Demodex Mites Treatment

Written by on August 24, 2007 with 261 Comments

From: “Annette Anderson”
Date: Fri Nov 24, 2000 10:59 am
Subject: Effective treatment ?

Hi, I’m new to this group.

I sought you out to share a treatment approach with you that has worked for me very well, and since then has also helped a number of others.

I’m a family doctor in Canada; I was diagnosed with rosacea 2 years ago. My symptoms were deep-red flushing with any exercise,warm environment such as a hot shower, sunny day, also when crying ( PMS :) ), alcohol etc. I looked awful, like Rudolf the red-nose raindeer. Of course I was prescribed Metrogel, took it faithfully, but wasn’t impressed. I didn’t yet have the papules or telangiectasias ( permanently dilated spidery arteries ), but I sure didn’t want to let it go that far. It was also getting worse rapidly. My doctor gave me the usual spiel, how rosacea is incurable, just avoid trigger factors, etc. Well, I was upset. I struck out on my own so to speak and hit the net. I found a lot of research articles on rosacea, including on medical mebsites for doctors only, such as “mdconsult.com” , where I found the most relevant ones. The first interesting article I came across was about several children with leukemia, who developed a rosacea-like rash ( as you know, rosacea is an “adult” disease ). Skin biopsies showed — you guessed it— huge loads of the skin mite Demodex Folliculorum. Alright, I just had to emphazise this. :)

They treated the kids with standard anti-mite treatment, permethrin, same we use to treat the mother of all mites, Scabies . The rash cleared. I thought, aha, gotta look at more articles like this. Turns out, there were quite a number of small, independent medical studies, where skin biopsies showed rosacea patients had a much higher than usual load of the generally benign mite demodex folliculorum ( I’ll attach some studies as examples ).

So, I tried the treatment on myself. I used Kwellada on my face ( not supposed to do this as per instructions on the bottle ” use neck down ” ). I worked out that a once – weekly application ( leave on 24 hours ) does the trick.

** Please note the complete treatment instructions following below .

After 2 months I noticed steady improvement, slow but very steady. First I thought, when it was all gone , I didn’t have to use the Kwellada anymore, but in the meantime I found out I still have to do it every 3 weeks or so for maintenance, usually as soon as my nose starts up again. I measured the intitial steps of improvement by how red my face would get after a hot shower. The intensity of the redness gradually diminished, and the total area involved contracted. First, it was the cheeks,forehead, chin and nose, lastly just the nose ( Rudolf ) , then that went , too. Basically, over a total of six months, all of the symptoms completely disappeared ! And stayed away, with the maintenance treatments, for the last eight months..

Boy, was I excited about this. I had proved my original theory. Well, not a new theory, according to those studies I mentioned, but I also haven’t heard of a regular patient with rosacea being treated for the mite problem, only for the secondary bacterial problem, with antibiotic ointments such as Metronidazole (Metrogel) etc. Then I started to try it out on my patients ( it seemed that all of a sudden nearly everyone had rosacea—–selective perception is an interesting phenomenon…). So far, it worked on all but one (total patients so far 21) . I have heard things like my patients’ hairdresser tried it too and had good results. Things like that. I always say, it might NOT work, but what have you got to lose ?

The treatment is simple, available over the counter (in Canada at least), cheap ( one bottle of Kwellada lotion, i.e. Permethrin 5% , lasted me exactly a year. ), and side effects are rare and minimal —permethrin for scabies can be used even on infants ! Getting it in the eyes is not fun, it burns like heck.

I have also found studies linking demodex to animals. One study was of a boy and his dog. The boy had a rosacea-like rash, and both he and his dog were heavily loaded with demodex. Treatment for both eliminated their problem. Since then I found out that most patients with rosacea get in close contact regularly either with their own cats/dogs or with those of friends and family. I don’t want to cause undue concern about pets, but I have to report my observations.
In any case it would probably not be too difficult to treat the pets as well, on and off.

I think it’s probably impossible to eliminate the demodex from one’s environment, just like it’s pretty hard to get rid of scabies forever, unless it was picked up on one’s travels .If it developed at home, it often recurs eventually.

Therefore I think that if the original treatment works, maintenance treatments are the way to prevent recurrences.

I would like to send my self-concocted treatment outline to you to review and possibly to try it out.

As I said there are no guarantees it will work at all, and side effects are always a certain possibility….but there’s not too much to lose. And I would be absolutely ecstatic if it worked for you, too.

