About The Rosacea Support Group

35 Comments ↓

#1111 phlika29 on September 28, 2007 at 4:40 AM

David

Its nice to get to finally see you. I love the article, your skin looks great now.

#1117 David Pascoe on September 28, 2007 at 9:59 AM

Thanks for the comments. It took quite a few years, but yeah now my skin looks great and most people will never know. I still wear a tinted sunscreen everyday to cover that ever present redness though.

#1899 candy on October 29, 2007 at 11:18 PM

thanks David for creating a “place” where we can share our rosacea problems…I’m glad u are finally fine…thanks again

#8405 Pete Willard on December 21, 2007 at 6:22 AM

David
I have sebaceous glands on both sides of my nose and it looks like i could be getting a bulbous nose.I went to four skin drs. and they said i won’t get rhinophyma of the nose.What do you think and can i help my nose?
thank you
Pete

#8645 Stacy on December 23, 2007 at 6:44 AM

Went to a dermatologist for the first time yesterday. I am just now learning about rosacea. The DR prescribed metrogel and Oracea. I am not crazy about the idea of taking an antiobiotic, but I also want the most effective treatment. After looking on the internet today, I am more concerned with side effects of the topical cream.
Now I am wondering should I be trying over the counter products like Eucrin first?

#8753 David Pascoe on December 24, 2007 at 1:12 PM

Hi Pete,

Great to see you posting on the forum as well. Hope you get some good help there as well.

Hi Stacy,

Oracea is a low dose antibiotic so it should give you much less problems compared to regular, higher doses. Also metrogel is a good treatment that works well. Some people can’t tolerate it due to sensitive skin, but if you can tolerate them, you should see some good benefits. All the best,

davidp.

#12942 Michelle on February 27, 2008 at 2:38 AM

Hi,
I just joined the site. David treatments have you used and what eventually worked? When were you diagnosed with rosacea? How many years did you have it before getting treatment? Did that affect the results? Sorry for all the questions;-)
Thanks
Michelle(Blue on the rosacea support group)

#12961 David Pascoe on February 27, 2008 at 10:17 AM

Hi Michelle,
on the right hand side under David’s Pages are links to a couple of pages where I waffle on about various treatments that I have used over time. Hopefully those will give you a good idea of what I’ve used so far.
davidp.

#12968 Michelle on February 27, 2008 at 1:43 PM

Hi David,
Thanks for replying to my message.
couldnt find David’s pages to the right–I went into search and that pulled up your pages–just wondered if you could tell me under what headings I would find the links;-)

Michelle

#12970 David Pascoe on February 27, 2008 at 1:50 PM

In the right hand column, there are headings Subscribe, Recent Articles, Recent Comments, Spotlighted Articles, _David’s Pages_, Products, Subscribe via RSS.

#13228 peter on March 2, 2008 at 8:57 PM

Hello,
could you recommend a face-cooling gel/creat/lotion that will help keep my face cool (and reduce prickly heat) through out the day.

thank you

Peter Haynes

#20259 James Finnigan on June 17, 2008 at 11:37 AM

David,

Would appreciate a trial sample of the Seabuckthorn Cream if any left. I leve in Brisbane and would pay postage.

Regards,
Jim.

#20260 Ludi on June 17, 2008 at 12:11 PM

hI
i WOULD ALSO APPRECIATE A TRIAL SAMPLE OF THE Seabuckthorn Cream.
I only discovered your site now.
Interesting.

Thank u
Ludi

#20392 Marjie Vanroo on June 18, 2008 at 8:05 PM

Hi David.
Thankyou for your articles. I treat people rosacea with IPL and often put them onto the web site for more info.
If you have any of the sea buckthorne I would love to give to some of my clients to try.
Thank you
Marjie

#20394 David Pascoe on June 18, 2008 at 8:53 PM

Sorry but the freebie samples are all accounted for now.

davidp.

#21225 Bev Jones on July 9, 2008 at 11:34 PM

Hello I have been given ROSEX Gel from the Doctor but it seems to make me worse I only used it 3 times and when I read the side affects that it kills DNA I stopped using but I am frightened to go back to my GP as he didn’t say any thing useful only that he would give me tablet form but I don’t want to be a guinea pig for my GP please help

#21234 David Pascoe on July 10, 2008 at 12:16 PM

Hi Bev,

Rozex gel does cause bad reactions in some people. If you can tolerate it, it should work reasonably well. Another option is noritate (if available in your country) or metrolotion or metrocream. It is generally safe to use and a very common treatment. It is good to have a good read of the prescribing information though as no drug is without side effects.

