is the facial blushing, and being a sales rep is so unbelivably hard. I’m going to see my doctor asap and go on a low dose of roaccutane, thank you to everyone who has posted, it does help when you can read other peoples storys.

]]> By: Mark http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-30182 Mark Mon, 21 Sep 2009 15:28:57 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-30182 Dear lili, I completely understand your frustration!! I'm 31 and have been battling this disease since 24. People have no idea how it affects us emotionally and physically. I find that accutane is the best course of treatment in my opinion. I've tried everything basically since my father is a dermatologist...which makes this even more frustrating because my brothers have perfect skin!! Accutane helps control my redness and burning if I take low dosages. Too high a dosage can increase the symptoms. I'm not going to say my skin is perfect, far from it, but accutane works better than ipl or anyother topical drs give out. I only wish my skin would heal quickly but accutane delays this. And a low dosage allows you to have some exposure to the sun unlike high dosages, just use sunscreen. Lastly, I'm sure you are gorgeous and any guy would be lucky to date you!! All the best Dear lili,
I completely understand your frustration!! I’m 31 and have been battling this disease since 24. People have no idea how it affects us emotionally and physically. I find that accutane is the best course of treatment in my opinion. I’ve tried everything basically since my father is a dermatologist…which makes this even more frustrating because my brothers have perfect skin!! Accutane helps control my redness and burning if I take low dosages. Too high a dosage can increase the symptoms. I’m not going to say my skin is perfect, far from it, but accutane works better than ipl or anyother topical drs give out. I only wish my skin would heal quickly but accutane delays this. And a low dosage allows you to have some exposure to the sun unlike high dosages, just use sunscreen. Lastly, I’m sure you are gorgeous and any guy would be lucky to date you!! All the best

]]> By: Lili http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-29774 Lili Tue, 18 Aug 2009 22:25:00 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-29774 Hi everyone, I've been diagnosed with rosacea 3 years ago when I was 25. It really took some of my best years away from me. Mine started like Jan's. I went to a lake for a day and maybe because of too much sun and heat, got a really swollen skin, exactly as Jan said, leather-like and very thin...and there came the pores on my cheeks which never existed before (literally overnight!) and enlarged pores on my nose. I cant tell you the number of days and hours I cried over this. and I still do from time to time whenever I think that nobody in this world would date me in this skin. Anyway, topical creams/lotions did not work on me, and doxy doesnt do much either. I did IPL more than 8 times, used the method that Dr. Soldo recommended (although couldnt go to Arizona to go to him). It did ABSOLUTELY NOTHING!! Let me tell you one thing though: Filter the water you wash your face with and shower! It makes a big difference! It of course does not decrease the size of my huge pores, but the redness and irritation occur much less. I'm also considering to take accutane, but some of these messages scared me, could it make it worse? Has anyone on this board has seen a reasonably long-lasting improvement being on low-dose accutane? I'm very disappointed at dermatologists. It sounds like as long as you dont have a cancer, it does not matter what quality of life you live in!! Is that why there is so little research on rosacea??? Hi everyone,
I’ve been diagnosed with rosacea 3 years ago when I was 25. It really took some of my best years away from me. Mine started like Jan’s. I went to a lake for a day and maybe because of too much sun and heat, got a really swollen skin, exactly as Jan said, leather-like and very thin…and there came the pores on my cheeks which never existed before (literally overnight!) and enlarged pores on my nose. I cant tell you the number of days and hours I cried over this. and I still do from time to time whenever I think that nobody in this world would date me in this skin. Anyway, topical creams/lotions did not work on me, and doxy doesnt do much either. I did IPL more than 8 times, used the method that Dr. Soldo recommended (although couldnt go to Arizona to go to him). It did ABSOLUTELY NOTHING!! Let me tell you one thing though: Filter the water you wash your face with and shower! It makes a big difference! It of course does not decrease the size of my huge pores, but the redness and irritation occur much less.