I would like to ask you, that if you want to try the treatment, please fill out the questionnaire pre-treatment, as outlined in the following pages. I haven’t yet had time to think up the 6 months follow -up questionnaire, but PLEASE PLEASE PLEASE , if the treatment works for you, also fill out the 6-months follow-up questionnaire for me, I’ll send it some other time. I would like to gather these data and maybe eventually publish a summary of the results in a G.P. medical magazine. ( The big magazines like dermatology etc. only accept scientifically and statistically sound research studies, which I found out cost upwards of 50,000 $, which I can’t afford. Organizing a study through a research agency would take about 5 years to do !). Also, of course , I would really like to know about any side effects, or if it doesn’t work for someone, even when following the once-weekly treatment guideline. I am also interested in knowing if you have pets in your lives somewhere. That would be so very much appreciated.The icing on the cake would be “before” and “after six months ” close-ups of your face, with the eyes blocked out if you want. I would love some of those, if it worked, of course.

Good luck, I hope you’ll give it a shot. Remember, I’ll append some relevant articles at the end of this, to verify that I didn’t dream this up.

For the treatment outline I use in my practice, the “ingredients” are as follows ( I’m giving you the real names because you already know you have rosacea.

A = Kwellada shampoo
B = Kwellada lotion (5% Permethrin)
C = Sulfacet face cream or equivalent antibiotic cream

DR. ANNETTE ANDERSON, B.A., M.D.

FAMILY PHYSICIAN

(Address withheld for people outside my medical group)

RE: ROSACEA STUDY

I am looking for patients with a one year + history of chronic recurrent rosacea, for a small study (N=50) involving a new treatment method . The aim is to substantially reduce symptoms. There are no guarantees, but so far, positive results.

The premise of the study is that rosacea may be caused or aggravated by an over-abundance of a mite called DEMODEX FOLLICULORUM. This mite is a common organism found in skin follicles, but in some people it overgrows, attracting bacteria which cause inflammation and the symptoms of rosacea.

Typically, rosacea develops in several stages ( not all people with rosacea go through all stages) . These stages are:*

  • Flushing: periodic reddening of the face, aggravated by various trigger factors, such as hot showers ,emotional upset, alcohol, PMS, etc.
  • Inflammatory lesions: papules, pustules (pimples)
  • Edema may be present ( swelling over affected areas)
  • Telangiectasias may be added with time ( dilated blood vessels)
  • Ocular rosacea may occur (burning, stinging,tearing etc. of the eyes)
  • Rhinophyma may sometimes occur in the advanced stages in men ( red, swollen nose)

Rosacea is a clinical diagnosis, i.e. based on appearance and history alone.There are no blood tests to confirm or refute the diagnosis. It is important to see how the symptoms behave when the condition is treated appropriately.

So far, the assumption is, and experience seems to show, that rosacea cannot be cured, only controlled with creams or gels. These are typically antibiotic based, such as Metrogel (reg. TM). Sometimes,oral antibiotics are also used and can be quite effective for treating an acute flare-up. Of course, it is also important to avoid trigger factors.

However, this small study, (as other similar ones ), tries to illustrate that one should also attempt to treat for the mite DEMODEX FOLLICULORUM, in order to achieve better, and more lasting results. This concept is based on a review of some of the available literature/studies.**

Basically, it might seem that DEMODEX can overgrow, attracting bacteria in the process.It may be that certain substances such as lipases result in the release of irritant fatty acids, which in turn lead to the observed skin changes.

So far, the antibacterial-based treatments reduce the bacterial, but not the DEMODEX load. So, the underlying problem, the DEMODEX ,causes further flare-ups eventually, and the whole process repeats itself.

ABOUT THE STUDY:

  • Treatment is of a six months total duration.
  • Topical mite therapy is in the form of cream and shampoo, plus oral antibiotics if a heavy bacterial load seems to be present also.
  • Patients may continue own treatments during study.
  • Short questionnaires, time 0 and 6 months, in conjunction with office visits.
  • Patients are requested to supply a copy of the dermatology consult originally diagnosing rosacea.
  • Please, no patients with body-dysmorphic disorder, history of anti-social behavior, unstable psychiatric conditions, or severe self-image problems.
  • Please ask any interested rosacea patient to call my office to set up an appointment for the first visit/questionnaire.

Kind regards,
Annette Anderson, B.A., M.D.

* From: ROSACEA, a Guide For Physicians, Jonathan Wilkin,M.D.