Oral metronidazole (flagyl) is sometimes used to treat rosacea, but it has even more possible side effects than topical rozex. Oral antibiotics like doxycycline have also been used a lot to treat rosacea, but again this is not without possible side effects.

If the usual route of rozex+doryx doesn’t work or isn’t applicable then there are lots of other things you can try: a gentle moisturizing and cleansing routine with a tinted physical sunscreen, IPL and others.

Have a read of the information for newly diagnosed rosacea sufferers here and see if it helps get you started ;

http://rosacea-support.org/community/viewtopic.php?f=3&t=150

davidp.

#25992 Brenda on December 30, 2008 at 9:58 PM

Hello,
I kind of stumbled upon your website by accident. Boy am I glad to get to know you. I am an African American with roseaca. Imagine the looks I get because in everybody’s mind I should not have roseaca.
Anyway, my skin feels on fire most of the time. I have been on Tetracycline for a while but not now. It seemed to help some. I also use Metrolotion daily. But I still have the red inflammed looking skin. I have seen several different things advertised on the internet but am hesitant to try especially if it is topical. What do you recommend? Thanks and keep up the good work.

#26634 robbin on February 23, 2009 at 10:17 AM

i am experiencing redness in the facial area with burning and not hot to the touch when I am in the wind just for one minute. I am 45 years old and I smoke and have alcohol(L.I.lced tea) on the weekend and once during the week.

What will help? or what can I try? should I try Eucerin redness relief soothing night cream?

Please help

I am not a diabetic or have any other health issues.

Thank you Robbin

#26710 cara on February 28, 2009 at 8:42 AM

Digital Dave, this site is so great. I want to try that seabuckthorn cream, I guess I better find where to buy it, I will keep looking around on this site.

Just thought I would post an update since my rosacea flared out of control a few months ago and I thought I was going to die. I started trying just about every “cure” and aid I could afford. From boron, to apple cider vinegar, to supplements including niacinimide, primrose oil, vit a, zinc, mag, c, b’s, olive leaf and beta glucan, etc. I haven’t tried all that I want but I am on overload. Unfortunately, when you do too many things it’s hard to say what works but when I started the metro gel, along with an anti inflamation diet (Dr. Perricone’s 29 day anti inflamatory diet; try it for three days and see if it helps) and continued the supplements, (manage about 5 out of 7 days, everyday doesn’t seem possible) I did get relief.

That means no more honey in my green tea, (switching now to herbal chamomile only, no more caffiein) no more potatoes, fried or otherwise, no more rice, brown or white, and of course no sugar at all. No hard cheeses, very little dairy except cottage cheese and yogurt in small doses, well, you can look it up. If I accidently get something (sugar in a salad dressing for instance) I immediately get a flush happening. If I lose control and eat hard candies on my way out of the Daily Grill or some other restaurant well, I pay for it the next day. I figure I have to heal the skin, and the gut and that may include candida, so anti fungals are included in my supplements.

I am on my way for a one week fast of raw foods and sprouts along with colonics as part of my “program” of healing. I don’t mind eating well if I have plenty of choices so making sure I have healthy food I can eat handy is sooo important. NO popcorn at the movies (I bring green apples, carrots etc.) Oh and I am eating a lot of WILD salmon, according to Perricone’s diet. A little quinoa and oatmeal is okay.

Finding moisturizers has been tricky, but I found a tube of Physician’s formula tinted moisturizing cream that seems to be working now, after washing with Cetaphil. I also then brush on some Bare Minerals and that has been covering nicely. The cosmetics are all new as of this week so who knows if it will last but I am getting burned out on the money spent and hope I can use it up until it is gone. I even got vaseline, and am using it judiciously. So far it’s okay. They really try to get you at the cosmetic counters in the dept stores but I ask for samples and see how I tolerate them. Clarins sample extra moisturizing foundation seems to be okay but I will wait until I am feeling flush with some extra money.

I know the next layer is stress, and as I am having intense family issues, elderly sick mother, evil siblings issues, I know I have to combat that. Then of course there is the hormone issue, having just turned fifty. Yeah, it’s all hard. But I am motivated. Walking a few days a week helps but I know I need some yoga or other stretching excercises.