I’m also considering to take accutane, but some of these messages scared me, could it make it worse? Has anyone on this board has seen a reasonably long-lasting improvement being on low-dose accutane?

I’m very disappointed at dermatologists. It sounds like as long as you dont have a cancer, it does not matter what quality of life you live in!! Is that why there is so little research on rosacea???

]]> By: David Pascoe http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-29489 David Pascoe Wed, 05 Aug 2009 03:03:59 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-29489 Hi Lisa, Have you asked your doctor about trying a lower dose than 40mg a day ? You might find that the side effects are much reduced and the benefits still persist. Low dose accutane is considered to be around 10mg a day. davidp. Hi Lisa,

Have you asked your doctor about trying a lower dose than 40mg a day ? You might find that the side effects are much reduced and the benefits still persist. Low dose accutane is considered to be around 10mg a day.

davidp.

]]> By: Lisa B http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-29488 Lisa B Wed, 05 Aug 2009 02:40:46 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-29488 I have rosacea on my nose, above my upper lip and on my chin. Basically looks like I'm wearing a muzzel. i've been fighting my roscea for 20 years and find most things work for a little while although I'm fine with being on a lower dose of accutane (or generic) the rest of my life. It's better then just taking more and more antibiotics. I've been doing the accutane for about 6 weeks now 40 mg.a day and my Rosacea type acne and (coldsores/feverblisters) have been eliminated since the third day. My side effects are getting to me. My lips were really raw and i knew the inside of my nose looked like my lips. it's continuly peeling and bloody and i have to breath out of my mouth which is drying out my lips more. Also my eyes are swollen and tear all the time. Had to quit wearing pierced earings as the wholes seem to be infected and I had a bad reaction to a metel neckless on my chest broke out and it got oily. When ever i would get a cold sore it would trigger a break out but dems refused to believe there was a connection. Now both are gone hmmmm Also forget the IPl i did two rounds two or three years apart. I cried through the whole process it was so painfull not to mention what it did to my pocket book and no positive results, but that's for someone with it on nose and chin. maybe better for those on cheeks I have rosacea on my nose, above my upper lip and on my chin. Basically looks like I’m wearing a muzzel. i’ve been fighting my roscea for 20 years and find most things work for a little while although I’m fine with being on a lower dose of accutane (or generic) the rest of my life. It’s better then just taking more and more antibiotics. I’ve been doing the accutane for about 6 weeks now 40 mg.a day and my Rosacea type acne and (coldsores/feverblisters) have been eliminated since the third day. My side effects are getting to me. My lips were really raw and i knew the inside of my nose looked like my lips. it’s continuly peeling and bloody and i have to breath out of my mouth which is drying out my lips more. Also my eyes are swollen and tear all the time. Had to quit wearing pierced earings as the wholes seem to be infected and I had a bad reaction to a metel neckless on my chest broke out and it got oily. When ever i would get a cold sore it would trigger a break out but dems refused to believe there was a connection. Now both are gone hmmmm Also forget the IPl i did two rounds two or three years apart. I cried through the whole process it was so painfull not to mention what it did to my pocket book and no positive results, but that’s for someone with it on nose and chin. maybe better for those on cheeks

]]> By: Jo http://rosacea-support.org/focus-on-low-dose-accutane.html/comment-page-1#comment-27858 Jo Tue, 12 May 2009 01:32:02 +0000 http://rosacea-support.org/focus-on-low-dose-accutane.html#comment-27858 Hi, If you are taking Accutane ( at any dose), you want to look into and discuss with your doctor, two supplements that help support liver function. They are "stabilized R-alpha Lipoic acid" and "Milk Thistle" ( silymarin). Both are considered very safe and are used by some physicians for various issues. ...for what it's worth. Hi, If you are taking Accutane ( at any dose), you want to look into and discuss with your doctor, two supplements that help support liver function. They are “stabilized R-alpha Lipoic acid” and “Milk Thistle” ( silymarin).

Both are considered very safe and are used by some physicians for various issues.

…for what it’s worth.

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