ROSACEA TREATMENT TRIAL
Patient name: ______________________________
Patient’s GP: ______________________________
Date: ______________________________

QUESTIONNAIRE

* How long have you had rosacea? __________________________

* Did a dermatologist diagnose it, or confirm the diagnosis? Please provide a copy of the consultation letter from your GP’s
records.* Does anyone else in your family have rosacea?_____________________

* How much does your rosacea bother you, on a scale from 0 (not at
all) to 10 (unbearable)? ________________________

* Please list the factors that consistently seem to contribute to a
flare-up of your rosacea:______________________________

* Please tick off any factors you think might also act as triggers
for a flare-up ( if any) :
_____ hot rooms / hot showers / hot beverages
_____ caffeine
_____ alcohol
_____ sun/wind
_____ for women: PMS
_____ exercise
_____ dairy products
_____ emotional upset / crying
_____ chocolate
_____ spicy foods
_____ medications :(which ones)
_____ creams (which ones, eg. cortisone)
_____ natural herbs/supplements (which ones)
_____ cosmetics (eg. alcohol-based lotions, witch hazel, oil-based make-up… ,
which ones ______________________________

* Your rosacea usually consists of:

_____ generalized redness/flushing of the :
_____ cheeks
_____ chin
_____ nose
_____ forehead
_____ both cheeks and nose
_____ all of the above
_____ other
_____ redness/flushing plus pimples (papules, pustules)
_____ pimples only
_____ swelling over some areas of facial skin
_____ tiny, permanently dilated red blood vessels (telangectasias)
_____ eye irritation, such as intermittent burning, tearing etc.
_____ reddened, enlarged nose

* On average, how often do you get a major flare-up of rosacea?

* Which treatments ( creams or pills ) have you tried so far, and briefly mention the results:

TREATMENT RESULT

* Have you had any side-effects to these treatments?

* How effective have these treatments been in the reduction or elimination of your rosacea symptoms?

(a) not at all (b) somewhat effective (c) moderately effective (d) very effective

* Do you have any allergies?

* Are you willing to try another treatment for rosacea?

* This treatment is in a trial phase, i.e., has not yet been proven to be effective. There is no guarentee that it will work, although a number of people in my practice have tried it, and have had good results with it.

* The core ingredients used in the treatment are available over the counter. If you have allergies precluding you from using these ingredients, we might be able to find alternatives .

B) THE TREATMENT

OUTLINE

You will be asked to use three creams. ( Called for now “A, B, and C”. You will be advised of the names of these products upon receipt of the consultation report which diagnosed you as actually having rosacea, versus another skin condition. It is important for treatment success to establish the correct diagnosis.)

In order to improve the chances of success, I will suggest several additional measures, as outlined below. These are optional, but recommended.

TREATMENT PLAN

Choose a day when you are free from work or other obligations. You will need treatments A, B,and C . If you choose to follow the steps described as optional, you will also need laundry detergent, anti-mite spray, a plastic mattress cover, and a good vacuum cleaner.

1) In the morning, have a thorough whole-body cleanse.

2) Use A as a shampoo, as directed on the bottle.

3) Then, use B. Apply thoroughly to your face, neck, ears, and downwards to cover each inch of skin including feet and toes. Avoid mucus membranes, lips and eyes. Let dry for ten minutes, then put on clothes. Leave on for twenty-four hours.

Note: After several hours, you may note tingling or burning on your face in the distribution of your rosacea. This would feel worse when exposed to cold air. If needed, take two Tylenol tablets to decrease the discomfort. Try to persist with the treatment, unless the discomfort is severe (which has not happened to anyone yet).

4) Optional:

Wash all your clothes and bedding in as hot water as allowed by their labels.

Spray your furniture with an anti-mite/anti-scabies spray (available at any pharmacy)

Put a plastic mattress- cover on your mattress.

Vacuum your carpets thoroughly.

5) After twenty-four hours, wash off treatment B thoroughly, using a mild cleansing lotion (e.g. Cetaphil) , a mild soap ( e.g. Dove), or equivalent , not based on alcohol or witch hazel.

Towel off.

Apply treatment C to your face, covering every inch of skin including ears. On the rest of your body, you may use any lotion of your choice.

If your face feels quite dry and uncomfortable, after one hour you may apply a small amount of a high- quality moisturizer on top of C.

6) From now on, twice a day, wash your face thoroughly with warm water and a gentle soap (eg. Dove etc.), and then apply C. Leave C on during the day. Dab off any excess oilyness with a Kleenex. For women: you may apply a small amount of oil-free make-up on top of C, although it may compromise the treatment to some degree. (Unknown)

7) Once a week, repeat steps 3 ( this time, on the FACE only) and 5 for the rest of the six months ,or as long as needed , closely monitoring for side effects .

You may have noted some improvements in your rosacea after two months or so. Mostly, this would be noticeable through less frequent episodes of flushing, which might also be less severe. The dilated blood vessels in your face (which cause the redness) should slowly shrink further. This takes time!

The triggers you listed above may still cause flare-ups, but these should become less often and less noticeable as the blood vessels in your face keep going back to normal. It is still important to try and avoid these triggers, to let the blood vessels shrink. You might notice that the diameter of the total area involved is contracting.

In addition to the above, you might be prescribed an oral antibiotic to take, depending on the severity of your condition. This would be useful especially in the presence of a lot of pimples, which is the same concept applied in the treatment of acne. Acne also involves an overgrowth of bacteria, as in rosacea.