Wish me luck. I wish all of you luck.

Cara
Santa Monica

#26895 redhead on March 11, 2009 at 1:34 AM

For anyone who has severe flushing/burning I sympathise……Its the most awful feeling and you cant go out as normal as your face is on fire all the time. I got IPL laser and hand on heart-it was the best thing-after a few sessions no more burning. Its expensive but so so worth it… I use Facedoctor soap (which has seabuckthorn oil) and MD Cleanser with glycolic acid (not together) and also Rosex Gel and Minocin if I get flare up.

Hope this helps someone suffering from horrible Rosacea

#29552 Eliud Martínez on August 7, 2009 at 7:39 AM

I sent you an email. Please let me know if you receive it. You are welcome to post it on your website.

Best

#29698 Valerie on August 14, 2009 at 5:53 AM

Just wanted to put it out there that I have suffered with rosacea for eight years now and have had not one bit of success getting rid of it, or shall I say, maintaining it!!
I have tried every perscribable ointment, gel and medication from all different doctors… Nothing ever got rid of it.
I am now 30yrs old and attending college, which will be ending in three months and have been stressing out, trying to resolve the horrible appearance of my face for when I join the worforce, once again!!
A friend in class told me how she used to have this really bad and that she had a doctor who suggested she try a fungial shampoo!!
Of course, the sensitivity of my facial skin, you can imagine the truly genuine fear I had with trying something else foreign on my poor face.
My face at this point was so bad that it was literally huge welts on my face glowing red burning like crazy and some acne, to top it all off!!! WONDERFUL.
I am seriously tired of holding my head in shame of what my face looks like to other people-which I know was horrible.
Ok, so heres the deal…. I eventually tried it…the shampoo is called Nizorol…. I only wash the affected area with a thin layer of the shampoo, once lathered on area, I let it sit there for a minute and then rinse it off…
Thats it…. I did this twice a day until it was gone, now I do it at the first spot of it and it is gone within days…
As well, this really dries out the skin, so at night, I use a moisturizer on it.
I haven’t had such a clear face in forever!
I have been living in such embarrasment for so long… I actually feel good about myself again-despite all my other flaws ha ha ha, can’t find a shampoo for them!!!
If I am able to help even one person with this-that would make me feel like a million dollars!! I truely know how depressed this made me feel for so long…
Hope this helps someone out there.

#40983 Karen Sisson on June 25, 2010 at 4:04 PM

Hi Dave
I have just been diagnosed with Rosacea. I am 47 and I think that it has been triggered by the peri-menopause. Thankfully I do not have flushing, mainly a patch of spots near my nose which do not go away and ocular as my eyes are very dry and gritty. I realise now that my father has had rosacea for years untreated and has gone on to develop the nobbly nose rhinophyma. I am paranoid that I will also develop this as my nose is going red and has strange sensations in it.
I have been given Rosex and an anti-biotic. I have also changed my diet as I have nerve tingling from the peri-menopause also and I can feel the effects of food on this, especially wine and bread and carbs. Looks like my body does not like histamine.
Do you think that if, heaven forbid, I develop rhinophyma it can be improved with surgery?

Karen
Gibraltar

#40987 David Pascoe on June 25, 2010 at 4:46 PM

Hi Karen,

Thankfully rhinophyma is rare, mostly in men and develops over many years. So you are quite unlikely to develop it.

Oral isotretinoin is one possible treatment should you start to develop early stages, but this is a drug that you of course need the close support of a specialist to take.

There are surgery options but they are only required for the most severe of cases which are thankfully rare.

I don’t know of any studies that show that you can stop rhinophyma developing over time, but it seems like a reasonable guess that if you reduce the amount of frequency of facial flushing then you might reduce your risk.

davidp.

#40991 Karen Sisson on June 25, 2010 at 7:41 PM

Hi Dave

many thanks for your prompt reply! Looks like I will just have to keep my fingers crossed re the nose and do my best to stop it happening. At least having to watch what I eat should help me to lose some weight.

Many thanks
Karen

#43736 louise on August 8, 2010 at 10:09 PM

I have had rosacea for too long and saw many doctors. I am at my wits end and don’t know what to do. The doctors take it lightly and I have tried just about everything and spent a fortune. Does Intense Light Therapy help and where do I get it?

