Comments on: be careful with Levulan (aminolevulinic acid) http://rosacea-support.org/be-careful-with-levulan-aminolevulinic.html Where the rosacea community meets to support each other Fri, 20 Nov 2009 18:41:05 +0800 http://wordpress.org/?v=2.8.6 hourly 1 By: Digital Davo http://rosacea-support.org/be-careful-with-levulan-aminolevulinic.html/comment-page-1#comment-21702 Digital Davo Wed, 30 Jul 2008 01:42:25 +0000 http://rosacea-support.org/be-careful-with-levulan-aminolevulinic-acid.html#comment-21702 Hi Liz, There is a rare condition known as phototoxicity to Photodynamic Therapy. There is a drug in development that might be useful in treating this condition. It is not available right now, but I thought you might find this information interesting. http://clinuvel.com/en/corporate/clinical-applications/PDT/ A google search for this condition might also lead you to some helpful information http://www.google.com/search?q=Phototoxicity+associated+with+Photodynamic+Therapy davidp. Hi Liz,

There is a rare condition known as phototoxicity to Photodynamic Therapy. There is a drug in development that might be useful in treating this condition. It is not available right now, but I thought you might find this information interesting.

http://clinuvel.com/en/corporate/clinical-applications/PDT/

A google search for this condition might also lead you to some helpful information

http://www.google.com/search?q=Phototoxicity+associated+with+Photodynamic+Therapy

davidp.

]]> By: Digital Davo http://rosacea-support.org/be-careful-with-levulan-aminolevulinic.html/comment-page-1#comment-21672 Digital Davo Mon, 28 Jul 2008 07:26:52 +0000 http://rosacea-support.org/be-careful-with-levulan-aminolevulinic-acid.html#comment-21672 Sorry to hear about your trauma Liz. We wish you all the best for your recovery. davidp. Sorry to hear about your trauma Liz. We wish you all the best for your recovery.

davidp.

]]> By: Liz http://rosacea-support.org/be-careful-with-levulan-aminolevulinic.html/comment-page-1#comment-21514 Liz Mon, 21 Jul 2008 15:59:57 +0000 http://rosacea-support.org/be-careful-with-levulan-aminolevulinic-acid.html#comment-21514 I had levulan and IPL tx on my face on April 2/08. They let me drive home 1/2 in the sun which I later realized you are not to do. Not post-instructions given. I had the tx for big brown spots and some blackheads. I now get cystic acne and have blackheads all over my face. They burned my face badly and i had little tic marks all over my face. I had a CT scan of my sinuses 9 days later - stupid. My face has aged by about 15 years. Those little tic marks expanded and look like wrinkles. My whole body went tanned, dry, edema, redness, itching. Within 4 days I could not work as a nurse anymore. My whole body was in severe pain. My skin on my body went loose and I was tanning through my clothes. People say it is impossible for Levulan to go systemic but anything can. If Levulan is originally designed as a cancer drug and you have ionizing radiation on top is this the result. I am undatable and my life has been ruined. I had levulan and IPL tx on my face on April 2/08. They let me drive home 1/2 in the sun which I later realized you are not to do. Not post-instructions given. I had the tx for big brown spots and some blackheads. I now get cystic acne and have blackheads all over my face. They burned my face badly and i had little tic marks all over my face. I had a CT scan of my sinuses 9 days later – stupid. My face has aged by about 15 years. Those little tic marks expanded and look like wrinkles. My whole body went tanned, dry, edema, redness, itching. Within 4 days I could not work as a nurse anymore. My whole body was in severe pain. My skin on my body went loose and I was tanning through my clothes. People say it is impossible for Levulan to go systemic but anything can. If Levulan is originally designed as a cancer drug and you have ionizing radiation on top is this the result. I am undatable and my life has been ruined.

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