The significance of Demodex folliculorum density in rosacea. Erbagci Z – Int J Dermatol – 1998 Jun; 37(6): 421-5, Department of Dermatology, Faculty of Medicine, Gaziantep University, Turkey.Authors: Erbagci Z; Ozgoztasi O

BACKGROUND: Demodex folliculorum has been reported in rosacea in a number of clinical studies. As the Demodex mite is also present in many healthy individuals, it has been suggested that the mite may have a pathogenic role only when it is present in high densities. Moreover, some authors have proposed that a mite density above 5/cm2 may be a criterion for the diagnosis of inflammatory rosacea. In this study, the possible role of D. folliculorum and the importance of mite density in rosacea were investigated using a skin surface biopsy technique.

METHODS: Thirty-eight patients with rosacea and 38 age-and-sex-matched healthy subjects entered the study. With the skin surface biopsy technique, we obtained samples from three facial sites. We then determined the mite positivities, the mean mite counts in both study groups, the mean mite densities at each facial site and in the rosacea subgroups, and the mite densities above 5/cm2.RESULTS: The mean mite count in the rosacea group (6,684) was significantly higher than that in controls (2,868; p < 0.05). The cheek was the most frequently and heavily infested facial region. Ten rosacea patients and five normal subjects had mite densities over 5/cm2; the difference was not statistically significant (p > 0.05).

CONCLUSIONS: Rosacea is a disease of multifactorial origin, and individual properties may modify the severity of the inflammatory response to Demodex. We suggest that a certain mite density is not an appropriate criterion in the diagnosis of the disease; nevertheless, large numbers of D. folliculorum may have an important role in the pathogenesis of rosacea, together with other triggering factors.

Major Subjects:
.. Acne Rosacea / * Diagnosis / Pathology / * Parasitology
.. Facial Dermatoses / * Diagnosis / Pathology / * Parasitology
.. Mite Infestations / * Diagnosis / Pathology / * Parasitology


A study on Demodex folliculorum in rosacea. Abd-El-Al AM – J Egypt Soc Parasitol – 1997 Apr; 27(1): 183-95, Journal of the Egyptian Society of Parasitology, Author Affiliation: Department of Dermatology, Faculty of Medicine, Al-Azhar University, Nasr City, Cairo.Authors: Abd-El-Al AM; Bayoumy AM; Abou Salem EA

A random sample of 16 female patients suffering from papulopustular rosacea (PPR) as well as (16) normal female healthy subjects as control group were adopted in this study to assess of Demodex folliculorum pathogenesis. It was done through determination of mite density using a standard skin surface biopsy 10.5 cm2 from different designated 6 areas on the face, and scanning electron microscopic study (SEM) as well as total IgE estimation. A trial of treatment using Crotamiton 10% cream with special program was also attempted. All subjects ranged between 35-55 years old. All patients with rosacea and 15 of the control group i.e. 75.93% were found to harbour mites. The mean mite counts by site distribution were 28.6 & 6.9 on the cheeks, followed by 14.5 & 3.0 on the forehead and lastly 6.8 & 0.8 on the chin in PPR and control groups respectively. The total mean mite count in patients was 49.9 initially and 7.9 after treatment. In the control group it was 10.7 & 10.6 respectively. The mean total IgE was 169.4 & 168.4 and 96.3 & 98.4 in PPR and control groups respectively Light and scanning electron microscopy revealed that all mites were pointing in one direction. Some of them were containing bacteria inside their gut and on their skin. After treatment 3 cases (18.75%) were completely cured, 10 cases (62.5%) gave moderate response while 3 cases (18.75) have no response. In conclusion, this study supports the pathogenic role of D. folliculorum in rosacea.

Major Subjects:
.. Acne Rosacea / Drug Therapy / * Parasitology
.. Mite Infestations / * Complications / Drug Therapy
.. Mites / * Growth & Development / Ultrastructure

Additional Subjects:
.. Adult, Animal, Antipruritics / Therapeutic Use, Female
.. Hair Follicle / Parasitology / Ultrastructure, Human, .. IgE / Analysis
.. Insecticides / Therapeutic Use, Microscopy, Electron, Scanning
.. Middle Age, Toluidines / Therapeutic Use

Chemical Compound Name:
(Antipruritics); (Insecticides); (Toluidines); 37341-29-0 (IgE); 483-63-6 (crotamiton)


 

Demodicidosis in childhood acute lymphoblastic leukemia; an opportunistic infection occurring with immunosuppression. Ivy SP – J Pediatr – 1995 Nov; 127(5): 751-4, Author Affiliation: Department of Pediatrics, Children’s National Medical Center, Washington, DC 20010, USA.Authors: Ivy SP; Mackall CL; Gore L; Gress RE; Hartley AH

We report demodicidosis in 11 children with acute lymphoblastic leukemia and a mildly pruritic, erythematous papular dermatitis that developed in areas rich in sebaceous glands. Dermodex eruptions were safely and effectively treated with 5% permethrin. Proliferation of commensal parasites of the skin, Dermodex folliculorum and Dermodex brevis may be an opportunistic infection of the skin in the immunocompromised host; the expected abrogation of cell-mediated immunity secondary to lymphocyte depletion predisposes some children given chemotherapy for leukemia to mite proliferation.