Thank you,
Louise

#46417 Akash on November 13, 2010 at 9:35 PM

Hey david

Finally saw your picture.You look so great and of course,normal!(touchwood).
I wish i have a nose like you one day.Even I’ve got rosacea.

What is the tropical thing you mentioned in your article?
Do you have papules and pustules now?even occasionally?
Im 16 right now.Will my rosacea become worse with age?
im treating it right now.Is there a possibility that the redness will fade away with age?or will get worse?

Once again..nice picture!

Akash

#46496 David Pascoe on November 16, 2010 at 10:01 AM

Thanks Akash,

The interview was quite a while ago now. The topical I was referring to was Cutanix DRL. Sadly it is not currently available to purchase. I have heard some rumours that it might be available again. Lets hope that that is true.

It is impossible to say whether redness will get worse with age. If you are able to reduce your exposure to your triggers and are able to protect your skin then you stand a good chance of reversing your symptoms, though.

davidp.

#57154 Sharon Wells on May 15, 2011 at 3:12 AM

Hello David ….

This is how i manage my lovely red face! I wash with Clinique redness solution cleanser, then use Avene Cicalfate all over my face, its wondeful for the spots and promotes a healthy skin and only £8 a tube last for a long time, then i use Clinique SPF 30 Face cream , then after a little while i add Clinique city block sheer SPF 25. My skin is very dry and if use only the city block i find its not enough…by using the other face sun cream as well i get a very happy skin and the city block has a tint to it which hides the redness perfectly.
I have tried so many products and this trio of creams works wonders for me. The Cicalfate contains zinc and copper sulfrate and is amazing at healing my skin. This the best i have found for me..not saying for everyone but do give it a try.

#57604 Murray on May 18, 2011 at 9:19 PM

I have recently had three treatments of veinwave and had mixed results with removing broken capillaries. This website does not contain any information on veinwave and I was wondering why?

I would also like to know if IPL laser treatments actual promotes the growth of new capillaries to come to the skins surface around the nose and checks?

Recently went to a GP promoting the use of limelight laser. He was stated that laser do not promote damage to capillaries. However, I constantly read conflicting advice on the internet. Can you please help

#57611 David Pascoe on May 18, 2011 at 10:10 PM

Hi Murray,

Veinwave is not talked about much nor has there been anything in the literature about it so there has been little reason for it to be discussed.

IPL should not promote the growth of new vessels, but maintenance treatments may be required around yearly to maintain any benefit. With IPL, different filters to the IPL head allow the doctor to address different sized vessels.

I don’t know enough to comment on limelight lasers, sorry.

#84655 Dennis on January 7, 2012 at 9:32 AM

Hello David:

Thanks so much for all your efforts in launching this latest version of the Rosacea Support Group website. It’s very informative and well laid-out.

Do you know of a Rosacea support group in San Diego – a group that actually meets in-person? At your convenience, please advise.

Regards,
Dennis, aka KC
San Diego, CA

#84729 David Pascoe on January 7, 2012 at 4:06 PM

Hi Dennis,

There are in actual fact very few face-to-face rosacea groups around the world. I think the rise of the internet as a support medium has pretty much seen the demise of meeting in the same room, at least for rosacea.

I don’t know of anything in San Diego, but if anyone does know they are most welcome to post to let us know.

all the best,
dp.

#98883 Robbie on May 5, 2012 at 8:03 AM

My rosacea has never been diagnosed, but I am sure that is what I have. I have always, always used lots of heavy makeup to cover this, but frequently was embarrassed by a bright red flush on my upper chest and neck, but did not put make up there after trying that once because it would get on my clothes. Now I am 77 years old, having had a stroke and then triple bypass surgery at age 72 making me have to retire. Now I never wear make up on my face. It is so lovely to not have to wear make up. I used to use really hot water to help remove the makeup. I lived in a hot climate for most of my life – Texas. Now I live in southern Florida. still hot. My face looks really red with lots of broken tiny red blood vessels and if I am in a hot room it gets a lot redder. I sometimes hear ignorant people who are so rude that they say things to let me know that they think I am or was an alcoholic, or to imply to others with them that that is what they think, such as remarks about liver damage or more directly about drinking. This was hard to take, but I will not go back to wearing make up, and now I do not even care about such stupid remarks. I do not have to prove anything to anyone else now that I am retired, and even before that I was able to work at home (medical transcriptionist) quite a while before I retired.