About Rosacea:
According to the National Rosacea Society, more than 14 million Americans suffer from the condition called Rosacea, and most of them don’t know it. Rosacea is an acne like inflammatory skin condition that can affect the nose, cheeks, chin and eyes. Sometimes (but no longer) called acne rosacea, rosacea is surprising because of how common it is and secondly how poorly understood it is.
In recent surveys by the National Rosacea Society, nearly 70 percent of rosacea patients said this condition had lowered their self-confidence and self-esteem, and 41 percent reported it had caused them to avoid public contact or cancel social engagements.
Those that suffer from rosacea, know well that rosacea is more than just a red face.
Where to look for more:
If you are just starting to look for internet resources related to Rosacea, your first stop should be the Rosacea FAQ. This will answer some of your simple questions and whet your appetite for more.
The Rosacea Support Group
Looking for some rosacea help ? In October 1998, I created an email support group for rosacea (a rosacea forum, rosacea chat or rosacea bulletin board if you like).
This group has proved valuable for people suffering from rosacea to exchange information about rosacea symptoms and rosacea treatments.
As of February 2007, there are more than 7000 registered members of this email group, with many many more reading the list without registering. In mid 2007 a new forum, the Rosacea Support Group Forum was launched to compliment the rosacea support email group.
Have you just been diagnosed with rosacea ? Head over to our Just Diagnosed With Rosacea Forum for some great information and support.
The list and forum members talk about their rosacea skin care products, rosacea symptoms, what medicine and health professionals have to say about rosacea, treating rosacea, ocular rosacea, facial redness, rhinophyma and rosacea red noses, rosacea flushing, rosacea related pain, steroid induced rosacea as well as lots more. Also expect discussions about what traditional and alternative medicine has to say about rosacea.
The forum functions like an online rosacea self help group.
It can be quite scary when you are first faced with a rosacea diagnosis. We are here to help !
Searching the archives
Searching the archives takes some effort, but it is worth it.
- Use the message search that is part of the Yahoo!Groups archive. Go to Advanced Search and put in the subject you are looking for.
- For messages posted since 26th July 2004 try the very fast and accurate [google groups search]. This message mirror also shows a threaded view of conversations.
- Use Warren’s great rosacea specific search engine, that has crawled many rosacea web sites as well as all of the rosacea-support Yahoo!Group. Here are a couple of example searches.
Geoffrey Nase & Rosacea
The rosacea community first heard from Dr. Geoffrey Nase (PhD) in February 1999. Geoffrey informed us that he was a severe rosacea sufferer and a vascular researcher.
Subsequently, his background and his zeal lead him to self publish a book titled Beating Rosacea. This book introduced us to some ideas about the basis of the disease and how we can go about treating it. This web site has promoted `Beating Rosacea’ for several years since it was published in 2001.
Recent events necessitate a question over the reliability of the information in `Beating Rosacea’.
Since the end of 2004, some in the rosacea community have lost faith in Dr. Geoffrey Nase PhD as a leader in rosacea. I want to believe that the last year doesn’t mean that we have lost our hopes and dreams that came with Geoffrey ; but sadly my hopes appear to be poorly placed. A recent newspaper item titled Rosacea Guru to end battle over critic’s site also deals with this sad story.
On a personal level, I have thought quite a bit about recent events that relate to Geoffrey Nase, rosacea and the internet. I’ve captured these thoughts in a document I have titled `When your Internet Angel is a “Dog”‘.