1. Bonnar E, Ophth MC, Eustace P, et al. The Demodex mite population in rosacea. J Am Acad Dermatol 1993;28:443-8.
2. Hoekzema R, Hulsebosch HJ, Bos JD. Demodicidosis or rosacea: What did we treat? Br J Dermatol 1995;133:294-9.
3. Shelley WB, Shelley ED, Burmeister V. Unilateral demodectic rosacea. J Am Acad Dermatol 1989;20:915-7.
4. Forton F, Seys B. Density of Demodex folliculorum in rosacea: a case-control study using standardized skin-surface biopsy. Br J Dermatol 1993;128:650-9.
5. Mateo JR, Guzman OS, Rubio EF, et al. Demodex- attributed rosacea-like lesions in AIDS. Acta Derm Venereol 1993;73:437.
6. Ashack RJ, Frost ML, Norins AL. Papular pruritic eruption of Demodex folliculitis in patients with acquired immunodeficiency syndrome. J Am AcadDermatol 1989;21:306-7.
7. Dominey A, Rosen T, Tschen J. Papulonodular demodicidosis associated with acquired immunodeficiency syndrome. J Am Acad Dermatol 1989;20:197-201.
8. Banuls J, Ramon D, Aniz E, et al. Papular pruritic eruption with human immunodeficiency virus infection. Int J Dermatol 1991;30:801-3.
9. Sahn EE, Sheridan DM. Demodicidosis in a child with leukemia. J Am Acad Dermatol 1992;27:799-801.
10. Dominey A, Rschen J, Rosen T, et al. Pityriasis folliculorum revisited. J Am Acad Dermatol 1989;21:81-4.
11. Jimenez-Acosta F, Planas L, Penneys N. Demodex mites contain immunoreactivelipase. Arch Dermatol 1989;125:1436-7.


Demodex and Eye Disease

Blepharitis. Demodex folliculorum, associated pathogen spectrum and specific therapy, Demmler M – Ophthalmologe – 1997 Mar; 94(3): 191-6, Augenklinik, Universitat Munchen., Demmler M; de Kaspar HM; Mohring C; Klauss V

Original Title: Blepharitis. Demodex folliculorum, assoziiertes Erregerspektrum und spezifische Therapie.

Demodex folliculorum has been demonstrated with an elevated frequency in patients with blepharitis, and is thought to cause therapy-resistant blepharitis. This paper presents the germ spectrum of patients with blepharitis and demodex and discusses the efficiency of a specific therapy.

METHODS: In all, 3152 cilia from 139 patients with blepharitis (38% blepharitis, 44% blepharoconjunctivitis, others) and 108 persons with quiet eyes were examined for demodex. Smears n = 125, from the conjunctive of symptomatic patients were investigated for bacteria, 3 weeks of therapy with mercury ointment, 2%: Lindan, cortisone (prednisolone, dexamethasone, hydrocortisone, fluorometholone) or antibiotics after antibiogram (gentamicin, kanamicin, neomicin, erythromicin, ofloxacin, polymyxin-B, colistin) followed in all Demodex-positive blepharitis patients (n = 41).

RESULTS: Demodex was found in 52% (62/139) of patients with chronic blepharitis, as against 20% (3/15) of those with acute blepharitis (statistically significant difference, chi 2-test, alpha = 2.5%) and in 29% of quiet eyes (statistically significantly less, alpha = 2.5%, chi 2-test). Gram-positive cocci were isolated from 79% of 57 Demodex-positive patients with blepharitis and 72% of 68 Demodex-negative patients anaerobes in 39% and 37%, gram-negative rods in 11% and 3% (statistically significant difference for gram-negative rods, alpha = 5%, chi 2-test). Of the patients with Demodex, 25% apparently had no more parasites after mercury ointment, 2% (n = 8 ) and lindan (n = 5) and 15% after cortisone and antibiotics (n = 13). (The best and statistically very significant results (alpha = 1%) were those obtained with mercury ointment, 2%, and lindan: t-test for connected spot checks).

CONCLUSIONS: Gram-positive and gram-negative bacteria grew more often in patients with Demodex. Demodex seems to be a mediator of chronic blepharitis; we recommend that mites be sought in cilia of chronic blepharitis patients. Mercury ointment, 2% and lindan proved efficient for specific therapy, the main problem being the laborious application and toxicity.

Major Subjects:
.. Blepharitis / * Diagnosis / Drug Therapy / Etiology
.. Mite Infestations / Complications / * Diagnosis / Drug Therapy

Additional Subjects:
.. Administration, Topical,
.. Anti-Inflammatory Agents, Steroidal / Administration & Dosage
.. English Abstract, Female, Human, Lindane / Administration & Dosage
.. Male, Mercury Compounds / Administration & Dosage, Middle Age
.. Prospective Studies

Chemical Compound Name:
(Anti-Inflammatory Agents, Steroidal); (Mercury Compounds); 58-89-9 (Lindane)


Okay, that’s enough for today. Please let me know what you think about this.
Annie

Followup Email

From: “Annette Anderson” <andersona@telus.net>
To: “Rosacea-Support” <rosacea-support@egroups.com>
Subject: Unsubscribe please/Bye
Date: Fri, 1 Dec 2000 11:53:17 -0800

Hi,
I’ve enjoyed my stay here.

I was very sorry, though, that Rachelle had a very bad reaction to the
treatment I proposed, although she did say she’s very sensitive to start with.
Something good may have come out of this as she found a wonderful protocol of
natural ingredients to attack the mite. If one has a choice, of course, natural
treatments are always preferable.

Unfortunately I can’t keep up with reading all my messages from you and others,
so I’ve done “my hit and run “. As I am free of any and all rosacea symptoms
now, I’m concentrating on my other area of interest, insulin resistance.
If any of you would like to write to me about my area of special interest,
Demodex folliculorum and rosacea, please write to
andersona@telus.net

Good luck to all of you and thanks for the great ideas.
Annie

More Information

For more information see how to kill demodex mites and also ocular demodex, tea tree oil as a treatment.

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About the Author

About the Author: David Pascoe started the Rosacea Support Group in October 1998. .

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261 Reader Comments

  1. mary says:

    Stromectol will kill it all…if you have this and it really was diagnosed then not to have given you this med is malpractice…so go to TN.

  2. David Bourke says:

    @ mary – demodex is rare? Is that so? Well, let me tell you just how rare demodex mites are: every single human being on the planet has them. Except for newborns, who soon pick them up from their mothers.

    Demodicosis of the head is a recognised medical condition:

    http://emedicine.medscape.com/article/1203895-overview
    http://www.jcadonline.com/demodex-dermatitis-a-retrospective-analysis-of-clinical-diagnosis-and-successful-treatment-with-topical-crotamiton/

    Delusional is defined as “an idiosyncratic belief or impression that is firmly maintained despite being contradicted by what is generally accepted as reality or rational argument, typically a symptom of mental disorder.”

    I suggest you look in the mirror.

    Madam, you are a bully and a blusterer – and an ignoramus to boot. Kindly acquaint yourself with factual information before you post here again.

  3. mary says:

    no, not every human has them at all and neither do you most likely…trichostasis spinulosa is more like it …over production of sebaceous fluid causing the vellum hair to stuff up the pore and then sweat glands to become involved with no clearance…a vicious circle….I suggest you read the delusional part of your response Mr Bourke…

    odd that no answer as to travel and location etc…latin America can offer you leprosy too…

    if you have mites then take an oral dose of stromectol…good luck…it should deworm as well so it is a two for one …

    Jeane could have scabies.

  4. mary says:

    watch out for eyelash mites Dave :)

    bite me.

  5. mary says:

    still no answer to travel and locale…go figure.

    over and out
    r2d2

  6. mary says:

    metrogel works on amoeba (sp) and it is unlikely to help with the condition. active ingredient given commonly for giardia…dude

  7. Tblevins says:

    Mary, what is your profession?

  8. mary says:

    Blevins, SSS contains amaranthus caudtus(sp) and this was an ancient Chinese herbal for chicken pox, takes down swelling and has anti-bacterial properties. a good doc to see is McDaniel in Nashville, TN. (Brentwood)

    Yes, Jeanne may have experienced some relief from an aggravated condition from SSS – not a miraculous cure. Not much one can do about trichostasis spinulosa…keep down swelling and infection. Laser perhaps

    Luke Skywalker

    I am an astronaut.

  9. Connie says:

    I wish I could visit Dr. McDanials in TN but I live too far away. All my Dermatologist appointments have ended with no diagnoisis. If I bring up the Demodex mite theory they look at me with disbelief. They tell me not to get on line. I have improved greatly these last several months. I took the sugestion from Dave P. on taking the borax / peroxide bath. I beleive that really helped the itching. Tblevins happy to hear you are doing good. If you are on antibotics be sure to take probiotics. The antibiotic kills your good bacteria as well as the bad. Of course ask your Doctor. I am still taking my probiotic on the advise of my functional Dr. who I have turned to instead of Dermatologists. Keep me updated.

  10. mary says:

    horrible problem related to hair follicles…the hairs you have aren’t wicking (sp) away the sweat so you have a “mud” build up in the pores a little like adobe (hair, sebum, sweat) ew. The hair is made of a nonporous substance or is too fragile and dissolves into the pore when wet.

    a kaolin face mask to absorb sebum if your skin can take it and laser perhaps…terrible disease related to hair…don’t irritate the surface too much. It is a mess of a disease. get into a better environment…

  11. Tblevins says:

    Connie, yes I am doing probiotics, 10 billion active cultures–lol. Mary, an astronaut? Interesting….

  12. Althewineguy says:

    It is interesting to read all the comments over the past few days—-I use to participate in this blog site several years ago but it seemed to have gone dormant.
    For the disbelievers: I have done a fair amount of Googling research with results from all over the world, particularly China (where they want to sell you all kinds of remedies) and I have come to the conclusion that few people experience the severe Demodex Mite infestation that I do. That perhaps is the reason many do not believe people who maintain that they have a “Demodex Mite” problem.
    My dermatologist for some 40 years now (mostly due to slight-moderate Psoriasis and Basel cell problems) had for years refuted my claims of a mite problem. Demodex was not in his vocabulary. Then after some persuasion he took scrapings from the pustule-like bumps along my hairline at the back of my neck. Yes, the scraping contained living – moving mites. He suggested the mites, although normally hidden in the hair follicles had actually built –what?–nests under the skin? where they lay eggs which continue to exacerbate the problem.
    He then prescribed a prescription of Permethrin Cream and instructions on applications. This was the first real relief I had experienced in years.
    I realize that few people have the sensitivity to the mites that I have. I cannot sit in an upholstered couch or chair. I have to use featherless pillows and hypoallergenic mattress covers. I have to apply the Permethrin Cream weekly, as in spite of the killing the little critters, it does not eradicate them.
    I can feel them crawling in my nose, on my ears, in my eye brows, on my forehead and on the back of my neck. Why am I so sensitive? I personally think it is because of the volume of mites. who knows? I just deal with it.
    My Dermatologist insists that dust mites, mites from mattresses–upholstered furniture and mites in the hair follicles are all different. I maintain they are all relatives, because they all irritate me.
    For those of you that do not believe and respect my personal story of my history, there is a great TV program called “Once Upon A Time” that just wrapped up its 2nd year that suggests all the fairy tale characters have crossed over into another time—perhaps you can join them. Thanks

  13. mary says:

    o god al the wine guy…

    best wishes and boric acid baths can be dangerous to health. always use an MD. Well, not in the bath.

    god bless

  14. Lucia says:

    hello everyone, this is my first time posting as in doing my research i noticed all postings were outdated, so i was very surprised to see current postings.
    I tried the recommended treatment and it worked when i first tried it but thereafter my symptoms continued to worsen and the flare were unbareable.
    i finally sought the help of a naturopath and he prescribed chickweed cream which ive been using for a couple months now and it seems to have helped quite a bit.
    So my suggestion is to see a naturopath and ask about chickweed cream or other natural alternatives.

  15. mary says:

    no, on the chickweed…I am allergic to herbals of every kind. laser is your best bet and waxing hair follicles might help and get rid of pets. I heard of one case where a woman got some kind of vermin from her bird.

    most disgusting disease whatever the cause. horrible…

  16. Compass says:

    Hello,

    Thanks for the information you have put in one place it is very appreciated. I wanted to share my dilemma with whoever can help me out here. I’m a young mother who’s always since being a teenager I’ve always had skin issues I had acne, then along came a horrible infection with blood filled cysts on my face that was taking care with laser treatments and antibiotics but since I’ve had non inflamed acne I always have blackheads and under my skin ate all kinds of sebum trapped (sorry gross) an have large pores, please what I really begging for help is my children my daughter who is only 3 stated getting tiny little bumps filled with water and her pores on her cheeks are enlarging the texture is her skin is not the same anymore also she’s now developing smalls dents on her cheeks for no reason there’s had never been any physical trauma there, and she also has yellow crusted debri in her eyelashes, I’ve searched and searched and I’m most likely sure she has demodex, my son who is only 2 is getting tiny holes on his cheeks I don’t know what’s causing them, please please help me I don’t know what to do, I’m so depressed I feel like my kids got this from me or their dad who had severe hairloss who’s is another sign of demodex and the damage is happening so fast on my children what can I do to help them? They’re so little they can’t go though this. Can I use the creams you suggested on them? They are very healthy, do not any fast food, pre packaged food and hardly any candy why did this happen. Please help a mother who’s desperate.

  17. David Bourke says:

    @Compass,

    Please email me from my website and I’ll give you information that will help all your family:

    http://www.delusionalinsects.com/contact-form/index.php

    Please be sure to fill in your email address correctly, otherwise I can’t reply to you.

    Namaste, and much love and light to you.

    David.

  18. Jody says:

    Don’t go to this website unless you want to be completely unseated by the images. Went through them trying to get to important info and gave up as could not stomach the photos. Wish I could get the images out of my head.

  19. c. shade says:

    Found out that I have a gluten and egg intolerance. I have stopped itching after going off gluten. Is it gluten or demodex mites? Not sure if I will ever know for sure!

  20. Therese says:

    Hi I believe that different skin types will have different symptoms for rosecea. Unfortunately if u had dry skin and ezcema as a child with no pimples in site – u may be lucky enough and just have redness and not progress to pustules. Which is the case for myself. But what works for dry sensitive skin possibly will cause flares for oily skin. That’s why you need to try, try, try till u find what helps your personal ski type and issue. Respect each other people, it’s all advice. When I came here I paid more attention to people with similar skin to my own. Cerave is useful, I found zinc cream doesn’t get rid of the problem – but def helps on a day to day basis – if I don’t use it for a few days I’m redder than ever. I don’t think this is a sun issue – I use in winter too. Zinc is a great healer I found it by accident being in Oz and using invisible zinc as a sun cream.
    I think the dermodex thought makes sense, i hope there is a true answer for us all sometime in the future. Keep sharing you never know what will work. Best. Therese.

  21. Subtype 2: Papulopustular Rosacea & Subtype 4: Ocular Rosacea have proven connections to an over abundance of Demodex folliculorum and Demodex brevis mites. If you have either of these conditions you will have no doubt in your mind what a large role this annoying little mite plays in these conditions. Subtype 2: Papulopustular Rosacea is just Demodicosis in humans. Chances are this annoying little mites will be affecting your face, scalp, shoulders, back, chest and even possibly your hands and feet. If you do start treating an area they will go on their merry travels too. If you have Ocular Rosacea there will be an over abundance of Demodex under your skin where each of your eyelashes are. What causes the over abundance to happen well its not fully understood yet ? These conditions are many times harder to treat than Scabies is which is another little annoying mite. A Demodex infestation needs to be treated for a much longer period of time than a scabies infestation. Both Demodex folliculorum and Demodex brevis are typically found on the human face. Demodex folliculorum resides in hair follicles, where as Demodex brevis survives in sebaceous glands adjacent to hair follicles. For instance, around the eye area, Demodex folliculorum is found in the follicles of the eyelashes. In contrast, Demodex brevis inhabits the sebaceous gland of the eyelashes and the meibomian glands. They eat sebum and if you have this condition one of the mains symptoms will be cylindrical dandruff. The secondary infection the mites cause is a bit like acne, a bacterial infection. I suspect there’s yeast involvement when it comes to the scalp and possibly even on the face. Best treatment options are miticides like (Crotamiton & Permethrin or Ivermectin which for most parts of the world isnt available yet but will be soon as a topical hopefully), metronidazole & aziactic acid topicals for secondary bacterial infection acne. Benzyl Benzoate is a treatment option which has been offered in Russia. Looking on wikipidia Mesulfen Id imagine would be effective to as thats a miticide and its sulfur based and used for acne. I have no idea if its still being used for acne. Vitamin A or Vitamin A Retinol Cream, Seabuckthorn Oil and Sulfur based gels and creams are beneficial in the treatment of Subtype 2: Papulopustular Rosacea but you have to watch out about over dosing with Vitamin A plus it can cause liver damage if too much is taken over along period of time also pregnant women do not want to be taking vitamin a really as its been linked to birth defects. Borax is useful in the washing of clothes. Epson Salts is useful for Baths. Selsun Medicated 1% Selenium Sulfide Shampoo and Nizoral Ketoconazole Shampoo are useful as well as Tea Tree Shampoo’s for washing your hair. Zhongzhou’s Zinc Oxide and Sublimed Sulfur Ointment is one of the best alternative treatment options for the face. Accuntane (Derived from Vitamin A) is another route you can go down to help your skin produce less sebum and cut off the food supply to these annoying mites. Take a Vitamin B Complex + Vitamin C & make sure you get your RDA of Zinc and Vitamin D. You may even want to get a multivitamin supplement aimed at skin instead of the B Complex, Vitamin C & Zinc. L-Lysine is an amino acid which has been reported as being lacking in Rosasea sufferers apparently and this amino acid helps with the production of collagen. Taking a probiotic wouldnt hurt either. Obviously Symprove and VSL#3 are the most effective but they are pretty expensive. Choose well when it comes to probiotic supplements as most aint that effective.

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